Author |
Topic: Two new Points to Consider (Read 536 times) |
|
ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
Gender: 
Posts: 3181
|
 |
Two new Points to Consider
« on: Apr 2nd, 2004, 6:06pm » |
 Quote  Modify
|
On Wednesday of this week, I went to, what I was told, was a headache clinic. That proved to be a false statement. It was just the neurology department at the hospital/university. Over all, it was a wasted trip.
There were two points that the neuro brought up that I thought are worth passing on.
One is a VERY new treatment that seems to be showing some positive results for the treatment of cluster headaches. It is the Hyperbaric Oxygen Therapy treatment. This is normally used in treating "the bends" (decompression sickness) (a condition caused by rising too fast from great depths of underwater diving). It seems to break the cycle, somehow. It possibly has to do with this quote from science.Howstuffworks.com site:
Quote:4. Vasoconstriction:
High pressure oxygen causes constriction of the blood vessels (without creating hypoxia) which decreases edema in injured tissues and secondarily decreases intracranial pressure. This effect is useful in burns, crush injuries and interstitial bleeding. It may also be effective in acute brain and spinal cord injuries.
|
|
She is going to look into it for my treatment.
The second interesting observation she stated was this: We were talking about OUCH and ch.com. I told her how often we heard horror stories of being misdiagnosed. She told me that from her experience and observation, it is just the opposite. She sees that it is being OVER diagnosed! She says it seems to be the latest "convenient" handle to put on any odd type headache! Seems to me, we have seen a few come here with what we perceive as being misdiagnosed.
Oh well, I just thought I would pass these points across to y'all.
Chuck
|
|
 IP Logged |
"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
|
|
|
FZfan
New Board Old Timer
Not Insane
Gender:
Posts: 459
|
|
Re: Two new Points to Consider
« Reply #1 on: Apr 2nd, 2004, 6:19pm » |
Quote Modify
|
Thanks Chuck. Real interesting. Hope you get to try the hyperbaric thingy.
I think your doc might have a point on that second item also. I've had the same feeling and I haven't been here that long.
Of course, even if that were true, it would still be part of the overall misdiagnosis problem. Seems misdiagnosis can work both ways.
|
|
IP Logged |
There is no such thing as a dirty word. Nor is there a word so powerful, that it's going to send the listener to the lake of fire upon hearing it. - FZ
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: Two new Points to Consider
« Reply #2 on: Apr 2nd, 2004, 6:30pm » |
Quote Modify
|
Hyperbaric I think is a lot more expensive. The one by my house says they treat many professional athletes. He mentioned something about going into a separate room or something. I didn't inquire further because it didn't seem what I was looking for at the time. A prescription for that seems would be hard to get.
I finally got O2 today. I'm already outdated????
Sounds like something to try, if it happens Chuck, of course you'll let us know.
Kevin M
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
Gender:
Posts: 14968
|
|
Re: Two new Points to Consider
« Reply #3 on: Apr 2nd, 2004, 6:30pm » |
Quote Modify
|
Quote:| She sees that it is being OVER diagnosed! She says it seems to be the latest "convenient" handle to put on any odd type headache! |
|
She lives here on earth, right? Where do we write to get her license revoked?
She can be counted as one who thinks nothing of her patients and of course assumes we are illiterate as well.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Luke63
New Board Hall of Famer
For sale: 1 BIG BARKING HEAD Price: Free
Gender:
Posts: 1182
|
|
Re: Two new Points to Consider
« Reply #4 on: Apr 2nd, 2004, 6:30pm » |
Quote Modify
|
Sounds goodto me...we can all have a convention in the caribbean......go deep sea diving...get a big banger goin..then get in the decopression cahmber and see if it works  ...just kidding...very interesting Chuck...gonna check out that site...Luke
|
|
IP Logged |
I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
|
|
|
Luke63
New Board Hall of Famer
For sale: 1 BIG BARKING HEAD Price: Free
Gender:
Posts: 1182
|
|
Re: Two new Points to Consider
« Reply #5 on: Apr 2nd, 2004, 6:32pm » |
Quote Modify
|
Im sorry curiosity gets the best of me......Hey FZ...what does FZfan stand for anyhow?...Luke
|
|
IP Logged |
I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
|
|
|
Melissa
Guest
|
|
Re: Two new Points to Consider
« Reply #6 on: Apr 2nd, 2004, 6:32pm » |
Quote Modify
 Remove
|
A hyperbaric chamber? I wonder if any of us clusterheads have tried that yet...
|
|
IP Logged |
|
|
|
Lizzie2
CH.com Alumnus
New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
Gender: 
Posts: 4458
|
|
Re: Two new Points to Consider
« Reply #7 on: Apr 2nd, 2004, 6:40pm » |
Quote Modify
|
It may be just a random bad fact coming from my memory, but aren't there some pretty big risks with using a hyperbaric chamber? Not that big risks haven't been taken before in an attempt to relieve CH. I'd want to look into that some more and try to remember where I heard that from!
See, Chucklzz...your visit wasn't a complete waste!! You learned 2 new facts!! Am sorry that it wasn't very useful for you though. 
Hugz,
Lizzie 
|
| « Last Edit: Apr 2nd, 2004, 6:41pm by Lizzie2 » |
IP Logged |
|
|
|
ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
Gender:
Posts: 3181
|
|
Re: Two new Points to Consider
« Reply #8 on: Apr 2nd, 2004, 6:53pm » |
Quote Modify
|
The Hyperbaric Oxygen Therapy is NOT a treatment for home use! (unless you are VERY rich!) (And if you are VERY rich, are you single?) It is a sealed chamber that you lie down in (sort of like an oversized beer can) and they increase the pressure and fill it with pure O2. With the increased pressure and pure O2, it is suppose to get into your system better and cure lots of evils.
Try looking here: http://science.howstuffworks.com/framed.htm?parent=question493.htm&u rl=http://www.woundcare.org/newsvol1n3/ar8a.htm
BUT, it is a VERY new application to use it for cluster headaches. There is very little (if anything) written up about it.
Chuck
|
|
IP Logged |
"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
|
|
|
pubgirl
Guest
|
|
Re: Two new Points to Consider
« Reply #9 on: Apr 2nd, 2004, 6:58pm » |
Quote Modify
Remove
|
Chuck
Hiya babe. How are you?
Actually I think I agree with her.
The most incredibly frustrating feeling I have at the moment is that I believe two things are happening.
1. The crap doctors are still not diagnosing CH correctly, and if they are, are often treating it wrongly.
2. The rest of the crap doctors have now finally heard of CH and are diagnosing almost every unilateral headache as CH. and missing other more treatable headache conditions.
Consequently many, many people could be pain free and aren't.
Just my opinion, but I see more and more evidence of it here and on OUCH UK
Wendy
|
|
IP Logged |
|
|
|
bobkip
New Board Old Timer
I love YaBB 1G - SP1!
Gender:
Posts: 492
|
|
Re: Two new Points to Consider
« Reply #10 on: Apr 2nd, 2004, 7:08pm » |
Quote Modify
|
Being a former rabid SCUBA diver, I did notice a decrease in beast activity when I was diving a lot locally. Most of the dives we did here were deep (90 to 120 feet) and it's amazing what comes out of your head after one of those dives. Tho not on pure O2, the compression (4+ atmos) might have had something to do with it. Shallower dives did not seem to have any effect.
Kip
|
|
IP Logged |
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
 
Gender:
Posts: 2217
|
|
Re: Two new Points to Consider
« Reply #11 on: Apr 2nd, 2004, 7:10pm » |
Quote Modify
|
The hyper-barbaric O2 thing goes back decades. And maybe 10 years more than that. Our illustrious president (N4H) included MASS Quan-titties of compression chamber info on the O2 info page, but it was vetoed in the name of brevity.
If you know a navy seal or two, yer in like Flint. Otherwise, it cost's thousands per treatment (several hours in a torpedo tupe pumped up with canned O2.)
Nuthin new under the sun,
RJ
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
Gender:
Posts: 3181
|
|
Re: Two new Points to Consider
« Reply #12 on: Apr 2nd, 2004, 7:25pm » |
Quote Modify
|
on Apr 2nd, 2004, 7:10pm, Mr.Happy wrote:| The hyper-barbaric O2 thing goes back decades. And maybe 10 years more than that. |
|
Damn! I thought it was new, and that is what she told me, too. I had never heard of it. All the other treatments that she talked to me about, I had at least heard of. Not so with this one. Oh well ...
But when I heard of it, I thought of Mikey (especially Mikey, with his low blood oxygen saturation), Tim_W, and Zazi, who, like me, are chronic and get hit SO MANY times, that maybe this was something new to try! SHIT! Oh, well, it may still prove worthwhile ...
Has anyone heard of any clusterhead that has tried this?
And Kip, I am trying to remember if I noticed any difference in my hits when I was into diving, but I only got down to 100 feet, once. Most of my diving was in shallower dives. Very intereseting observation. Anyone else experience this?
Chuck
|
|
IP Logged |
"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
|
|
|
Mikey
New Board Hall of Famer
Rock till ya Drop and DON'T mess with the FAM!!!!!
Gender:
Posts: 585
|
|
Re: Two new Points to Consider
« Reply #13 on: Apr 2nd, 2004, 7:52pm » |
Quote Modify
|
Chucky, i'm sorry that Baptist Hosp. at Wake Forest Univ. wasn't what you thought it was, or was it Duke Univ-Durham? But UNC-Chaple Hill is! It's a sure fire Headache Clinic headed up by Dr. Alan Finkle, Head of Neurology and the Headache Clinic there. It is a teaching hospital, just like Baptist, or Duke is. Dr. Finkle is my Neuro there. Call me about it Chuck, and i'll explain more to you.
If anyone else is interested, it is a pretty decent place to go. I've had some good treatments done to me there, and they are pretty knowledgeable on the entire front of CH, from Diagnosis to treatment. Dr. Finkle is the one who gave me my secound opinion.
As for the Chamber, I wonder how it would effect someone like myself who has Hypoxemia ( low blood oxygen level). It would be interesting to find out, cause that's why 02 does nothing for me now.
Very interesting info you picked up on Chuckles, never would have thought of trying a Hyper Chamber for CH. Just goes to show ya, ya never know where info will come from, or what strange things that already exist that might be used for the treatment of CH.
Mikey, 
Modified due to Chucky Boy:
You posted as i was writing mine!! I'm slow as hell today anyway, not your fault Bro!!
|
| « Last Edit: Apr 2nd, 2004, 7:58pm by Mikey » |
IP Logged |
I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
|
|
|
fubar
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1933
|
|
Re: Two new Points to Consider
« Reply #14 on: Apr 2nd, 2004, 8:38pm » |
Quote Modify
|
I am a SCUBA diver and certified rescue diver. I have to admit I've never been hit with CH during a dive. This has always puzzled me since the pressure is so great when you are down deep (60-90ft). I think it's one of the reasons I use pressure so much when I am in pain (squeezing my neck and head, hard)
I also agree that it is probably being over-diagnosed these days. It's so unknown, it's an easy out diagnosis.
-Fu
|
|
IP Logged |
"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
|
|
|
forgetfulnot
Guest
|
|
Re: Two new Points to Consider
« Reply #16 on: Apr 2nd, 2004, 11:40pm » |
Quote Modify
Remove
|
Mark, good stuff. I just want to know one thing, how the hell do you get the 2 to drop on O2? That's been bugging the crap out of me.
Lee
|
|
IP Logged |
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: Two new Points to Consider
« Reply #17 on: Apr 3rd, 2004, 2:44am » |
Quote Modify
|
on Apr 2nd, 2004, 11:40pm, forgetfulnot wrote:Mark, good stuff. I just want to know one thing, how the hell do you get the 2 to drop on O2? That's been bugging the crap out of me.
Lee |
|
Just highlight what you want superscript or sunscripted and click the sup or sub buttons to the right of the "Add YABBC tags:" line.
O2 O2
|
|
IP Logged |
|
|
|
Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
Gender:
Posts: 2660
|
|
Re: Two new Points to Consider
« Reply #18 on: Apr 3rd, 2004, 11:37pm » |
Quote Modify
|
For more Yabb (Yet another Bulletin Board) stuff visit here. To view mine or anyone else's source hit the quote button and any "tags" will be revealed.
Thanks Gator!
Mark
|
|
IP Logged |
Click The Flag
|
|
|
HypnoticFreddy
Guest
|
|
Re: Two new Points to Consider
« Reply #19 on: Apr 4th, 2004, 12:19am » |
Quote Modify
Remove
|
Hey..if Michael Jackson does it and it makes him look, feel, and act the way he does then I'd surely give it a go!
-Freddy
|
|
IP Logged |
|
|
|
jonny
Guest
|
|
Re: Two new Points to Consider
« Reply #20 on: Apr 4th, 2004, 12:54am » |
Quote Modify
Remove
|
on Apr 4th, 2004, 12:19am, HypnoticFreddy wrote:Hey..if Michael Jackson does it and it makes him act the way he does then I'd surely give it a go!
-Freddy |
|
If thats your thinking you are a sick m*th*rf**k*r.
Christ!, how many things can you say that just dont fit to the norm.......Unreal!!!!!
...................................jonny
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss