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1MajorPain
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Strange but True!
« on: Feb 17th, 2004, 5:07pm » |
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My mother had an appointment today with the same neuro as I go to. He noticed that we have the same name and asked if we were related and of course she said yes...he then said he treats 5 episodic cluster patients and oddly enough all of them had been in within the last week...I remember him telling me this before many years ago. Anybody else ever heard of this? Just wondering.
Major
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echo
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Re: Strange but True!
« Reply #1 on: Feb 17th, 2004, 5:18pm » |
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My neuro has said that from time to time. Changes in season, temperature and pressure he feels brings us in.
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Charlie
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Re: Strange but True!
« Reply #2 on: Feb 17th, 2004, 6:49pm » |
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The one I went to years ago said much the same. Not much they could do back in the middle ages...when I got mine.. painting myself blue and worshipping trees was all there was.
Keep after him Major.
Charlie
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don
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Sure, clusters are seasonal.
my Doc gets all his cluster calls in spring and fall.
Charlie next time listen to the cpmplete instrutions from the Pagan Shaman.
It's paint yourself blue and dangle from a cyprus tree.
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| « Last Edit: Feb 17th, 2004, 6:55pm by don » |
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BlueMeanie
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Yep. Episodics are seasonal.
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Kirk
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Re: Strange but True!
« Reply #5 on: Feb 17th, 2004, 7:01pm » |
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Just wondering which season all us chronics are in. Doesn't feel like spring to me.
TTFN 
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Prense
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Re: Strange but True!
« Reply #6 on: Feb 17th, 2004, 8:14pm » |
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on Feb 17th, 2004, 7:01pm, Kirk wrote:| Just wondering which season all us chronics are in. Doesn't feel like spring to me. |
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Heh...we got nothing to look forward to.
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bobkip
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Re: Strange but True!
« Reply #7 on: Feb 17th, 2004, 8:21pm » |
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Episodics seasonal? Oh sure, dammit, I get mine spring ,summer, autumn and winter. I think my beast just doesn't recognise any seasssons.
Kip
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Cerberus
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Re: Strange but True!
« Reply #8 on: Feb 17th, 2004, 8:25pm » |
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The Neuro I was sent to woulda done well to realize his Balls were a matched pair........let alone any correlation between anything else.
Ramon
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justasound
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Re: Strange but True!
« Reply #9 on: Feb 17th, 2004, 8:32pm » |
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Quote:| The Neuro I was sent to woulda done well to realize his Balls were a matched pair |
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lmfao
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justasound
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Re: Strange but True!
« Reply #10 on: Feb 17th, 2004, 8:34pm » |
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Perhaps the seasonal occurance of ch in episodic sufferers is why mine went diagnosed as sinus related with no relief for so long.
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Kevin_M
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Re: Strange but True!
« Reply #11 on: Feb 17th, 2004, 8:38pm » |
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Damn CHers, it's always something. What next, a cure?
AAAAAHHAAHAAHAAHAAHAAHAA...
Kevin M
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don
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Quote:| Perhaps the seasonal occurance of ch in episodic sufferers is why mine went diagnosed as sinus related with no relief for so long. |
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Its more likely that the Doc who did the diagnosing was a distant relative of Ramon's Doc. Did he mention getting all your teeth pulled?
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eyes_afire
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Re: Strange but True!
« Reply #13 on: Feb 17th, 2004, 11:31pm » |
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According to the Cluster Survey:
Episodic cycles normally start
Spring (Mar-May) 1637 13%
Summer (Jun-Aug) 1100 9%
Fall (Sep-Nov) 1888 15%
Winter (Dec-Feb) 942 7%
Randomly 4206 34%
(don't know why those percentages add up to 78%)
Maybe I'm mistaken, but I don't see seasonality. Has everyone taken the survey?
Add up spring and fall (half the months of the year) and ya get 28%... not even close to half the clusterheads. That's not even a plurality. To demonstrate seasonalilty, that number's gonna have to be WAY over 50%.
I'm convinced CH is cyclical, but I'm not convinced it's seasonal.
Am I missing something?
--- Steve
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| « Last Edit: Feb 17th, 2004, 11:35pm by eyes_afire » |
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Mr. Happy
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Re: Strange but True!
« Reply #14 on: Feb 18th, 2004, 7:52am » |
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on Feb 17th, 2004, 11:31pm, eyes_afire wrote:| According to the Cluster Survey: |
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We're fucked
Quote:Maybe I'm mistaken, but I don't see seasonality. Has everyone taken the survey?
Add up spring and fall (half the months of the year) and ya get 28%... not even close to half the clusterheads. That's not even a plurality. To demonstrate seasonalilty, that number's gonna have to be WAY over 50%.
I'm convinced CH is cyclical, but I'm not convinced it's seasonal.
Am I missing something? |
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Absolutely. We need to get with the program. The medical information is IN, and apparently we aren't paying proper attention to when we allow our cycles to operate:
Excerpted from the DevCon03 report.....
It has been observed, on an OVERALL plotting of CH sufferers that there is a circannual periodicity in CH. They have shown that overall, sufferers (episodics in cycle, or chronics) will suffer a CH attack 2 weeks after the longest day of the year, and 2 weeks after the shortest day of the year. This was observed by Dr. Kudrow after plotting ALL his patients’ attacks. Individuals will vary obviously, but overall, this has been shown to be true.
Must be something in the bandwidth,
RJ
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| « Last Edit: Feb 18th, 2004, 7:54am by Mr. Happy » |
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aprilbee
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Re: Strange but True!
« Reply #15 on: Feb 18th, 2004, 8:59am » |
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on Feb 17th, 2004, 8:21pm, bobkip wrote:Episodics seasonal? Oh sure, dammit, I get mine spring ,summer, autumn and winter. I think my beast just doesn't recognise any seasssons.
Kip |
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Mine too!! Hey, I see a trend starting! 
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forgetfulnot
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Quote:| and 2 weeks after the shortest day of the year |
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Hmmm, for the five years I have kept the beast in his bottle. This year, mid January he broke out and none of my preventatives are working. So for this year anyway the above statement is true.
Lee
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echo
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Re: Strange but True!
« Reply #17 on: Feb 18th, 2004, 12:45pm » |
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on Feb 17th, 2004, 6:52pm, don wrote:
It's paint yourself blue and dangle from a cyprus tree. |
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I thought it was
Scratch you bald, paint your butt blue and mail you to Guam.
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Thorns
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Re: Strange but True!
« Reply #18 on: Feb 18th, 2004, 4:36pm » |
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I blame the good ol' government  . I usually get two cycles a year and they generally hit right after the daylight savings time change. Their little experiment needs to stop in my opinion or maybe I need to move to Southbend, IN. Anyone there with CH?
Thorns
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manana
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Re: Strange but True!
« Reply #19 on: Feb 18th, 2004, 4:46pm » |
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I usually get two cycles a year and they generally hit right after the daylight savings time change. Their little experiment needs to stop in my opinion or maybe I need to move to Southbend, IN. Anyone there with CH?
Thorns [/quote]
I live close enough to be considered within "the region". I live right on the dividing line between "slow time" and "fast time".
Time doesn't mater when it happens does it?
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eyes_afire
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Re: Strange but True!
« Reply #20 on: Feb 18th, 2004, 6:40pm » |
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Okay, photoperiod. I won't write it off.
Quote:| Absolutely. We need to get with the program. The medical information is IN, and apparently we aren't paying proper attention to when we allow our cycles to operate |
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Do we have access to this information (not the summary)?
You know I am skeptical of the stuff Dr Bigal was saying about latitude (especially because of potential 'sociological bias'). It would be kinda nice if he was correct because then maybe someone can develop a light therapy regiment that may help. Time is god.
Yeah, I know I'm an iconclastic bastard. Glad I'm not living 10 years ago otherwise I'd have to have hazel eyes (sorry, a bad joke).
--- Steve, the nail that sticks up...
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Tim_w
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Re: Strange but True!
« Reply #21 on: Feb 19th, 2004, 8:38pm » |
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on Feb 17th, 2004, 8:41pm, don wrote:
Its more likely that the Doc who did the diagnosing was a distant relative of Ramon's Doc. Did he mention getting all your teeth pulled? |
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Been there done that did not work 
TimW Happy Pappy
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Peppermint
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Re: Strange but True!
« Reply #22 on: Feb 20th, 2004, 9:11am » |
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on Feb 18th, 2004, 6:40pm, eyes_afire wrote:
You know I am skeptical of the stuff Dr Bigal was saying about latitude (especially because of potential 'sociological bias'). |
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Steve... I'd love to hear more about your sociological bias viewpoint. I tend to think there may be some unknown factors that could potentially feed into either side, pro or con.
Quote:| Yeah, I know I'm an iconclastic bastard. --- Steve, the nail that sticks up... |
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Thank goodness for bastards like you man - a true precis requires including fine detail. You want the right answer, not the answer that sounds right.
Rock on Steve.
Pep
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Charlie
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Re: Strange but True!
« Reply #23 on: Feb 20th, 2004, 11:21pm » |
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Wow.
From here, the latitude effect seems to have withered on the vine but then I'm not the best at being up to speed. I was at the meeting too and as much sense as it made then, I haven't heard much.
Charlie
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stevegeebe
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Re: Strange but True!
« Reply #24 on: Feb 21st, 2004, 7:51am » |
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For me, the beast attacks precisely at the point in the earths orbit, equidistant between perihelion and aphelion.
It could also be the Easter Bunny and/or the Great Pumpkin...I don't know. I'm still working on it.
Spring and Fall for me....?
Steve G, the nail that also sticks up only to be hammered back into place.
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