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   I just had to tell y'all, I cried at the doctors
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   Author  Topic: I just had to tell y'all, I cried at the doctors  (Read 302 times)
Tiannia
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I just had to tell y'all, I cried at the doctors
« on: Apr 2nd, 2004, 10:42pm »
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I finally got into see the PCP that Gregg (LasVegas) refered me to.  My appt was at 3:30pm. Sat in the waiting room, and kept thinking. "oh God, here I go again. Another doctor that is going to see me for 3 mins and then pat me on the head and say Women cant have clusters." Undecided
 
Well the nurse got me, got my BP and vitals. And actually sat with me for like 15 mins, while I went over everything. When they started all of the meds that I have tried and what has or has not been done. What all the docs have told me or laughed at me, everything.  Then she took my hand and said, "Don't worry. You are in the right place."  
 
2 mins later the doctor came in. And then he asked me to go over everything. Describe the headaches. When they hit, all of the physical stuff, how long and all of it. Then we went over meds, doctors, Nerve blocks, Radio frequency, all of it.  30 mins later he says, "Have you seen a neuro?" "No, I cant get a referal." "Well I'm sending you now." And filled out the paperwork right there.  Then he filled out for a CAT scan and told me to get my MRI and results from August. Then he told me that he wants me to test for sleep apnea to make sure that I am not triggering the 3am attack because of lack of Oxygen. The took me off the Gabitril and is starting me on Neurontin (100 mg 1 week, 200 mg 1 week, then 400 mg) and Nasonex NS. He is keeping me on the Inderal 80 mg at night because my bp was 160/110. He re took it when we where all done and it was 150/100, but he wants to make sure that it was anxiety driven and not that i have developed high BP.  
 
Then he says ok, I want to see you after you see the Neuro.  Then he said that, "You have delt with this long enough without anyone helping you, lets get this under control." That was when I started crying. I was so damn happy to have found a doctor that actually listened to me. I feel like i might actually get my life back.  I left at 5pm, so it was a 1 1/2 hour appointment.  Cheesy
 
I just had to say. THANK YOU GREGG.   Kiss  And thank all of Clusterville for telling me to keep looking for a doctor until I found a good one.  
 
Hoping you all have a great PF Weekend.  
-Tiannia
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Re: I just had to tell y'all, I cried at the docto
« Reply #1 on: Apr 2nd, 2004, 10:51pm »
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You deserve that T  good for you... Dave went on Neurontin and thats when he had his first successes fighting CH... good luck and if you have any questions about Neurontin you can ask Dave.........love to you ree
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Re: I just had to tell y'all, I cried at the docto
« Reply #2 on: Apr 2nd, 2004, 10:53pm »
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Tia, that's beautiful!  I just wanna hug you now!
 
Good luck with the neuro... and this PCP sounds like a real keeper!
 
Joe
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Re: I just had to tell y'all, I cried at the docto
« Reply #3 on: Apr 2nd, 2004, 11:17pm »
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Dam....that is such a great feelin to have a doc you like and one that seems to like you...and listen !!! Good for you !!! Neurotin makes me drunk......I'm onea the "few" that can't take it......I'm of course a supporter and took it for other reasons. Have heard alot of good about it.......wierd Pam drug drunkeness  Wink
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Re: I just had to tell y'all, I cried at the docto
« Reply #4 on: Apr 2nd, 2004, 11:17pm »
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Oh Tia!!  I teared up when I read you have FINALLY gotten the right help!!  I'm soooooooo happy for you!!! sayyes thumb hug
 
 Grinmel
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Re: I just had to tell y'all, I cried at the docto
« Reply #5 on: Apr 3rd, 2004, 12:43am »
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Tia,
 
Good for you Tia and I am really glad for you.  
 
Better winning bet in Vegas than I've ever made.
 
Hope the meds work out for you too.
 
Kevin M
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Re: I just had to tell y'all, I cried at the docto
« Reply #6 on: Apr 3rd, 2004, 12:46am »
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I'm so happy for you Tia, a doctor that works with you and listens to you is almost everything in the world when you have CH.
 
Wendy
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Re: I just had to tell y'all, I cried at the docto
« Reply #7 on: Apr 3rd, 2004, 2:18am »
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Coolness! Congrats! Good ch docs are harder to find than well... pretty much anything!
 
Guess I got lucky. I made my own appt with the neuro and bypassed the regular dumdum doc... Smiley
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Re: I just had to tell y'all, I cried at the docto
« Reply #8 on: Apr 3rd, 2004, 7:56am »
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Tia,
 
I'm so happy for you. I don't post much on the board, but I read it every single day!  It's great that you listened to everyone here and never gave up hope, kept fighting and looking and it turned out wonderful for you! There ARE great dr's out there that are so educated about CH - it's just hard and very frustrating to find them sometimes.
 
I'm glad to hear that you stayed strong and found what you needed!
 
Good luck!
Hugs,
Much Love,
Toni
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Re: I just had to tell y'all, I cried at the docto
« Reply #9 on: Apr 3rd, 2004, 8:40am »
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GREAT.........Hugs to you......you do deserve it..now go kill that Fuckin Beast!!!!!!  Love ya...Luke
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Re: I just had to tell y'all, I cried at the docto
« Reply #10 on: Apr 3rd, 2004, 8:44am »
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WOO HOO!!   Good for you!  I know everything will work out and you'll get some PF time!!!
 
Tina Kiss
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Re: I just had to tell y'all, I cried at the docto
« Reply #11 on: Apr 3rd, 2004, 9:24am »
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Im so happy for you Tia... finding a good PCP is great... BTW why did he gave you Nasonex... My PCP gave me the same thing at first bu when i saw my neuro he tols i could stop taking it... Im not even sure why i was taking it?? Doh Wink
 
Pegase
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Re: I just had to tell y'all, I cried at the docto
« Reply #12 on: Apr 3rd, 2004, 10:22am »
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YAYyyyyyyyyyyy Tia.. that is great news! Sounds like you are on the right track...keep us posted...Huggs & Best Wishes
Shari
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Re: I just had to tell y'all, I cried at the docto
« Reply #13 on: Apr 3rd, 2004, 10:23am »
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I'm really glad for you, Tia!!!
 
 hug  hug hug hug hug hug hug hug hug hug hug hug hug hug hug hug
 
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Re: I just had to tell y'all, I cried at the docto
« Reply #14 on: Apr 3rd, 2004, 12:59pm »
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Magnificent, Tia!! Congratulations!! *HUGS!*
 
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Re: I just had to tell y'all, I cried at the docto
« Reply #15 on: Apr 3rd, 2004, 1:28pm »
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Fantastic Tia. Hang onto that PCP unless, of course he'd like to relocate to Florida. lol
Kip
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Re: I just had to tell y'all, I cried at the docto
« Reply #16 on: Apr 3rd, 2004, 1:46pm »
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ROCK-N-ROOOOOL!!!!
 
Thats great news, Tia....With alittle luck and the right med combo you will be able to answer the door when the beast knocks and PUT A BOOT IN HIS ASS!!!!! Grin
 
...................jonny
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Re: I just had to tell y'all, I cried at the docto
« Reply #17 on: Apr 3rd, 2004, 4:05pm »
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I am so happy for you. I know those tears!  
Sounds like you have a good doctor!
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Re: I just had to tell y'all, I cried at the docto
« Reply #18 on: Apr 3rd, 2004, 6:35pm »
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Tia, I am soooooo happy for you! Congrats, I cried with you reading your post! Yay!!!!!!!!!
 
Hugs from Canada!
 
Andrea
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Re: I just had to tell y'all, I cried at the docto
« Reply #19 on: Apr 3rd, 2004, 7:47pm »
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Tia,
 
Congrats!!!  
 
I hope the Neurontin works on you.  I had to go off of it...one of many for me.
 
Good luck with the neuro and keep us posted!
 
Hopefully he'll give you a great big suit of armor to kick the beast's ass!
 
renee
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Re: I just had to tell y'all, I cried at the docto
« Reply #20 on: Apr 3rd, 2004, 11:00pm »
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on Apr 3rd, 2004, 9:24am, Pegase wrote:
BTW why did he gave you Nasonex... My PCP gave me the same thing at first bu when i saw my neuro he tols i could stop taking it... Im not even sure why i was taking it?? Doh Wink
 
Pegase

 
I'm really not sure. I thing that he is hopeing my clearing my sinuses, it will help.  Figure I will try it and we will see.   The thing that really surprised me is this. He said "Well night now we have to do a lot of research and it will be a trial and error to see what will work, because each person reacts to meds differently."  You know I almost thought he might have actually been here doing some reading.  Someone here says that same thing every day.  
 
Thanks guys. I just had to tell you all.  At least when I got slammed last night, I could look forward to hoefully not having to deal with this much longer.  he he Have to try and stay positive. THat is the hardest part sometimes.  
 
PF Wishes guys.
-Tia
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Re: I just had to tell y'all, I cried at the docto
« Reply #21 on: Apr 4th, 2004, 7:14am »
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As they say: A real keeper. Good for you and great to read something this good here.
 
Charlie   Cool
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Re: I just had to tell y'all, I cried at the docto
« Reply #22 on: Apr 7th, 2004, 9:04am »
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Tia, I did too. Yesterday, I went to my GP, took the medical printout from the medical info link, hi-lighted my symptoms, hi-lighted Verapamil, injectable Imitrex, and O2 therapy. I was sitting in a chair and my GP was sitting on a stool, just a couple of feet from me. She looked over my chart, looked at the printout that I gave her, and said with a wonderfully compassionate smile, "Okay. I'm willing to work with you on this. Let's knock it out." (I'm welling up with tears all over again as I type this.) I started crying. Not sobbing... Just... My eyes filled up with tears of relief and gratitude, and all I could say was, "Thank you. Thank you..." It felt so good to finally FINALLY talk to someone who was willing to really listen. Maybe I'll buy her a bouquet of flowers or something...  I don't think she'd appreciate THIS,  lick though.  Grin
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