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Topic: Honorary Clusterhead Christopher (Read 487 times) |
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ClusterChuck
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Honorary Clusterhead Christopher
« on: Apr 3rd, 2004, 10:43am » |
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Hopefully most of you remember our Honorary Clusterhead, Christopher, who is OneEyeBlind’s (Nancy) nephew.
For the newbies that don’t know him, let me give you a quick summary. Christopher is a charming, gregarious, joyous 16 year old lad. He had cancer many years ago that caused him to loose one leg. He then went into remission for many years. Ah, the joy of those years! He never let his missing leg get him or those around him, down, or slow him down. Unfortunately, cancer returned last year. He has a cancer on his lungs, and another one in his brain. He went in for treatment, again. He went through some VERY rough times. He had many problems, and downslides. The radiation and chemo helped the one in his brain, after some very bad times. Unfortunately, the growth on his lungs did not get better. Through most of it, he kept a great outlook, and faith in his God that there was some sort of plan here. Then they discovered more cancer in his stomach area, on his spine, and other areas. He was told that they could prolong his life, but did not think they could cure him.
Well, at this point, he made a decision that he does not want to go through any more chemo. He realized what his life would be like, and has now made that decision. I, and his family fully support his decision. It is his life, he has the right to make that choice.
So now he is getting radiation to try to keep him out of pain. He had to go in for surgery to remove the growth on his spin, as it had paralyzed him from the waist down. They had to install a feeding tube a couple months ago, to maintain his body as well as possible. That is still there and in use.
The doctors have given him 3 to 6 months to live. He is at home, most of the time. They are working hard to give him some dignity for the end of his short life, and keep him as pain free as possible. For a lot of the time, he still has his charming and upbeat personality and outlook. He and his family have accepted the future. They are at peace with his decision. It is now just a matter of time, and just keep him as comfortable as possible.
I just wanted to pass the above on to our cluster family. I know many of you have prayed for him, and sent cards letters, and Christmas gifts. Let’s keep our prayers for him and his family, and accept his decision. The Lord has his reasons for this to happen, and we will never really know what those reasons are. I have accepted it, and very much respect Christopher’s decision. I regret that I will never get to meet this wonderful person.
And here I thought I had problems.
Humbled Chuck
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Superpain
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Re: Honorary Clusterhead Christopher
« Reply #1 on: Apr 3rd, 2004, 11:32am » |
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Fuck... 
Prayers to Christopher...
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Chris
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Melissa
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Re: Honorary Clusterhead Christopher
« Reply #2 on: Apr 3rd, 2004, 11:40am » |
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That poor kid, . I am so sorry this is happening, but I wish him complete pain free time and a load of happiness and peace till the end.
prayers goin up...
mel
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Luke63
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Re: Honorary Clusterhead Christopher
« Reply #3 on: Apr 3rd, 2004, 11:43am » |
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My prayers and support to Christopher and his family.
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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pubgirl
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Re: Honorary Clusterhead Christopher
« Reply #4 on: Apr 3rd, 2004, 11:51am » |
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A brave and amazing kid. I wish I could have met him.
I am also sending my prayers and wishes for his family, carers and friends.
Particularly one who may not read this
Wendy
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Lizzie2
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Re: Honorary Clusterhead Christopher
« Reply #5 on: Apr 3rd, 2004, 12:03pm » |
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My prayers continue to be with Christopher and his entire family every day. It makes me so sad to hear stories like this, but he has been such an incredible fighter and so strong through all of this! He deserves every moment of peace and happiness that he can have during his time left.
Christopher was right down the hall from my little buddy Jared at Hershey Med Center, and Jared passed away on February 2nd at the age of 9. Going to his funeral was one of the hardest things I've ever done, but these young kids teach us more than anything else ever could. They have taught me to be strong and be thankful for what I have. And to make the most of every day.
When Jared passed away, someone said that up in heaven there is a room all blue and white (Penn State colors) where only THON kids (part of a PSU fundraiser that supports Four Diamonds kids and families which Jared was a part of and Christopher is a part of) can play and everyone is happy because there is no more cancer.
I have seen that death from cancer is not a defeat. All of these kids have survived and won simply by the strength and fight inside of them. Christopher has won, and he has shown that the cancer does not control him, because he has made his choices, and I believe in him.
All the love and thoughts and prayers I have are with him and his family.
Love,
Lizzie
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cootie
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Re: Honorary Clusterhead Christopher
« Reply #6 on: Apr 3rd, 2004, 12:21pm » |
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THANKS for the update Chuck...I was wondering how he was doin at this point in his young life. If only miracles could happen I would wish him a long healthy life Pam
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Jackie
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Re: Honorary Clusterhead Christopher
« Reply #7 on: Apr 3rd, 2004, 12:32pm » |
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Our prayers are with Christopher and his family.
Bless all their hearts.
Jackie
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bobkip
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Re: Honorary Clusterhead Christopher
« Reply #8 on: Apr 3rd, 2004, 1:41pm » |
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I feel like the proverbial man who complained that he had no shoes.
Kip
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Re: Honorary Clusterhead Christopher
« Reply #9 on: Apr 3rd, 2004, 1:58pm » |
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ShariRae
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Re: Honorary Clusterhead Christopher
« Reply #10 on: Apr 3rd, 2004, 2:55pm » |
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Although Christopher wouldn't want it this way..the tears just keep streaming down my face. I just hope & pray he can be comfortable & not in a great deal of pain. Your decision is indeed a brave one my young friend.
Huggs
Shari
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suzy617
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Re: Honorary Clusterhead Christopher
« Reply #11 on: Apr 3rd, 2004, 3:52pm » |
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Nancy please know that Christopher, you and your family are in my thoughts and prayers.
Suzy
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Elaine
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Re: Honorary Clusterhead Christopher
« Reply #12 on: Apr 3rd, 2004, 5:16pm » |
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I did not want to open this post and skiped around it all day.
I am so sorry and I am praying. I know He has chose the way thats right for him and I am glad they are all at peace with it.
My prayers never have stopped and they won't for him and his family.
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BobG
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Re: Honorary Clusterhead Christopher
« Reply #13 on: Apr 3rd, 2004, 7:27pm » |
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I hate to read posts like this. But, at the same time I know it is part of life. Thanks Chuck for posting it.
Prayer are being sent from our home to you, Christopher and his family.
Now I just have to remember to tell my self each day....
"It's only a headache. It won't kill me. Get over yourself Bob"
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Virginia
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Re: Honorary Clusterhead Christopher
« Reply #14 on: Apr 3rd, 2004, 8:32pm » |
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My prayers are with Christopher, Nancy, and the entire family.
I don't have the words to say how sorry I am.
Virginia
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broomhilda
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Re: Honorary Clusterhead Christopher
« Reply #15 on: Apr 3rd, 2004, 10:55pm » |
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Chuck, please send my prayers to Christopher and his family and yourself, what a brave and strong young man!
Andrea
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Suck it up Princess...
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Edna
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Re: Honorary Clusterhead Christopher
« Reply #16 on: Apr 4th, 2004, 12:41am » |
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WOW, what strength young Christopher has. My heart is warmed and I can truly smile inside, though sad, to know Christopher has perhaps lost his battle to conquer cancer, but in doing so will gain something far greater. Truly, God has a special plan for Christopher!
My hope is that God grant his family and friends the strength they will continue to need to cope.
For Christopher and his family, I continue to pray.
Thanks Chuck for passing on the news.
EDNA
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Mikey
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Re: Honorary Clusterhead Christopher
« Reply #17 on: Apr 4th, 2004, 12:54am » |
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Thanks Chuck for informing us of this update.
I'm sending more prayers than Christopher, Nancy, and the whole family can handle!!!!!
I wish him all pain free time from here on!!! I hope that the Docs are wrong, and he has more quality time left than they think he does!
...Humbled Mikey,
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CHRONIC and going crazy!! Want to come too?
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Re: Honorary Clusterhead Christopher
« Reply #18 on: Apr 4th, 2004, 1:20am » |
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Charlie
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Re: Honorary Clusterhead Christopher
« Reply #19 on: Apr 4th, 2004, 6:39am » |
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Christopher has caused a lot of clusterheads to take stock of themselves. It's during that little inward look that we get mad. At least I do at things like this.
My best wishes and thanks for the update.
Charlie
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thomas
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.Re: Honorary Clusterhead Christopher
« Reply #21 on: Apr 5th, 2004, 10:38am » |
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Thanks for the update, Chuck...........
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Linda_Howell
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Re: Honorary Clusterhead Christopher
« Reply #22 on: Apr 5th, 2004, 11:45am » |
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Like Elaine, I skirted around this post for a few days not wanting to open it. Now that I have, all I can do is come up with are expletives, like DAMNIT! 
I know, that helps no one, but my heart just breaks for him and his family. I hope I remember this when I'm feeling so darn sorry for myself.
LindaH
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echo
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Re: Honorary Clusterhead Christopher
« Reply #23 on: Apr 5th, 2004, 12:30pm » |
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I too blew by this thread on several occassions. Sorry that Chris has been dealt this hand. Prayers to Chris, Nancy and family.
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ClusterChuck
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Re: Honorary Clusterhead Christopher
« Reply #24 on: Apr 7th, 2004, 11:34pm » |
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Michelle, thanks for putting that certificate up for those that never saw it.
For those that were not here at the time, by decree of our royal majesty, King Jonny, Christopher was made an honorary Clusterhead. From what I hear, he really got a kick out of that certificate. One was mailed to him while he was in the hospital, during a real rough period.
Christopher: God bless you, and I hope you enjoy your Easter gathering with your large family. I think of you constantly, and I am SO impressed with the way you have dealt with this whole episode. You are a hero in my book.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
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