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Topic: Something for the chronics.... (Read 698 times) |
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Roxy
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Something for the chronics....
« on: Jun 16th, 2004, 10:41pm » |
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Not sure how many read this on the other board, but it hit me right in the heart. I know the chronics are a small majority of the people on the board, and to be honest, sometimes (if it is a really bad head time), it is very hard to read about some of the espisodics pain and to sympathize....because for them, it's going to end. And when you're hurting, and you know it's not ever going to bloody end.....well, not sure how to put it, but sometimes sympathy is hard to give.
This is how Superpain put it:
Quote:And there are a few people here like that. So when you think "why me" and "I just can't take it anymore" and thoughts like that, just remember that you are very lucky because it IS going to end soon. The headache and the cycle...
But for the "true chronics".... I don't know what to say... They are beyond needing or wanting sympathy, so all I can do is salute them for being so strong. Because through no choice of their own they have evolved into the toughest people in the world. But only we can understand that. |
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Thank you for thinking of us chronics......I appreciate it very much.
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Mr. Happy
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Chronics....scary steamish.....
« Reply #1 on: Jun 16th, 2004, 10:47pm » |
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(.....donning latex gloves and full face mask)
Filthy chronics are giving us a bad name,
RJ
PS: - I know far too many chronics on a first name basis. Practice safe CH..........
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| « Last Edit: Jun 16th, 2004, 11:11pm by Mr. Happy » |
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Woobie
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Re: Something for the chronics....
« Reply #2 on: Jun 16th, 2004, 11:09pm » |
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I dont know how any of you do it.... but there's a special place in my heart for you chronics.
There's also a special place in my heart for the supporters of chronics. I dont know if Ramon and I would still be married if he were chronic. 
I love you ALL!
tina 
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Kevin_M
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Re: Something for the chronics....
« Reply #3 on: Jun 16th, 2004, 11:10pm » |
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on Jun 16th, 2004, 10:41pm, Roxy wrote:it is very hard to read about some of the espisodics pain and to sympathize....because for them, it's going to end. And when you're hurting, and you know it's not ever going to bloody end.....well, not sure how to put it, but sometimes sympathy is hard to give.
Thank you for thinking of us chronics......I appreciate it very much. |
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Hell, if it wasn't for the support of the chronics on this board.......you guys get the best from me. And Roxy you are a great supporter. I wish I could do the same for all the chronics.
In a way, yes, being episodic, I can get removed from the pain, and the memory of the terrible times fades. But then I remember all of the those still suffering and the chronics who fight all the time. Superpain did reflect on what is true.
Staying to be here for all, learned it from those who gave it.
Kevin M
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| « Last Edit: Jun 17th, 2004, 12:38am by Kevin_M » |
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Opus
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Thanks
« Reply #4 on: Jun 16th, 2004, 11:17pm » |
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NT
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Mr. Happy
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Re: Something for the chronics....
« Reply #5 on: Jun 16th, 2004, 11:19pm » |
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on Jun 16th, 2004, 11:10pm, Kevin_M wrote:| being episodic, I can get removed from the pain |
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That's the general idea, mate. It's that intermittent punishment which causes the underlying Paranoia from which we all enjoin.
Lousy club, no matter how you cut it.......
RJ
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May those who don't want any
Have memories of never getting any.
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Kevin_M
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Re: Something for the chronics....
« Reply #6 on: Jun 16th, 2004, 11:30pm » |
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on Jun 16th, 2004, 11:19pm, Mr. Happy wrote:
Lousy club, no matter how you cut it.......
RJ |
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Yeah, once your hands been stamped, it don't wash off.
Kevin M
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UN_SOLVED
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I need a fully-automatic Imitrex injector !!
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Re: Something for the chronics....
« Reply #7 on: Jun 17th, 2004, 12:14am » |
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Being a CHRONIC ... I go into the hospitals about every month (or sooner) for a "break" with some DHE. It only last for a few days ... then it's back to 'clusterville' for me. Been that way for a long time. Without Imitrex injections, I'd be dead now !
Unsolved
Epsodics ... enjoy your PF time !
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I'm STILL alive ?
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Tiannia
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Re: Something for the chronics....
« Reply #8 on: Jun 17th, 2004, 12:30am » |
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Everyone here has always been great to me. And there are a few very wonderful chronics who have been such a major formof support to me because I keep thinking, that if they have lived throught this for x number of years then I can too. As my year anniversary witht eh Beast comes closer, I find myself in a drepression at times vebecause I always sat through attackes thinking that at some point they will stop and I will get a break.... Well the have yet to stop and less then a month to go. WOOO HOOOO!!!!!!!!!!!!!! (In case you are wondering that was dripping with sarcazim (I know spelled wrong sue me  )
Anyway the support that I haev gotten from everyone here, chronic, eposodic, supporter alike has kept me sane. without you all... Well I am not quite sure where I'd be right now. So thank you all.
-Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Mr. Happy
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Chronic-als..........
« Reply #9 on: Jun 17th, 2004, 12:41am » |
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OK.......OK........I'm _Sorry_ I'm not chronic. Jesus H........it's not MY fault. So, tomorrow morning, I'll go slam my hand in a car door just to play ketchup.
Gloves and mask.
Filthy chronics,
RJ
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May those who don't want any
Have memories of never getting any.
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Roxy
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Re: Something for the chronics....
« Reply #10 on: Jun 17th, 2004, 12:44am » |
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Full body condom RJ......you know I'll rub off......
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Tiannia
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Life does not apologies......
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Re: Chronic-als..........
« Reply #11 on: Jun 17th, 2004, 12:44am » |
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on Jun 17th, 2004, 12:41am, Mr. Happy wrote:OK.......OK........I'm _Sorry_ I'm not chronic. Jesus H........it's not MY fault. So, tomorrow morning, I'll go slam my hand in a car door just to play ketchup.
Gloves and mask.
Filthy chronics,
RJ |
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Hap, did I say what I said wrong, or are you just bein facisious again? If I pissed you off I am sorry.
-Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Carl_D
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Re: Something for the chronics....
« Reply #12 on: Jun 17th, 2004, 1:09am » |
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on Jun 17th, 2004, 12:14am, UN_SOLVED wrote:| Without Imitrex injections, I'd be dead now ! |
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By all rights, I SHOULD be dead. How and why survived my major OD in January of 2003 escapes me to this day. No one should have found me for days, and that would have been the landlord sniffing around early February wondering where the rent was. I still don't understand how someone found me, with my doors all locked and no phone, or how I even got to the hospital. I went for years with no preventatives, no abortives. I wanted it to end. I NEEDED IT TO END!
Since becoming chronic Feb of '98, I had no real relief. It wasn't until Jim (JDH) gave me some Trex last August that I finally had something tangible to fight the beast with. Prior to that, Imitrex hadn't worked for me.
Thanks for posting this Roxy, Superpain... all you guys. Just like it takes someone else with CH to really understand the pain, in a way of sorts I also think it takes another chronic to understand what it means to be chronic.
I speak for no one else but myself when I say this: I am not tough at all. I am not strong. I have a very low tolerance for pain. I've had friends tell me they don't know how I deal with it. The fact is, I don't deal with it very well at all. I'm a whimp compared to some of the other chronics here. I come here to bitch and whine while at the same time, some of my friends never hear a word of it, and I don't want them to either. It would just be a buzzkill to them anyway. Only those that are very close to me know what I deal with, everybody else just thinks "The Freek has issues!" Kind of weird. I have only physically met a couple of people from here, and yet I count you guys closer than some of the peeps I grew up with.
So what exactly is it I am trying to say? I don't have a fucking clue myself. I've had about 2 1/2 hours of sleep since Sunday morn, my brain is scrambled right now, but the clicking of the keys on the keyboard is kind of a comforting distraction from the heavy shadow in my head and the perpetual throbbing and pulsating pain in my legs. Doesn't matter though. I know most folks just glance at the length of my posts and just skip over them anyway. So my secret is safe with you guys who have actually read this lil post here. I already forgot - what was the topic again?
Peace,
Carl D - The Village Idiot
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Carl_D
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Re: Something for the chronics....
« Reply #13 on: Jun 17th, 2004, 1:13am » |
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on Jun 17th, 2004, 12:30am, Tiannia wrote:
Anyway the support that I haev gotten from everyone here, chronic, eposodic, supporter alike has kept me sane. without you all... Well I am not quite sure where I'd be right now. So thank you all.
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Ah, there it is. THAT is what i was trying to say. If only I had waited a moment before posting my lengthy response above. Thanks Tia.
As Emily Litella used to say when the obvious was pointed out to her: "Oh. Nevermind."
Peace,
Carl D
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notseinfeld
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Re: Something for the chronics....
« Reply #14 on: Jun 17th, 2004, 10:41am » |
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carl: I think you're underestimating yourself---actually, I know you are. As a fellow chronic I'm certainly in a position to relate and while I know the episodics out there have it bad for a while, we experience the true 'test'. Why and for what I don't know but I'm hoping there's a purpose.
If in the afterlife there's a buffet of filet mignon and shrimp scampy, I believe we'll get a free pass to the front of the line. 
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Luke63
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Re: Something for the chronics....
« Reply #15 on: Jun 17th, 2004, 10:43am » |
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I love all of you guys...and I think about all of you....you've all become an important part of my life now.....doesn't matter what your condition is. This is my Family and I'm keeping all of you...like it or not!
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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BruceD
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Re: Something for the chronics....
« Reply #16 on: Jun 17th, 2004, 11:57am » |
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on Jun 17th, 2004, 12:44am, Roxy wrote:| Full body condom RJ......you know I'll rub off...... |
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Screw that! It's not effective enough. At the convention I'm running a wireless video link to my room just so I don't have to get close to those nasssteee chronicsesss. (I've gotta keep my distance from all known trigger sources  )
Later
BruceD
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thomas
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Re: Something for the chronics....
« Reply #17 on: Jun 17th, 2004, 12:00pm » |
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All of you stay the fuck away from me in Nashville, I will observe the conference and mating rituals via binoculars. 
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Gator
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Re: Something for the chronics....
« Reply #18 on: Jun 17th, 2004, 12:52pm » |
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Carl, you aren't the village idiot. He ran away a little while ago. The position is open however and we will be taking applications soon. j/k You know we love you, dude. 
Roxy, I read that on the other board and I remember thinking at the time that John Wayne ain't dead. He's alive in every chronic. 
Tia, you hit the nail on the head. Anytime anyone has been down, everyone chronic, episodic and supporter alike has rushed to their aid. The people on this board, ALL the people on this board, are special and I am glad to be a part of that. 
Gator
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jonny
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Re: Something for the chronics....
« Reply #19 on: Jun 17th, 2004, 8:18pm » |
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FAMILY!
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Superpain
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Re: Something for the chronics....
« Reply #20 on: Jun 17th, 2004, 8:55pm » |
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Tia, try not to be discouraged. My last cycle lasted 2+ yrs...
Just keep believing it's gonna end.
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Chris
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BlueMeanie
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Re: Something for the chronics....
« Reply #21 on: Jun 17th, 2004, 9:10pm » |
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I knew there where others out there somewhere before finding this website. What I didn't know was that there was such a thing as a Chronic.
One of the main reasons while I'm still here (PF for 134 days and counting) is because of you Chronics. Sure I feel for everyone here including episodics, but WOW. My heart goes out to all you Chronics and I just keep hoping somehow things will change for the better for you all.
jonny said it: FAMILY
Looks like you all are stuck with me cause I'm not leaving just because I get a break.
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fubar
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Re: Something for the chronics....
« Reply #22 on: Jun 17th, 2004, 9:50pm » |
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I look at the 3 years of being chronic like it was a psychological boot camp. I survived. I'm a lean mean killing machine now. I kill people who say "Yeah, I know how you feel, I had a migraine once and I almost died", or any number of special things that seem to leap from people's mouths who have no effin clue.
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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Renee
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Re: Something for the chronics....
« Reply #23 on: Jun 17th, 2004, 10:32pm » |
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This chronic requests tex-mex along with the filet mignon and shrimp scampi in our afterlife buffet! 
Renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
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Prense
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Re: Something for the chronics....
« Reply #24 on: Jun 18th, 2004, 9:09am » |
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I don't look at it as chronic or episodic. It's CH and it sucks ass. Thanks for your words though Chris, and Roxy for posting.
Chris
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