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   Author  Topic: He published it Jonny  (Read 436 times)
UN_SOLVED
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He published it Jonny
« on: Jun 28th, 2004, 8:51pm »
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So, I am surfin' round the web. I saw Jonny's website and thought i'd check it out. (Great site BTW). I clicked on a link at the bottom of the page that says: "chhelp"...so I keep surfin'. In the main topics was "Treatments" so off I go. They have a section there with "Personal Experiences". I thought it was very interesting so I e-mailed the author. They were so interested they replied within hours wanting to know more. So, I wrote him a letter and it was published on the site. I know they did some editing, I actually haven't read the whole thing yet, but I will. (I'm sure it's fine)
 
Check it out
 
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Re: He published it Jonny
« Reply #1 on: Jun 28th, 2004, 9:25pm »
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So howzabout a link to that then Unsolved? Grin
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Re: He published it Jonny
« Reply #2 on: Jun 28th, 2004, 9:31pm »
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Theres a few above you : But it case you couldn't find it...HERE IT IS  
 
HERE  << CLICK ON THAT "HERE" BUTTON
 
 
LMAO
 
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Re: He published it Jonny
« Reply #3 on: Jun 28th, 2004, 10:19pm »
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hey now, take it easy on my brikki chikki... Grin
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Re: He published it Jonny
« Reply #4 on: Jun 28th, 2004, 10:53pm »
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on Jun 28th, 2004, 8:51pm, UN_SOLVED wrote:
So, I wrote him a letter and it was published on the site. I know they did some editing,

 
You are one for the books Solved-not.  Grin  
 
I can see why that was printed, that IS one heck of a story.  
 
Good luck to you with future treatments.
 
Kevin M
 
 
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Re: He published it Jonny
« Reply #5 on: Jun 28th, 2004, 11:07pm »
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I am so glad they published your letter. Here's  hoping that something good may come of it and make you pain free.  Smiley
 
 
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Re: He published it Jonny
« Reply #6 on: Jun 29th, 2004, 4:40am »
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Ooooops.  Embarassed  Must've been having a (colour blind) blonde moment there Unsolved - i didn't even see the different coloured text. I really must eat my carrots.
 
Your story blew me away. I had no idea that you'd experienced so much surgery. Unsuccessfully.  
Thanks for getting the news out there. Many people have no idea what chronic CH is like and you explain it so well.  
 
Thank you
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Re: He published it Jonny
« Reply #7 on: Jun 29th, 2004, 7:53am »
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U_S,
 
Although I am diagnosed chronic, I'm not in the same category as you. I knew this after reading your first post. I knew then that you have and are suffering far more than me. Like Firebrix, I had no idea you've been through so much surgery(unsuccessfully).
 
I really don't know how you do it! You are truly an example for us all. Michael, I look forward to when you change your handle to 'SOLVED', and may that day be soon!
 
Sincerely,
 
Bob (Alley)
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Re: He published it Jonny
« Reply #8 on: Jun 29th, 2004, 9:17am »
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Un_Solved, I just read your story.  I did not know you had been through so much.  It has given me a deeper respect for you and what you have been through.  Thank you for sharing your story with others and for allowing me to read it.  
 
I wish for you as well as for all of us a quick cure for this cruel malady.  
 
PFDAN wishes to all.
 
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Re: He published it Jonny
« Reply #9 on: Jun 29th, 2004, 9:44am »
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on Jun 28th, 2004, 8:51pm, UN_SOLVED wrote:
So, I wrote him a letter  
 
Unsolved
Um, I think it's a her.  That's Bennie Sue's site.  Looks like she's changed the layout.  Looks good.
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Re: He published it Jonny
« Reply #10 on: Jun 29th, 2004, 11:33am »
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on Jun 29th, 2004, 9:44am, Bob P wrote:

Um, I think it's a her.  That's Bennie Sue's site.  Looks like she's changed the layout.  Looks good.

I think you are right. Sorry Bennie Sue.
 
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Re: He published it Jonny
« Reply #11 on: Jun 29th, 2004, 3:11pm »
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Thats great news, Mike Grin
 
............................jonny
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Re: He published it Jonny
« Reply #12 on: Jun 29th, 2004, 7:55pm »
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Unsolved  
 
Read the story - Thanks for sharing.  
 
I wish you luck!  
 
Peace and Positive Energy
 
D
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Re: He published it Jonny
« Reply #13 on: Jun 29th, 2004, 8:01pm »
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Hey D,  Welcome, so far we have a Donna_D, Carl_D and John_D and now just D, we all gotta be related somehow.  Grin /John_D
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Re: He published it Jonny
« Reply #14 on: Jun 29th, 2004, 8:03pm »
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Dont forget the ultimate "D"........."DJ".....LOL Grin
 
.....................................jonny
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Re: He published it Jonny
« Reply #15 on: Jun 29th, 2004, 8:17pm »
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I should change my handle to DEBAUCHERY ... Pain Free right now and my hormones are kicking in. (chuckles)  
 
Thanks!
 
Peace and Positive Energy
 
D
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Re: He published it Jonny
« Reply #16 on: Jun 29th, 2004, 9:24pm »
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Nice Michael...hope we can all start waking up the world...little by little..with more exposure...like these articles...will benefit us all. I was so proud to see the Gamma Knife was done in my hometown of Pittsburgh!!!!! Lets keep pushin it everyone!!!  Luke
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