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Topic: Newbie - Pred. querry (Read 209 times) |
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Yuli
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There is nothing like a dream to create the future
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Newbie - Pred. querry
« on: May 18th, 2004, 12:26am » |
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Hello all,
Have recently been diagnosed by my GP as a CH sufferer, found your site, and just wanted to say G’day and compliment all those who have put in so much hard work in making this place so informative. I have suffered from CH’s for about 3 years now, normally getting bouts that last 15 – 30 minutes, 4 to 5 times a night and this lasts for about 1 month, before giving me a break, maybe up to 6 months. The level of pain increases over the period, normally soul destroying by the third week, then slowly decreases till they bugger off. I am at about week 2 and hating every day, knowing the worst is yet to come.
I have read a lot of info on this site about various medications, both pharmaceutical and natural. My GP prescribed a course on Predisolone, but I am concerned about the side effects and the long term usage. I rarely take any medication, not even aspirin, so I am a little concerned about Pred. Has anyone had good relief using Pred, has anyone had any side effects?
Yuli
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Mr. Happy
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Re: Newbie - Pred. querry
« Reply #1 on: May 18th, 2004, 2:12am » |
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Well Hey, Yuli.
Welcome to CH.com....the home of............CH "stuff." Pred's a transition drug. You usually take it for a week or so until preventatives kick in, like verapamil, lithium, topamax, etc. Good for a quick fix, bad on the long haul.
(Notes like yours get real good answers on the Medications, Treatments, Therapies section of the board. This part of the site is pretty much reserved for whining, chicanery and cheap sex........but we're non-denomi-national.)
Are you a virgin, per chance?
RJ
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May those who don't want any
Have memories of never getting any.
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Yuli
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There is nothing like a dream to create the future
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Re: Newbie - Pred. querry
« Reply #2 on: May 18th, 2004, 2:25am » |
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Hey Mr Happy,
Cheers for the tip ( the one about the correct board to post ).
Maybe i''m better off with whining, chicanery and cheap sex than them little white pills.
As to your last question, you'll have to get to know me a little better before I answer that. The only thing gettin a banging at the moment is my head.
Yuli
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Aussie
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Re: Newbie - Pred. querry
« Reply #3 on: May 18th, 2004, 7:51pm » |
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Gday Yuli,
Nice to see another Aussie, shame about the circumstances.
Was also prescribed "Prednisol something" and "Verapa me callit" when officialy diagnosed Jan 03, but still havent taken the script to get the "white pills". Been getting abused by these icepicks for nearly 20 years and gone without any meds, so maybe I can go another 20.
Im Just looking forward to getting over this current bump in the road.
Cheers
Steve
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BlueMeanie
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Re: Newbie - Pred. querry
« Reply #4 on: May 18th, 2004, 8:40pm » |
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Welcome Yuli.
Sorry I can't help much with your prevents. I personally don't believe in them, but I'm episodic so what do I know.
I just wanted to welcome you aboard and send vibes your way.
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Sean_C
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Re: Newbie - Pred. querry
« Reply #5 on: May 18th, 2004, 9:11pm » |
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on May 18th, 2004, 2:25am, Yuli wrote:The only thing gettin a banging at the moment is my head.
Yuli |
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LMAO I like her already Hap LOL
Pred works for me Yuli, only side effect I get is that I gain 15 pounds before its over. I also do the water thing at the same time so the weight drops quickly.
PFDAN to you.
Sean
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john123
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Re: Newbie - Pred. querry
« Reply #6 on: May 18th, 2004, 9:19pm » |
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welcome, sorry you have to be here but glad you are here 
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Gator
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Re: Newbie - Pred. querry
« Reply #7 on: May 18th, 2004, 10:32pm » |
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on May 18th, 2004, 2:25am, Yuli wrote:Hey Mr Happy,
Cheers for the tip ( the one about the correct board to post ).
Maybe i''m better off with whining, chicanery and cheap sex than them little white pills.
As to your last question, you'll have to get to know me a little better before I answer that. The only thing gettin a banging at the moment is my head.
Yuli |
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ROFLMAO Yuli. Welcome to the board. Sorry you had to look us up, but damned glad you found us. That sense of humor of yours is gonna come in handy around here. Hope you have thick skin as well.
Again, welcome!
Gator
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Yuli
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There is nothing like a dream to create the future
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Re: Newbie - Pred. querry
« Reply #8 on: May 19th, 2004, 12:38am » |
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Thanks Guys for the welcome, its nice to know that some people understand and care. The normal response from the general public is " Watya whinging about, its only a bloody headache". I'm sure only CH sufferers and maybe Fur Seals understand the pain.
Quote:| only side effect I get is that I gain 15 pounds |
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Looks like preds off the menu. A fat nasty virgin, might as well join the monestry.
Quote:| Hope you have thick skin as well |
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A fat nasty thick skinned virgin - all i need then is a harley and I can ride in the gay mardi gras " Dykes on bikes"
G'day Aussie - nice to know Im not the only one in Australia who complains about headaches, will chat some time.
Yuli
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bobkip
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Re: Newbie - Pred. querry
« Reply #9 on: May 19th, 2004, 1:32pm » |
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Hi Yuli,
Welcome to the board, sorry for the reason you're here. Ignore Happy, he's hung up on virgins. 
Kip
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Woobie
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Re: Newbie - Pred. querry
« Reply #10 on: May 19th, 2004, 10:11pm » |
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Hi Yuli ----------
Just wanted to welcome you here.....
Sounds like you'll fit in just fine... LOL
dont take no shit ..........LMAO!
I take prednisone - but not for clusters. The weight gain is a small price to pay for PF time - doncha think?? The weight goes away when you're done taking it.....
and if you drink A LOT of water while you're taking it.. it helps a lot.
Just my 2 cents.
tina 
and check yer PMs
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| « Last Edit: May 19th, 2004, 10:17pm by Woobie » |
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TxBasslady
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Re: Newbie - Pred. querry
« Reply #11 on: May 19th, 2004, 10:34pm » |
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Welcome, Yuli
I took the Prednisone for 12 days. It stopped my CH in it's tracks. I had minimal weight gain and it was only temporary.
Like Woobie said.....PF time is great!
If you're suffering enough.....you'll try it! Doesn't work for everyone....but certainly worth a try.
Hope you get what you need to fight the beasty one!
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
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I adopted a Vietnam POW/MIA from El Paso, Texas! 
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