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Topic: Letter to family and friends of ch'ers (Read 292 times) |
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Roxy
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Letter to family and friends of ch'ers
« on: Jun 13th, 2004, 12:48pm » |
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I'm not sure if the information about the new collegues letter on the OUCH site has ever been posted here.....but it is an excellent letter.
My husband always carried around a stack of Simon's letter off the UK website to hand out to people when they asked about my head, now he prints off this one. He thought it was much better than trying to explain about ch's. He lets them read, and then answers any questions they have. In this way, he hopes the letter gets spread around a little bit, and helps more people become aware of our affliction.
This new letter (based on Simon's) is wonderful. There isn't any way to bookmark the site, it goes into download when you click on it.
If you go to the OUCH website http://www.clusterheadaches.org/, click on OUCH on the navigation bar, you will get a drop down menu. Click on Colleagues Letter.
Just print that off, and let your family and friends read it....it might help.
T...... 
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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JDH
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Re: Letter to family and friends of ch'ers
« Reply #1 on: Jun 13th, 2004, 1:34pm » |
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Yep, IMO that's the best description there is.
I've given it to family, friends and coworkers.
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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Gator
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Re: Letter to family and friends of ch'ers
« Reply #2 on: Jun 14th, 2004, 3:43am » |
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I've sent this, well actually the Simon letter, to all my family and friends and even to my supervisor and my hr department at work. It seemed to bring a little understanding to my condition.
Try this link to go straight to it:
http://www.clusterheadaches.org/Cluster%20Headache%20Syndrome.doc
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totka
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Re: Letter to family and friends of ch'ers
« Reply #3 on: Jun 14th, 2004, 4:37am » |
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Excellent explanation. I'm translating it for our website. Steve
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I have two enemies, cluster headache and English grammar.
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Jeepgun
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Re: Letter to family and friends of ch'ers
« Reply #4 on: Jun 14th, 2004, 10:08am » |
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*printing* Thank you!
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Leesa
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Re: Letter to family and friends of ch'ers
« Reply #5 on: Jun 14th, 2004, 9:44pm » |
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BTDT one step a head of the game!! Printed this off as soon as Simon told Dave about it!! Been several yrs. ago. Its an awesome letter!!
Leesa 
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"The truth of the matter is that you always know the right thing to do. The hard part is doing it." General H. Norman Schwarzkopf
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