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Topic: CH question...poll....whatever.... (Read 1222 times) |
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Roxy
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CH question...poll....whatever....
« on: Apr 16th, 2004, 9:46pm » |
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Maybe I should put this on the CH specific board....don't know....too many boards now, I get confused, need to go back to brunette.
Since I have been going med free (unwillingly med free), there are times when getting hit that I get nauseated. The last was two weeks ago. It doesn't happen every time, but it seems when it is really bad, the nausea kicks in. Nothing like kneeling in the gutter in Dallas, throwing up into the ditch.
I've talked to a few other cluster sufferers, and they told me that they also get nauseated, but they are scared to bring it up on the board......afraid it sounds like a migraine.
I do think it's the pain level that brings on the nausea, not the ch per se.....enough pain can make anyone puke.
How 'bout ya'll? This hit anyone else?
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Melissa
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Re: CH question...poll....whatever....
« Reply #1 on: Apr 16th, 2004, 9:51pm » |
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Roxy, I have never been afraid of saying here that I have thrown up from the pain. My stomach sometimes cannot handle the high kip clusters, and so up it chucks.  You will find others on here who have also vomited from the pain, I think it is more commonplace than what people let on...
 mel
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Miklos
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Re: CH question...poll....whatever....
« Reply #2 on: Apr 16th, 2004, 10:07pm » |
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Suburban Iwo Park here.
In cycle, I will have at least three or four sessions with what feels like projectile vomiting. I can toss about ten feet into the backyard (which is definitely more discreet than a Dallas ditch). Throwing up is not too bad, but it's the retching afterwards that wipes me out.
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stevegeebe
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Re: CH question...poll....whatever....
« Reply #3 on: Apr 16th, 2004, 10:09pm » |
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How med free are you going?
Steve G
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ckelly181
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Re: CH question...poll....whatever....
« Reply #4 on: Apr 16th, 2004, 10:10pm » |
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Hey Roxy,
Unless I catch it, the first few attacks of a new cycle will have me puking my guts out, screaming and crying. It almost seems like my body needs to get used to the daily torture.
Oddly, I was never misdiagnosed with migraines - my docs said tension, hormones, heat, allergies, but never migraines.
THANK GOD FOR 02....
Chris
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Jimi
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Re: CH question...poll....whatever....
« Reply #5 on: Apr 16th, 2004, 10:14pm » |
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Prior to O2, when I used to just wait it out and rock back and forth, many times I threw up. And sometimes I would gag myself, because after I vomited, it seemed to finally ease off. Since O2, they went away fast enough where I didn't get sick.
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Mark C
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Re: CH question...poll....whatever....
« Reply #6 on: Apr 16th, 2004, 10:18pm » |
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Sometimes...if its real bad.
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miapet
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Re: CH question...poll....whatever....
« Reply #7 on: Apr 16th, 2004, 10:23pm » |
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D has been nauseated . . .never seen him puke . . . but maybe that's cuz he just isn't a puker (thanfully, since i'm a sympathy puker)
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Roxy
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Re: CH question...poll....whatever....
« Reply #8 on: Apr 16th, 2004, 11:02pm » |
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on Apr 16th, 2004, 10:09pm, stevegeebe wrote:How med free are you going?
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Hey Steve.....how's it going?
I've been totally med free since my heart problem at the end of January. I just received cardiac clearance last week to use triptans again, but I'm looking for something other than imitrex. I don't like what it does to my head.
I did take a Relpax last night up in CT., while I was with Cat at the neuro.
Cat made me take three baby asprin before she'd let me take the triptan....lolol.
The Relpax seemed to work really well. I'm just very thankful to the very nice clusterhead who let me have one of his pills.
THANK YOU TED!!
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Renee
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Re: CH question...poll....whatever....
« Reply #9 on: Apr 16th, 2004, 11:15pm » |
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Roxy,
Relpax is what Doc Sheftell chose for me as an abortive. This week's experience:
1st usage: complete relief
2nd usage: moderate relief
3rd usage: mild relief
I don't think it is the relpax that is failing but rather the ch that is ramping higher and higher.
Check your p.m.'s
renee
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Tiannia
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Re: CH question...poll....whatever....
« Reply #10 on: Apr 16th, 2004, 11:27pm » |
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Yes Tracey, I have to admid that I too will find myself running, err well usually crawling, to the bathroom when I get hit hard. It is not daily, but enough to know thaat when the kip is high then I know it will most likely happen.
Think that is part of the reason why when I first started getting these I thought that it was a migraine, but non of the other symptoms fit. I was so confused...
Glad your heart is more on an even keel.
-Tia
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Thorns
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Re: CH question...poll....whatever....
« Reply #11 on: Apr 16th, 2004, 11:33pm » |
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Nausea usually hits me during the middle of the really bad ones (mid cycle). However, this is the first cycle where I have actually during an attack that was unprovoked by any medicines (i.e. imitrex pills).
Oddly enough it actually made my head feel a little better!
Thorns
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Tiannia
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Re: CH question...poll....whatever....
« Reply #12 on: Apr 16th, 2004, 11:40pm » |
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on Apr 16th, 2004, 11:33pm, Thorns wrote:
Oddly enough it actually made my head feel a little better!
Thorns |
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I feel the same way. Not sure if it helps or it is just coincidence that when I end up losing my dinner (whatever) is helping or just at the peak and that the HA is ramping down anyway.
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UN_SOLVED
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Re: CH question...poll....whatever....
« Reply #13 on: Apr 17th, 2004, 1:45am » |
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Puked once after my 8th injection of Trex. That's the only time i've ever been sick with these HA's.
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Turts
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Re: CH question...poll....whatever....
« Reply #14 on: Apr 17th, 2004, 2:18am » |
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At the start of a big hit i have dry reached a few times, but I think it is more from a tightness of chest than actual stomach nausea.
I have never actually "puked" as you call it
Turts
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Mikey
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Re: CH question...poll....whatever....
« Reply #15 on: Apr 17th, 2004, 4:51am » |
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OOH hell yeah Tracey, i've puked my guts out before, and what makes it really bad, is the pressure in my head as it's happening, that makes it worse!!!
I find that this only happens during a really bad attack though, like a kip 9 or a 10.
Mikey,
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suzy617
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Re: CH question...poll....whatever....
« Reply #16 on: Apr 17th, 2004, 7:56am » |
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I used to get sick each time in my non med days. Now with the imitrex though, I think I knock out the pain before my stomach gets a chance to turn.
Oh and Roxy...I like you just fine as a blonde. 
Suzy
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jonny
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Re: CH question...poll....whatever....
« Reply #17 on: Apr 17th, 2004, 8:09am » |
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What a bunch of whining Meegrainers you are...LMMFYBO 
Sometimes ill gag like im gonna blow chunks but never do, Me thinks its nerves....The fear of the beast (Yes, I do fear something) thats gonna getcha.
Like jimi said, 02 helps with that big time.
Ok!!, whose wearing a thong right now
................................jonny
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Luke63
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Re: CH question...poll....whatever....
« Reply #18 on: Apr 17th, 2004, 8:27am » |
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No Barfies here...never had 'em...actually tend to get bigtime munchies instead....weird huh?
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vig
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Re: CH question...poll....whatever....
« Reply #19 on: Apr 17th, 2004, 8:50am » |
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almost all of my night attacks in the last 6 weeks have been accompanied by nausea and wretching...
my trick?
I don't eat for 24 hours before going to bed.
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pubgirl
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Re: CH question...poll....whatever....
« Reply #20 on: Apr 17th, 2004, 8:57am » |
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I think you're right Roxy. People are afraid to say if they get either photophobia or nausea with CH in case anyone thinks it is Migraine.
I occasionally get both with CH, and if it helps we were told from the last CH talk we had from Manjit Matharu that there is a substantial proportion of CH sufferers (can't remember the %) who get nausea, vomiting, photophobia and auras.
Wendy
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Mastifflvr28
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Re: CH question...poll....whatever....
« Reply #21 on: Apr 17th, 2004, 10:10am » |
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Hey Rox,
If yer posting, does this mean that you and Cat made it back in one piece?
In 98 (worst cycle ever) RIGHT before I found ch.com and the RIGHT meds I was puking every night. I don't know if it was the kip 10's or the fioricet w/codiene that did it. But I started eating things for dinner that would be "ok" coming back up...ya know, not tooooo acidic
Vig...I sure hope you don't get hit everynight...or that means you haven't eatten for 6 weeks now
Mast
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Roxy
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Re: CH question...poll....whatever....
« Reply #22 on: Apr 17th, 2004, 12:22pm » |
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on Apr 17th, 2004, 8:57am, pubgirl wrote:| I think you're right Roxy. People are afraid to say if they get either photophobia or nausea with CH . |
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I've only talked to one other ch'er that has photophobia, so I know it isn't as common as nausea. I'm really surprised that this many people do get sick to their stomachs.....I thought it would be a lesser number.
I do agree that when I was using trex so much, I never felt sick. It seems to be only when I am caught without being able to use triptans, and when the 02 isn't working real well.....and it is only with the kip 9-10 level hits.
HEY MICH.....we made it home last night, safe and sound.....and not too many catastrophes.... .
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Cerberus
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Re: CH question...poll....whatever....
« Reply #23 on: Apr 17th, 2004, 3:17pm » |
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Sloppin the hogs during a CH...hrmmmmm.
Gotta say that it has happened to me. I can't say why tho, it seems to me that the torture of a CH is disorienting enough to make ya wanna hurl. Could also be the pain level, anxiety of it, level of meds (yea/nay).
Can't say for sure, except that it doesn't happen regularly...well to me anyhow. But now that I think about it, the urge to vomit seems to come directly before an attack for me...maybe its the body's way of warning me of impending doom, who knows?
Ramon
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Virginia
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Re: CH question...poll....whatever....
« Reply #24 on: Apr 17th, 2004, 3:17pm » |
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Well, you know we've talked about this before and my answer is yes.
During the mild/moderate "episodes" I just get the nausea but don't actually throw up.
During my worst cycles I throw up many times. December, 2000 I spent an entire weekend on the floor of a bathroom in a room at the Hyatt Regency in San Francisco. I figured what was the point of leaving? The side of the tub felt good against my head when I wasn't throwing up and when I was the toilet was right there. 
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