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Topic: Just joined O.U.C.H. (Read 234 times) |
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Jeepgun
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I just finished joining O.U.C.H. and ordered a T-shirt, too. Mixed feelings about that...  
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Melissa
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on Apr 2nd, 2004, 11:17am, Jeepgun wrote:| I just finished joining O.U.C.H. and ordered a T-shirt, too. Mixed feelings about that... |
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First of all, thank you for joining OUCH!
Second of all, WHY are you having mixed feelings??
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Jeepgun
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I wish I had no need to join. I wish I had no need of this website. I wish I'd never known what a cluster headache felt like. I'd rather be stabbed...
Then again, as my grandfather always used to say, "Wish in one hand and sh*t in the other, and see which one fills up the fastest." 
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Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
  
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Re: Just joined O.U.C.H.
« Reply #3 on: Apr 2nd, 2004, 12:21pm » |
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Thank you for joining.
There is strength in numbers.
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Melissa
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on Apr 2nd, 2004, 11:28am, Jeepgun wrote:| I wish I had no need to join. I wish I had no need of this website. I wish I'd never known what a cluster headache felt like. |
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Well, if it's any comfort, we have ALL felt the exact same way you do. I try to look on the brighter side of things with clusters. I find that I cherish my life a lot more during PF periods. I'm so happy and glad that I DID find this website because of all the wonderful people here! I have made friendships here that I know will last a lifetime!  I'm so lucky I get to attend the OUCH conventions and meet these people face to face, and actually have an AWESOME time!! Plus due to this website and the OUCH site, I can learn, in depth, about my condition, so I am armed with info. on how to battle with the beast. I think that is great, because I would rather be knowledgable about clusters, instead of not knowing what the fuck they were! Let's see, clusters have given me an inner strengh that helps me deal with day to day problems in life, like not freaking out when something bad happens, or having empathy for others in pain, even though my cluster pain is considered "the worst" by the medical profession. I've learned to be a lot more patient and thankful to be alive. I'm so happy I am not dead. Even if it means having to spend some of my time in horrendous pain, it DOES eventually end, and I can get back to life!
 mel
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| « Last Edit: Apr 2nd, 2004, 12:37pm by Melissa » |
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Jeepgun
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You are both so right... Thank you... I'm just so grateful for having found this board. I can't tell you how long I was scared, and how deeply I was terrified that these were indicative of a brain tumor. I'm going to be at the OUCH convention in Nashville, so I hope to see you there.
-Frank
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ShariRae
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Re: Just joined O.U.C.H.
« Reply #6 on: Apr 2nd, 2004, 2:31pm » |
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I think Mel summed it up best.
Huggs
Shari
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Only two defining forces have ever offered to die for you,
Jesus Christ and the American Soldier.
One died for your soul, the other for your freedom.
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Leesa
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Re: Just joined O.U.C.H.
« Reply #7 on: Apr 2nd, 2004, 2:42pm » |
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WOOOOHOOOOOOO *happy dance*  Way to go man!!! Welcome aborad *passin over oar* heres your oar now get to rowing!! LOL We will see you in Nashville my friend look forward to meetin ya!!!
Leesa 
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"The truth of the matter is that you always know the right thing to do. The hard part is doing it." General H. Norman Schwarzkopf
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Jeepgun
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Thanks, everyone. Is there someplace on this board where we can post photos of ourselves, so that we can recognize each other when we DO meet?
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Melissa
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You can see pics of clusterheads at Bob P.'s picture page here: http://www.pahlow.net/ch/clusterheads.htm
He has instructions at the bottom of the page, how you can add your pic to the site! Oh, and ignore my pic, I don't have that big of chipmunk cheeks anymore...yet I think you know that.
mel
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Jeepgun
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Cool. Thank you! I'll add my photo this afternoon, then. You are beautiful, Melissa.
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Melissa
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Quote:| You are beautiful, Melissa. |
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awww, thank you so much!
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Charlie
CH.com Alumnus
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Happy to be here
 
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Re: Just joined O.U.C.H.
« Reply #12 on: Apr 2nd, 2004, 7:11pm » |
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Welcome to the madhouse and your getting an OUCH shirt is a big part of the battle. Just wearing it will make others ask about it. It can only help. Coolness.
Meeting other clusterheads is a treat. Not being isolated with this horror is a joy, albetit one with an edge.
Glad to have ya.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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pubgirl
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Charlie is right
I wear my OUCH UK polo shirt when I go to the gym, and EVERY time I wear it someone asks what it is about.
If every CH sufferer was asked twice a week what OUCH is, my small brain cannot begin to compute how many more people would know about CH.
Wendy
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| « Last Edit: Apr 2nd, 2004, 7:44pm by pubgirl » |
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TxBasslady
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Bass fishin' is a h00t It's the catchin' that sux
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Re: Just joined O.U.C.H.
« Reply #14 on: Apr 2nd, 2004, 7:18pm » |
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Frank,
Thanks for joining OUCH.
Look forward to meeting you in Nashville!
Your support for OUCH is very much appreciated.
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Mr. Happy
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If I can do it, it ain't art.
 
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Re: Just joined O.U.C.H.
« Reply #15 on: Apr 2nd, 2004, 7:28pm » |
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on Apr 2nd, 2004, 11:17am, Jeepgun wrote:| I just finished joining O.U.C.H. and ordered a T-shirt, too. Mixed feelings about that... |
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As long as you ordered a _pocket_ Tshirt, yer feelings will be assuaged.
Shaken, not mixed or stirred,
RJ
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May those who don't want any
Have memories of never getting any.
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ZAIRA
New Board Hall of Famer
Brave to Stand !!!
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Re: Just joined O.U.C.H.
« Reply #16 on: Apr 3rd, 2004, 10:39am » |
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on Apr 2nd, 2004, 1:27pm, Jeepgun wrote:You are both so right... Thank you... I'm just so grateful for having found this board. I can't tell you how long I was scared, and how deeply I was terrified that these were indicative of a brain tumor. I'm going to be at the OUCH convention in Nashville, so I hope to see you there.
-Frank |
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This is a vale of tears but in some way we can understand that we can learn something from our misfortune of being CHs. The sufference for a pain can open yourself to an interior growth, a deeper life, and full of meaning.
If you go out during the night in the darkness and lift your eyes to the sky, you’ll see thousands of stars. Have you never thought about this: if there was not the darkness you would not see any star??
BTW, you’ve found yourself feet, isn’t it?? I hope to meet you in Nashville!!
Ciao, Zaira
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| « Last Edit: Apr 3rd, 2004, 10:41am by ZAIRA » |
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Love yourself, Love others, Love often, Forever!
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Jeepgun
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Looking forward to meeting everyone in July. Strength, perseverence, patience, tenacity, love, peace, and pain-free vibes to everyone. I registered through the OUCH website last night.
*HUGS*
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