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Topic: CatLind (DHE this weekend) (Read 679 times) |
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Anthem
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CatLind (DHE this weekend)
« on: Jun 26th, 2004, 8:40am » |
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Cat went in yesterday to start a three-day treatment of DHE. It happened pretty quick. She had a Dr's appointment yesterday at 1100am and was admitted for the DHE by 7PM.
Hopefully, if all goes well, she could be pain free for some extended time  (I guess Don went 3 years PF after DHE??).
She won't be back home until Monday evening (if all goes well).
Best regards,
Clark
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Kevin_M
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Re: CatLind (DHE this weekend)
« Reply #1 on: Jun 26th, 2004, 8:54am » |
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Thanks Clark,
Glad she has this option available to her and she was not turned down for this treatment.
Hope it gives her lasting results.
Kevin M
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UN_SOLVED
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Re: CatLind (DHE this weekend)
« Reply #2 on: Jun 26th, 2004, 9:03am » |
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Everyone deserves a break from the beast from time to time. Hope she gets some R & R !
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Woobie
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Re: CatLind (DHE this weekend)
« Reply #4 on: Jun 26th, 2004, 9:17am » |
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WOO HOO!!
I hope you get yeaaaaaaaaarrrrrrrsssss of PF time!!!!
Vibes comin!
tina 
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Ree
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Re: CatLind (DHE this weekend)
« Reply #5 on: Jun 26th, 2004, 9:38am » |
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Clark, We here in our family will be praying that the DHE helps............. God bless her impatient heart, she has been suffering too long. You are the strongest supporter on this board... Kiss those kids and know we are cheering for her... Love to you all Ree
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Little Deb
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Re: CatLind (DHE this weekend)
« Reply #6 on: Jun 26th, 2004, 9:45am » |
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Prayers and vibes to Cat.........thanks Clark.
Give her a big hug, and take her some good food!!!
Big Hugs to Cat...................Little Deb 
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miapet
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Re: CatLind (DHE this weekend)
« Reply #7 on: Jun 26th, 2004, 11:10am » |
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We're thinking of you, Cat, and your family. And sending lots of *positive light and energy*
D/miapet
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Not4Hire
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Re: CatLind (DHE this weekend)
« Reply #8 on: Jun 26th, 2004, 3:32pm » |
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thanks Clark.... I got all MY digits crossed that my lil seester will get some TIME OFF....
and of course, having her out of the the house will give YOU:
-time to play golf, (do the dishes),
-play some pool with yer bros, (take out the garbage),
-hang out at the strip club, (mow the lawn),
-go fishin', (scrub the toilets),
-and ALL that other fun stuff.....
seriously: tell her to call.... and if YOU need any-fookin-thing, ya got my #
n4
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pubgirl
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Re: CatLind (DHE this weekend)
« Reply #9 on: Jun 26th, 2004, 3:40pm » |
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Best thoughts, wishes and prayers from over the pond. Hope the effects last as long as possible
Wendy
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Charlie
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Re: CatLind (DHE this weekend)
« Reply #10 on: Jun 26th, 2004, 4:06pm » |
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Good to hear about this kid.
Here's hoping she wll be PF for about 500 years.
Lotta vibes.
Charlie
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firebrix
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Re: CatLind (DHE this weekend)
« Reply #11 on: Jun 26th, 2004, 5:41pm » |
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Thanks for posting Anthem.
Hope all's well with you and that Cat becomes pf forever.
Give her our love
firebrix
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Re: CatLind (DHE this weekend)
« Reply #12 on: Jun 26th, 2004, 9:26pm » |
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Clark,
Thanks for letting us know.
Tell Cat I will call her Tuesday.
If you need anything, you have my #.
Lots of love to you and Cat
Jean
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Sean_C
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Re: CatLind (DHE this weekend)
« Reply #13 on: Jun 26th, 2004, 9:29pm » |
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Vibes comin Cat, hang in there
Sean
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Edna
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Re: CatLind (DHE this weekend)
« Reply #14 on: Jun 26th, 2004, 10:32pm » |
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Thanks for letting us know Clark.
Cat, hope you get some much deserved pf time real soon, and that it sticks around for a long time for you.
big vibes headed your way,
EDNA
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Elaine
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Re: CatLind (DHE this weekend)
« Reply #15 on: Jun 26th, 2004, 11:07pm » |
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Prayers coming your way . Hope this works for you and you and your family will be able to have some pain free time.
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Jackie
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Re: CatLind (DHE this weekend)
« Reply #16 on: Jun 27th, 2004, 9:01am » |
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Thanks for keeping us posted, Clark....
Give Cat our love....
Love to you and the family....
Jacks 
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BlueMeanie
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Re: CatLind (DHE this weekend)
« Reply #17 on: Jun 27th, 2004, 1:40pm » |
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Thanks for letting us know Clark. I sure hope this works for her. Sending vibes that Cat stays PF forever. After all she's been through God knows she deserves PF time.
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Big Dan
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Re: CatLind (DHE this weekend)
« Reply #18 on: Jun 27th, 2004, 1:42pm » |
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Good luck Cat...
Hope this does the trick for ya!
-Big Dan
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Rick_K
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Re: CatLind (DHE this weekend)
« Reply #19 on: Jun 27th, 2004, 5:18pm » |
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Good luck Cat........
Wishing you a loooooong PF time
Rick
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TomM
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Re: CatLind (DHE this weekend)
« Reply #20 on: Jun 28th, 2004, 11:08am » |
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Hey Clark. Tell Cat that I say 'Hi' and that I hope she does better.
TomM
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Woobie
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Re: CatLind (DHE this weekend)
« Reply #21 on: Jun 28th, 2004, 11:21am » |
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Re: CatLind (DHE this weekend)
« Reply #22 on: Jun 30th, 2004, 8:06pm » |
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Hi folks
They let me loose finally 
The bad part is that I started having chest pains and a *ahem* slightly elevated blood pressure (normal bp for me is 90's/60's it hit 209/156  ) so they had to discontinue the DHE.
After 6 different IV sites that went bad, and managing to get a total of 3mg of DHE into me, we had to give it up. That was the condition of them letting me try it - even the slightest blip on the cardiac monitor was an immediate halt. While I was in the hospital and they were watching my astronomical blood pressure, it decided to go back to it's normal lows and bottomed out at 72/36 giving the poor nurses on the cardiac floor heart attacks of their own hehe. I just like to be difficult 
Needless to say, it hasn't given me the reliefI hoped for, and they started a medrol taper, that doesn't seem to have helped but has turned me into a bitch from hell - gotta love the rage of steroids.
I'm not giving up, and because it was a university hospital I got to educate 12 up and coming neuros and they learned alot
My neuro here is out of ideas and suggested surgery - gamma rhizotomy etc. but I'm not there yet, I told him about psilocin and he said if I could get into the trials he would back it and follow it with his students very carefully.
They blew the entire network of veins in my arms so they couldn't do the steroid drip but I've let them know that there's still options out there. Unfortunately I couldn't convince them to let me use triptans again *sigh*. Ah well, I'll find the magic bullet, I know it's out there
Hope all is well with everyone, and if you decide to do a DHE treatment - I hope you don't have as wacky a blood pressure as I do
Cat
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jonny
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Re: CatLind (DHE this weekend)
« Reply #23 on: Jun 30th, 2004, 8:20pm » |
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Damn it!!! 
......................................jonny
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Woobie
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Re: CatLind (DHE this weekend)
« Reply #24 on: Jun 30th, 2004, 8:51pm » |
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oh MAN Cat!!!!!!!!!
Dammitol.!
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