Author |
Topic: Goin Solo? (Read 450 times) |
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
For the first time in a laWng time cycle is starting WITHOUT insurance....i'm wondering how it might be to got through a cycle med-free.....done it b4, but not in a long time. In the beginning seems possible. After all this time......i still feel like i'm under water in suspended state. Never was good at rational panic.
Any ideas????
|
|
 IP Logged |
|
|
|
Callico
New Board Hall of Famer
Proud Dad of a US Marine!
Gender: 
Posts: 1395
|
 |
Re: Goin Solo?
« Reply #1 on: Mar 4th, 2004, 11:45pm » |
 Quote  Modify
|
O2! It is relatively cheap, and works for me. Also, Verap and Lithium are not all that expensive as preventatives.
Other than that, what works for me is focusing my mind on something else that I can do with my hands while trying to fend off the beast. Not 100 percent effective, but I can usually work through one if I don't get hit unexpectedly.
No insurance is no fun. Haven't had it in 20years, and no one will insure me at a rate I can possibly afford.
Wish you the best! IT WILL END!!!
jc
|
|
IP Logged |
"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
|
|
|
pubgirl
Guest
|
IM on its way to you Kim
W
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
Gender:
Posts: 14968
|
|
Re: Goin Solo?
« Reply #3 on: Mar 5th, 2004, 3:13am » |
Quote Modify
|
Sounds shitty Kim. 
Got my first attack in 1969 and quit my Blue Cross the same year back in the good old days when I had some surgery for $500. I got back on insurance in 1983 when I got clobbered with gall-bladder surgery. It seemed like such a big deal back then...wasn't much more than $2,000 total. 
Damn insurance runs me about $3,000 a year now. Bastards.
Things were different for me probably with 20 minute episodics and that the circulatory thing works so well. I guess there's only O2 and the technique that I can offer.
Sorry you have to deal with insurance as well as the horror.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
Gender: 
Posts: 2267
|
|
Re: Goin Solo?
« Reply #4 on: Mar 5th, 2004, 5:36am » |
Quote Modify
|
Hey Kim im sorry to read this, i'll be calling you tonight hang in there love and hugs
Cathy 
|
|
IP Logged |
My own tears would mean nothing to me, if I could stop you from just shedding one....
|
|
|
t_h_b
New Board Hall of Famer
primary chronic since 1999
Gender:
Posts: 527
|
|
Re: Goin Solo?
« Reply #5 on: Mar 5th, 2004, 6:08am » |
Quote Modify
|
No insurance and little cash?
Melatonin, oxygen, psilocybin, and verapamil are all relatively inexpensive.
|
|
IP Logged |
No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
|
|
|
cakelady
New Board Junior
damn I don't want to be here
Gender:
Posts: 68
|
|
Re: Goin Solo?
« Reply #6 on: Mar 5th, 2004, 6:30am » |
Quote Modify
|
I just finishad a cycle insurance free.
Ditto to Verapamil, melatonin and O2
good luck
|
|
IP Logged |
Pain is inevitable, misery is not.
|
|
|
suzy617
CH.com Alumnus
New Board Hall of Famer
Love is friendship set on fire
Gender:
Posts: 1902
|
|
Re: Goin Solo?
« Reply #7 on: Mar 5th, 2004, 7:25am » |
Quote Modify
|
Hang in there girl.
You have email.
Suzy
|
|
IP Logged |
When God measures men, He puts the tape around the heart, not the head.
|
|
|
Tiannia
New Board Hall of Famer
Life does not apologies......
Gender:
Posts: 3241
|
|
Re: Goin Solo?
« Reply #8 on: Mar 5th, 2004, 11:32am » |
Quote Modify
|
Only other thing I can think of is the water treatment. You might have to be up 6 times a night to pee but if it helps....
Also only of the things that I do that seems kind of crazy but at least seems to make my middle of the night attack not take so long to get through is a cold washcloth (hell I've even wrapped a washcloth around a bag of ice) and I roll it us and place it behind my neck when I lay down to try and fall asleep. Dont know if it is the shrinking of the bloodvessles up into my head or what but it helps me and might be worth giving it a try.
I hope it is not bad for you sweetie.
Tiannia
|
| « Last Edit: Mar 5th, 2004, 11:33am by Tiannia » |
IP Logged |
The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
|
|
|
Cathi04
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1745
|
|
Re: Goin Solo?
« Reply #9 on: Mar 5th, 2004, 11:36am » |
Quote Modify
|
Kim...You know I'm here....I know you are a seasoned veteran.......be stinky, be grouchy, be whatever you feel-but get through this.
Damn..how I hate the beast......
Miss DG
|
|
IP Logged |
Life is not measured by the number of breaths we take but by the moments that take our breath away.
|
|
|
bobkip
New Board Old Timer
I love YaBB 1G - SP1!
Gender:
Posts: 492
|
|
Re: Goin Solo?
« Reply #10 on: Mar 5th, 2004, 4:37pm » |
Quote Modify
|
Tried this once when travelling on business, no meds or O2. I read this in one of the headache orgs newsletters,
don't remember which one now but it was specifically directed at ch.
Hot shower, as hot as you can stand, for 5 minutes. Then turn off the hot water completely and do a cold shower for another 5. It aborted the ch almost immediately but I haven't had the guts to try it again. If nothing else it will sure as hell wake you up. And it's about as low cost as you can get. Best of luck.
Kip
|
|
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Goin Solo?
« Reply #11 on: Mar 5th, 2004, 4:49pm » |
Quote Modify
|
Can't tell ya how comforting it is knowing i'm not so ALONE.
Ole kimmer has her "habitual ritual" to fallback on in tough times. I leaned that lil two-step all by myself years ago.....
So, i'll get the tub ready, i'll brew the coffee (24 hours - 7 days a week) and i'll do what i've done over and over more times that i can count.
The medicine is not going to perform miracles.....so i will learn to live without it anyhow....i'm purdy good at dat.
The one thing that means so much.......the one thing that makes my throat close up....the one thing that makes me smile at the end of the road is all you guys****can't thank ya's enough***
i know i can be troublesome and argumentative, and downrite weird at times. Tough shit. I ain't changin. 
I loves yas more than i can ever say****
Thanks.
|
|
IP Logged |
|
|
|
cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
Gender:
Posts: 2267
|
|
Re: Goin Solo?
« Reply #12 on: Mar 5th, 2004, 4:52pm » |
Quote Modify
|
Hey omg I just got it...I got it I remember hang on it's coming to me....
ORGASMS!!! .....preferably lots of them cos it's always good to stock up never know when you might need one....
oh and btw...I think we'd rather not know how you get on...
|
|
IP Logged |
My own tears would mean nothing to me, if I could stop you from just shedding one....
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Goin Solo?
« Reply #13 on: Mar 5th, 2004, 4:55pm » |
Quote Modify
|
LOL. ORGASMS? Yeah well don't tellBrian. (psst he is ready to commit me to the nunnery ).
You are only 34. I'm almost 44 - and ta tell ya the trewth, shweety, these days i'm more preoccupied with peeing in my pants than examining brian's
Yes. It SUX gettin older and ....................er...........whatnot. 
|
|
IP Logged |
|
|
|
cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
Gender:
Posts: 2267
|
|
Re: Goin Solo?
« Reply #14 on: Mar 5th, 2004, 5:01pm » |
Quote Modify
|
actually sweetie im 38 but whats 4 years between nuns lmao....
Hey they have a new product over here called Tena Lady just for that problem, means you can, walk, run and even jump and here's the best bit, you can pee while you do it all.....  not that i'd know anything about those sorts of things you understand....
|
|
IP Logged |
My own tears would mean nothing to me, if I could stop you from just shedding one....
|
|
|
echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
Gender:
Posts: 4214
|
|
Re: Goin Solo?
« Reply #15 on: Mar 5th, 2004, 5:02pm » |
Quote Modify
|
on Mar 5th, 2004, 4:55pm, kim wrote: i'm more preoccupied with peeing in my pants than examining brian's
) |
|
At least you have a hobby.
|
| « Last Edit: Mar 5th, 2004, 5:02pm by echo » |
IP Logged |
"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
|
|
|
Melissa
Guest
|
I went through my 2000 cycle without any meds. It was hot scalding showers, gallons of coffee, O2 and dramamine that got me through. It can be scary, but you can get through it! Clusters will NOT kill you, just keep remembering that.
|
|
IP Logged |
|
|
|
sherryberry
New Board Newbie
Living and Loving it!
Gender:
Posts: 39
|
|
Re: Goin Solo?
« Reply #17 on: Mar 8th, 2004, 5:52pm » |
Quote Modify
|
Kim, miss ya. Love ya.
Hot shower, hot black coffee, ice packs.
It will get you through it....
and honey, ORGASMS, they DO work if only for a few minutes and I am 42 goin' on 43. It's not easy to achieve and it might be easier if you try it on your own... didn't Elaine and a few others give their approval to the "rabbit" LOL!! Hey, I'm gettin' one!
But truly, the only other thing I can suggest, which helped me a few times, is a tiny bit of tabasco up the nose (I applied it with my little finger) and/or ice packs on the bottoms of your feet.
We are the survivors. Those of us who could not get help medically and still had to raise our children. We found ways to do it and you will again.
Love you Kim, my twin in clusters.
I'm moving back east around May... some time while I'm there, we must meet somehow....
Sherry
Been entertaining the beast since feb 26th
|
|
IP Logged |
Happiness is a choice. Choose wisely.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss