Author |
Topic: New IHS Classification Guide (Read 420 times) |
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 4556
|
 |
New IHS Classification Guide
« on: Jun 16th, 2004, 4:23am » |
 Quote  Modify
|
In case some of you didn't know, there is a new IHS Classification Guide out. One of the biggest changes I see right away is the criteria for being Chronic. Instead of a year without more than 14 consecutive days break, it is now a year without remissions lasting more than a month.
Here is the link. You can't print it from acrobat. You may be able to reduce the image of whatever page you want a copy of so you can see the whole page, then do a screen shot. Bring up the screen shot in the program of your choice crop, enlarge and print.
http://216.25.100.131/ihscommon/guidelines/pdfs/ihc_II_main_no_print.pdf
Enjoy.
Gator
|
|
 IP Logged |
|
|
|
The mad viking
CH.com Alumnus
New Board Hall of Famer
Always Look on The Bright Side of Life
 
 
Gender:
Posts: 3135
|
|
Re: New IHS Classification Guide
« Reply #1 on: Jun 16th, 2004, 4:28am » |
Quote Modify
|
thnx Gator
|
|
IP Logged |
Always Look on The Bright Side of Life
|
|
|
pubgirl
Guest
|
|
Re: New IHS Classification Guide
« Reply #2 on: Jun 16th, 2004, 5:57am » |
Quote Modify
 Remove
|
Thanks Gator
Another significant change is that the diagnsotic criteria now include restlessness/agitation.
Wendy
|
|
IP Logged |
|
|
|
UN_SOLVED
New Board Hall of Famer
I need a fully-automatic Imitrex injector !!
Gender:
Posts: 733
|
|
Re: New IHS Classification Guide
« Reply #3 on: Jun 16th, 2004, 6:19am » |
Quote Modify
|
Looks like alot of good info. Thanx
"Erythroprosopagia of Bing" . ... 
Unsolved
|
|
IP Logged |
I'm STILL alive ?
|
|
|
Ueli
Guest
|
|
Re: New IHS Classification Guide
« Reply #4 on: Jun 16th, 2004, 11:17am » |
Quote Modify
Remove
|
Quote:| One of the biggest changes I see right away is the criteria for being Chronic. Instead of a year without more than 14 consecutive days break, it is now a year without remissions lasting more than a month. |
|
I think more important than the duration of remission is the "with or without medication" part. By the old definition it was not clear if an effective preventive treatment terminated the chronic status or not.
Since I upped the Verapamil slightly last December (560 to 600 mg) I only have occasional light break throughs (Kip 3) and I'm still sucking on the same oxygen tank I got before New Year. But I don't think my current cycle (5.5 years and counting) has broken yet.
PFNADs
Ueli 
|
|
IP Logged |
|
|
|
Root
New Board Veteran
rm -r *.*
Gender:
Posts: 229
|
|
Re: New IHS Classification Guide
« Reply #5 on: Jun 16th, 2004, 12:19pm » |
Quote Modify
|
Save to VIM, Xemacs, Kate, Kwrite, Abiword, XPDF, Midnight Commander, TeX, LaTeX, PE or Ghostview. Remove the no print extension. Print.
Portable Document Format. Gotta love the guy who came up with it. Works with almost anything.
|
|
IP Logged |
In the land of the dark the Ship of the Sun is driven by the Grateful Dead. -- Egyptian Book of the Dead
|
|
|
don
Guest
|
|
Re: New IHS Classification Guide
« Reply #6 on: Jun 16th, 2004, 1:10pm » |
Quote Modify
Remove
|
Quote:| I think more important than the duration of remission is the "with or without medication" part. |
|
I agree, but just for the sake of argument...................Do you belive there is a preventative out there that would, in and of itself, provide 30 consecutive days of pain relief to a chronic sufferer?
|
| « Last Edit: Jun 16th, 2004, 1:10pm by don » |
IP Logged |
|
|
|
ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
Gender:
Posts: 3181
|
|
Re: New IHS Classification Guide
« Reply #7 on: Jun 16th, 2004, 2:34pm » |
Quote Modify
|
But there are names that we can use other than the dreaded "cluster HEADACHE" label ...
I kind of liked:
Hemicrania Angioparalytica we could call it HCAP
or
Hemicrania Nevralgiformis Chronica we could call it HCNC
Those might make people scratch their heads a little bit!
Chuck
|
|
IP Logged |
"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
|
|
|
eyes_afire
New Board Hall of Famer
Gender:
Posts: 1227
|
|
Re: New IHS Classification Guide
« Reply #8 on: Jun 16th, 2004, 7:15pm » |
Quote Modify
|
I agree with Ueli. Generally, things aren't horrible as long as I take verapamil. My O2 tank has lasted a long time (until recently). The several times I've had decent stretches of no CH (thinking the 'coast was clear'), I would taper the verapamil and then get pulverized. Been trying to stop the verapamil, but can't. About 18 months solid this go-round (with several taper attempts) and shadows since 2001. Am I chronic? Don't know, don't care anymore. Can't stop verapamil. 
--- Steve
|
|
IP Logged |
Still around... in a brand new world now...
|
|
|
UN_SOLVED
New Board Hall of Famer
I need a fully-automatic Imitrex injector !!
Gender:
Posts: 733
|
|
Re: New IHS Classification Guide
« Reply #9 on: Jun 16th, 2004, 7:26pm » |
Quote Modify
|
Someone not long ago said they were diagnosed with CH. It had just started (first cycle). Their doctor said CH. I said it was too early to tell. 1 cycle does NOT mean CH. This article proves it ... Look Below
Unsolved
|
|
IP Logged |
I'm STILL alive ?
|
|
|
pubgirl
Guest
|
|
Re: New IHS Classification Guide
« Reply #10 on: Jun 16th, 2004, 8:18pm » |
Quote Modify
Remove
|
Unsolved
I disagree. This text isn't the Bible. Even Goadbsy himself says the IHS definition of chronic is a random one and is just a number. I was diagnosed during the first cycle, and it was an easy diagnosis for the neuro as all the symptoms were classic. I know of others in the same situation, Thank God we didn't meet a neuro who said "Sorry, can't diagnose clusters and treat them because you haven't had 2 cycles yet"
Wendy
|
|
IP Logged |
|
|
|
Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
  
Gender:
Posts: 1786
|
|
Re: New IHS Classification Guide
« Reply #11 on: Jun 16th, 2004, 8:53pm » |
Quote Modify
|
Ghostview? We don't need no stinkin' Ghostview... Check this out... Print... Copy and paste... Whatever...
http://mysite.verizon.net/darkangl/ihc_II_main.pdf
Brought to you by the good folks at Clusters 'R' Us.
PFDAN.............................. Drk^Angel
PS... Get it while ya can... Dunno how long I'll be able to leave it up.
DA
|
| « Last Edit: Jun 16th, 2004, 8:55pm by Azrael » |
IP Logged |
"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
|
|
|
UN_SOLVED
New Board Hall of Famer
I need a fully-automatic Imitrex injector !!
Gender:
Posts: 733
|
|
Re: New IHS Classification Guide
« Reply #12 on: Jun 17th, 2004, 3:44am » |
Quote Modify
|
Well, I guess your disagreeing with Goadbsy then. He's the one who wrote the criteria ... not me.
Read the link above ... That's what it says.
What would you all think if someone told you ...
" I had clusters once " ????
Unsolved
|
|
IP Logged |
I'm STILL alive ?
|
|
|
Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
Gender:
Posts: 1786
|
|
Re: New IHS Classification Guide
« Reply #13 on: Jun 17th, 2004, 5:47am » |
Quote Modify
|
Goadsby didn't write the criteria all himself. But even if he did, a first time sufferer would still probably be diagnosed as a 3.4.1 probable cluster headache, until either they have cycles to prove 3.1.1 ECH, it doesn't cycle but continues and proves 3.1.2 CCH, or other symptoms surface to prove that it's not CH at all.
But then again... The copied section above is for diagnosising between ECH and CCH, not for diagnosising CH.
Diagnostic criteria:
A. At least 5 attacks fulfilling criteria B–D
This is why it can't be definitively diagnosed as CH on the first attack.
PFDAN............................... Drk^Angel
P.S. Edited to fix a word, to let this ramble make more sense.
|
| « Last Edit: Jun 17th, 2004, 6:38pm by Azrael » |
IP Logged |
"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: New IHS Classification Guide
« Reply #14 on: Jun 17th, 2004, 8:31am » |
Quote Modify
|
on Jun 16th, 2004, 8:18pm, pubgirl wrote:Unsolved
I disagree. This text isn't the Bible. Even Goadbsy himself says the IHS definition of chronic is a random one and is just a number. I was diagnosed during the first cycle, and it was an easy diagnosis for the neuro as all the symptoms were classic. I know of others in the same situation, Thank God we didn't meet a neuro who said "Sorry, can't diagnose clusters and treat them because you haven't had 2 cycles yet"
Wendy |
|
Some illnesses don't read textbooks. I'd agree also. After six months of relentless pain, sucking oxygen at night and during the day, aborting with imitrex also and getting themselves up to over 650mg of verapamil to prevent while still getting hit in a first cycle, is not one person I would want to tell that they don't have clusters yet. I'm sure they will be rather insistantly be replying to you different very quickly. That distinction is best left to the textbooks.
The fact that it will return though would be expected, in that respect, the book foretells correctly.
Kevin M
Going back to Alexander Friedman predicting expansion of the universe extapolating using the general theory of relativity, and Edwin Hubble confirming by observation, since that time science has changed it's tune. Some used to say never believe a scientic theory unless it is confirmed by obserservation or experiment, but now never believing an observation or experiment unless it is confirmed by a theory is on equal ground. Physical obsersevation can be as deceiving as a theory being
incorrect. It goes both ways.
|
|
IP Logged |
|
|
|
Jayne
CH.com Alumnus
New Board Hall of Famer
Pull my finger!
Gender: 
Posts: 1460
|
|
Re: New IHS Classification Guide
« Reply #15 on: Jun 17th, 2004, 10:36am » |
Quote Modify
|
on Jun 16th, 2004, 1:10pm, don wrote:
I agree, but just for the sake of argument...................Do you belive there is a preventative out there that would, in and of itself, provide 30 consecutive days of pain relief to a chronic sufferer? |
|
There is for me Don. 6 months pain free. Lithium. I know if I came off I would revert to my chronic agony. I have not gone into natural remission, it is the Lithium
|
|
IP Logged |
If you haven't laughed today, it's been a wasted day. 
|
|
|
Jeepgun
Guest
|
|
Re: New IHS Classification Guide
« Reply #16 on: Jun 17th, 2004, 1:42pm » |
Quote Modify
Remove
|
Since I started mainlining heroin, drinking bleach, and choking down a live toad every morning, I've felt great! My problem with cluster headaches now seems almost incidental! 
|
|
IP Logged |
|
|
|
don
Guest
|
|
Re: New IHS Classification Guide
« Reply #17 on: Jun 17th, 2004, 2:06pm » |
Quote Modify
Remove
|
Quote:| There is for me Don. 6 months pain free. Lithium. I know if I came off I would revert to my chronic agony. I have not gone into natural remission, it is the Lithium |
|
That was the answer I was hoping for.
Quote:| Since I started mainlining heroin, drinking bleach, and choking down a live toad every morning, I've felt great! My problem with cluster headaches now seems almost incidental! |
|
That was not. I like my toads deep fried.
|
|
IP Logged |
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: New IHS Classification Guide
« Reply #18 on: Jun 17th, 2004, 2:09pm » |
Quote Modify
|
Posted by UN_SOLVED on: 06/16/04 at 18:26:46
Quote:| Someone not long ago said they were diagnosed with CH. It had just started (first cycle). Their doctor said CH. I said it was too early to tell. 1 cycle does NOT mean CH. This article proves it ... Look Below |
|
CH is CH. The criteria for CH is listed in section 3.1 on page 44. All that is required is to have 5 or more attacks meeting the criteria. There is nothing saying you can't get hit with ch and suffer for a few months and then they go away forever. I know it doesn't normally happen this way.
Un_Solved, the criteria you are quoting is Section 3.1.1 for Episodics. It is basically saying that in order to be episodic, you have to have more than one episode.
The critea for chronics is in section 3.1.2
Gator
|
|
IP Logged |
|
|
|
Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
Gender:
Posts: 1786
|
|
Re: New IHS Classification Guide
« Reply #19 on: Jun 17th, 2004, 6:36pm » |
Quote Modify
|
Yeah... What Gator said... That's what I was tryin' to say, but so miserably messed up in my sleep deprived state.
PFDAN.................................. Drk^Angel
|
|
IP Logged |
"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
|
|
|
UN_SOLVED
New Board Hall of Famer
I need a fully-automatic Imitrex injector !!
Gender:
Posts: 733
|
|
Re: New IHS Classification Guide
« Reply #20 on: Jun 17th, 2004, 7:33pm » |
Quote Modify
|
When that person said their doctor said they had CH...I just thought it was too early to confirm. They had been suffering for 2 - 3 weeks (if I remember correctly). Personally, I think if someone starts suffering severe headaches suddenly ... tests (MRI's etc) should be performed to rule out other things.
From the symptoms this person described, it did sound like CH ... the doctor was just very quick at diagnosing it and i'm not sure they had went though the 'normal' tests yet.
Unsolved
My personal opinion:
If someone suffers severe headaches (like CH attacks) for a few weeks then it goes away and never returns ... they had a bad bout of headaches ... not clusters. CLUSTERS COME BACK FOR A VISIT. But then again ... that's my opinion
|
|
IP Logged |
I'm STILL alive ?
|
|
|
Prense
CH.com Alumnus
New Board Hall of Famer
Kerry is an idiot!
Gender:
Posts: 1607
|
|
Re: New IHS Classification Guide
« Reply #21 on: Jun 18th, 2004, 9:14am » |
Quote Modify
|
I am still on my 1st cycle... Of course, it has been over 11 years now.
Chris
|
|
IP Logged |
Where does the white go in a snowman when the snow melts?
|
|
|
jonny
Guest
|
|
Re: New IHS Classification Guide
« Reply #22 on: Jun 18th, 2004, 8:29pm » |
Quote Modify
Remove
|
These fucks that dont have CH and can talk all they want, untill they have CH they aint shit to me.
Meds will mask chronic in my book, after 30 years i think I have more say than some pencil pusher.
..............................................jonny
|
|
IP Logged |
|
|
|
Ueli
Guest
|
|
Re: New IHS Classification Guide
« Reply #23 on: Jun 18th, 2004, 10:13pm » |
Quote Modify
Remove
|
Hey jonny, are you all riled up by the quote of UN_SOLVED:
Quote:| B: At least two cluster periods lasting 7-365 days and separated by painfree remission of >= 1 month. |
|
By this definition you're nothing but a wailing meegrainer.
Ueli 
PS, I hope your mom likes this post 
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss