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Topic: NO attacks after bed (Read 330 times) |
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toddlouky
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NO attacks after bed
« on: Apr 26th, 2004, 2:26pm » |
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My headaches are always during day or early evening. Ive never woken up to a cluster. Could this mean I dont have CH? is this a defining characterristic
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john123
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no, only a doctor can tell you if you do or do not have ch's. But in my mind, it is suspect. Waking up to ch's was always a possibility for me.
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thomas
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If you haven't been woken up by a headache, that doesn't mean you don't have ch. If you've been able to go to sleep with a headache, THEN you don't have ch. 
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toddlouky
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Re: NO attacks after bed
« Reply #3 on: Apr 26th, 2004, 2:32pm » |
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but how, really, does a doctor know if I have CH, since there is no known cause. isnt it all subjective speculation.
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echo
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Re: NO attacks after bed
« Reply #4 on: Apr 26th, 2004, 2:33pm » |
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Personally for me, I truly believe that the only time a CH will not awaken me from sleep is when I'm dead. But at this point that is suspect as well.
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john123
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subjective speculation? I really don't know much about that, but maybe. Doctor's are the only one's who can get you meds though 
Did you try taking the cluster quiz on this site?
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Lizzie2
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Re: NO attacks after bed
« Reply #6 on: Apr 26th, 2004, 2:41pm » |
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Yeah I don't think I'd go for subjective speculation. There are a lot of diseases with no known cause or medical test, but that doesn't mean they don't exist. I don't think if you don't get them in your sleep, it doesn't mean you don't have them, necessarily...because there are always deviations, but it definately is a characteristic for the majority.
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Big Dan
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Re: NO attacks after bed
« Reply #7 on: Apr 26th, 2004, 2:43pm » |
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on Apr 26th, 2004, 2:32pm, toddlouky wrote:
... Am I the only one that thought that sounded dirty?...
Seriously...
Ask the Head Doctor what gives... he'd be the only one that can tell you for sure...
Hope it 'taint....
-Big Dan
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floridian
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Cluster headache is a specific condition. It hits a particular spot on the trigeminal nerve behind the eye, and has associated swelling and tearing of one side of the face. The pain is a constant searing, generally not a throbbing pain. The attacks are a few minutes to a few hours (15-45 minutes most commonly), and the headaches usually occur in groups or clusters. The 'alarm-clock' pattern is common and helps distinguish if a person has clusters, but not everyone gets waken by the headache - they can come at different times. Calendar rhythms are also a feature that can point to CH, but some of us are chronic, others skip years or move from CH in the winter to CH in the summer.
Other 'related' conditions include CPH, which can be treated effectively with inodmethacin, and a Trigeminal Neuralgia, which is experienced as sudden, electric like jolts. Cluster headache usually responds to triptans and oxygen, but not to aspirin, tylenol or other analgesics.
Some diagnoses are made with incomplete information and are subjective, but there are too many people here with the same thing to say its a subjective disease. There is lots of variation, but the type of pain is the same.
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| « Last Edit: Apr 26th, 2004, 2:51pm by floridian » |
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BlueMeanie
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Most CH sufferers DO get woke several times during the evening while sleeping. Even though it may not necessarily be true to get woke up, there is a chance you may NOT have clusters. Talk to a neurologist about your symptoms. Keep a log of when they occur & lenghts they stay. It may help evaluate your condition. What meds work for you ? Does Imitrex and/or O2 abort your CH's ?
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eyes_afire
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Re: NO attacks after bed
« Reply #10 on: Apr 26th, 2004, 7:45pm » |
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Look here for diagnostic criteria for cluster headaches:
http://www.upstate.edu/neurology/haas/hpcldx.htm
http://www.regence.com/trgmedpol/drugs/dru52.html
Diagnostic criteria (IHS) (abbreviated and slightly altered)
a. At least 5 attacks
b. Severe unilateral pain in the orbit or surrounding areas, or both, lasting 15-180 minutes untreated
c. Headache is associated with at least one of the following signs on the side of the pain:
conjunctival injection (reddened eyeball)
lacrimation (excessive tears from the eye)
nasal congestion (stuffy nose)
rhinorrhea (runny nose)
facial sweating
miosis (smaller pupil)
ptosis (lowered upper eyelid)
eyelid edema (lids become puffy)
d. Frequency of attacks: from 1 every other day to 8 per day
e. Secondary headache types neither suggested nor confirmed
IMHO, nightime attacks are generally characteristic of cluster headaches, but certainly not definitive.
...Rocking on the floor next to the oxygen tank, thinking 'please god kill me now' while banging your head with a shoe (I was there the other night)... that helps me define a cluster headache as well.
--- Steve
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Linda_Howell
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Re: NO attacks after bed
« Reply #11 on: Apr 26th, 2004, 8:00pm » |
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Banging your head with a shoe Steve? Boy! That's a new one on me. I thought banging my head into the garage door was pretty kinky...but shoes,hmmm.
Toddlouky, what are the symptoms when you DO have a headache. Not that we're doctors here or anything, but between all of us we've sure got the time in on finding out about them. Do you have the diagnostic criteria that eyes-a-fire stated?
Linda
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Kevin_M
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Re: NO attacks after bed
« Reply #12 on: Apr 26th, 2004, 8:02pm » |
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on Apr 26th, 2004, 7:45pm, eyes_afire wrote:...Rocking on the floor next to the oxygen tank, thinking 'please god kill me now' while banging your head with a shoe (I was there the other night)... that helps me define a cluster headache as well.
--- Steve |
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This is certainly in relation to what Floridian commented on, being in his last statement too, that the pain is the
same, or as descriptive like the above quote. Linda adds the garage door technique. You will not find the pain subjective speculation.
Though waking at night is common with clusters, as it is with me, the pain is perhaps a definitive characteric. Use the kip scale, check that out too on the left.
Kevin M
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| « Last Edit: Apr 26th, 2004, 8:19pm by Kevin_M » |
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Roxy
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Re: NO attacks after bed
« Reply #13 on: Apr 26th, 2004, 8:10pm » |
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When we were in New England and working up the ID Cluster questions with Dr. Sheftell, I believe he said that the diagnostic criteria (IHS) had changed. Two of the listed criteria were the inability to remain still and being awakened at night with a ch.
This is what I remember, but I don't have my notes handy.....and I could have been in a trex fog at the time....  .
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Charlie
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Re: NO attacks after bed
« Reply #14 on: Apr 26th, 2004, 9:39pm » |
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Sorry if you have to deal with this horror but if you stick around you will find lots of support and good ideas.
Cluster headaches will wake you out of a sound sleep. It never failed. They also caused me to go though some bizarre contortions and create new curse words. You cannot sit still during a cluster attack. The pain is the center of your universe until it dissipates. There is nothing to compare clusters with another so my hope is that you have something more manageable.
Let us know how you are doing.
Charlie
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Weldon
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Re: NO attacks after bed
« Reply #15 on: Apr 26th, 2004, 10:16pm » |
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Todlouky; You would'nt by chance be sleeping on a bed with the head of the bed higher by about 6 to 8" ? Thats how I control my nightime one's . Weldon
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