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Topic: hello again (Read 526 times) |
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renny
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 hi y'all again. I just want to say thanx for the warm welcome as I am new to board and it has made things easier seeing how many of you are out there...why is that? Misery loves company or what....Am trying to decipher this forum, have a mtg place and date been arranged in the DFW area? Maybe I missed it...anyway you guys have made me laugh out loud and given me so much more info...I am in day 3 of what will probably be 2 week period if history is any guide. Also I know to stay away from alcohol while in episode but to tell you the truth a glass of wine after Imitrex does help me sleep at least until the next beast, some of you wrote about rebound H's from trex, could you please tell me more? Also, those of you on Oxygen regime...do you smoke as a rule? (not with therapy-obviously)
Again I'm so glad I found you. Keeping me away from the BAD thoughts just realizing others are and can cope.
Re superbowl halftime...I thought I was nuts because no one else in room saw what I saw....they all said it was my meds, not knowing Imitrex is not pain-killer, sometimes its so draining even trying to explain clusters nevermind treatment! Another reason I'm happy to be here!!!
God bless all. And God Damn the beast!
Karen
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tell me...did the wind sweep you off a' your feet...
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ave
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Re: hello again
« Reply #1 on: Feb 3rd, 2004, 4:01am » |
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Hi,
I used to smoke on a regular basis - just not around the oxy bottle!
Bob Kip, inventor of the Kip scale, used to smoke as well (maybe still does, I don't know).
So, no, smoking does not preclude profiting from oxygen therapy.
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benj
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Re: hello again
« Reply #2 on: Feb 3rd, 2004, 8:06am » |
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hi Karen,
good idea not smoking around the O2 bottle! 
I have only recently heard of the rebound headaches myself. My understanding is that the theory goes like this:
you are meant to get the pain. If you take sumatriptans (or any other abortives) then all you are doing is making that pain stay at bay. Then when the drugs cool off, the pain returns (because, remember, you are meant to get the pain!)
As I said, I've only recently heard this theory myself and personally think it's a big crock. I think that something is making muscles (and other things) spasm periodically, and that taking meds helps you, me, US, out through this horrific time. I don't believe that there is a magical pain-waiting-room, where the beast goes to read GQ before coming to get you again!!!! 
I too am off grog. Sobriety for me is an alarming place - I don't know how you guys do it!
at least you only have two weeks of this.
stay safe - keep us posted on how you are...
ben
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I don't think of all the misery, but of all the beauty that still remains - Anne Frank
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mikeyd
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Re: hello again
« Reply #3 on: Feb 3rd, 2004, 9:33am » |
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Welcome Karen,
Enjoy the stay. Glad U found us, I'm out of cycle, but periodically drop in for support and a howdy...so Howdy!
Two weeks huh? I wish! My last one was 12 weeks, but thank God for all these great people here and all the good info. I got a good handle on these lil babies by finding what worked for me. O2 is the best, which took me 7 years to get a perscription for it and I have to pay for it myself. It doesn't make sense that the insurance will pay for $1500 worth of meds per month, but not $65 for a 5 foot cylinder of O2 which would save them probably $1000/month and a few trips to emergency for the O2 there....dumbasses!
I also use a combination of verapamil and migranol nasal spray (aka-DHE). This last cycle I only had maybe 10 bad ones instead of over 100 like the old days when I first started getting them and didn't know what they were.
I hope you get well soon and I would like to thank everyone at CH.com for being such great supporters!
Hugz~ 
Mikeyd
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Waging war with the beast is tiresome & painful but never boring ;-D
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fubar
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Re: hello again
« Reply #4 on: Feb 3rd, 2004, 11:53am » |
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Rebound headaches are quite real. Many of the sufferers here have been through it.
Click here for a rebound headache story
excerpt:
"According to the report on 20/20, what happens when a headache sufferer takes multiple doses of pain relievers is a vicious cycle. The medicine causes the pain centers in the brain to become hypersenstive so that, when the medicine wears off, they flare up immediately causing the sufferer to take more medicine, which in turn makes the pain centers more sensitive, which.... As the study defined "multiple doses" as taking medicine "more than 2 to 3 days a week," it is not a large leap to assume that I had succeeded in totally messing up my pain centers."
more info
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"He who has a why to live for can bear almost any how." -- Friedrich Nietzsche
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mediccpc
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Re: hello again
« Reply #5 on: Feb 3rd, 2004, 4:05pm » |
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I to would be interested in the DFW dates. I live in Fort Worth.
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BlueMeanie
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Welcome Renny,
On the rebound thingy.
If I let the Beast have me without meds. Only if I DON'T HAVE ANY, I will have to spend 3hrs. with the Beast kicking my ass KIP10. The ONLY thing good about that is it won't come back for another 12 hrs. If I use Imitrex & rid the Beast in 15-20 minutes never having to get to that KIP10. It will return within 3-5 hrs. but NO KIP10's as long as I keep aborting. I'll take 5 lower KIP attacks anyday then to deal with a KIP10 for 3 hrs. That's just me though.
The info for the Texas Meet & Greet is on another post. It's Feb. 28th.
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Ann
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Re: hello again
« Reply #7 on: Feb 3rd, 2004, 5:38pm » |
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Hey Renny welcome!
I don't know about rebound headaches...my neuro says no and he's God...so you know..I believe him! 
One thing I noticed, I get hit more often when I'm taking imitrex. Last cycle. I used oxygen. Like MikeyD it took a long time for me to get a script. But I wouldn't go back now. It was the shortest cycle I have ever had!! I would use the trex only when the oxygen didn't do the trick. I'm convinced that I would still be getting hit today if I had not started using O2.
just my 2 cents worth
Good luck
hugs
Ann
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thomas
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on Feb 3rd, 2004, 5:38pm, Ann wrote:| One thing I noticed, I get hit more often when I'm taking imitrex. |
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I think that's called rebound headache...... not bashing, please believe me here.
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magman
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Re: hello again
« Reply #9 on: Feb 3rd, 2004, 5:55pm » |
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Welcome Renny,
Sorry you had to find us, but so glad you did. These people are wonderful and truly life savers.
As for rebouds....they truly do exist. Fubar probably said it best.
As i was diag'd as having meegraines, they were treating me with all sorts of pain meds. Started w/Tylenol3-codeine all the way up to darvon over a period of 15 yrs.
Each year I needed stronger meds to kill the pain. They took awhile to work after getting hit but eventually the pain was gone. But several hours later, the Beast returned with a vengance. As he beat me harder, I would take more meds. Viciouse cycle.
And now, my resistance to pain meds is so high that the docs think I am a 'druggie' when i tell em that oxycontin is the only thing that kills pain and DOES NOT cause a rebound.
Peace,
dan
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Ann
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Re: hello again
« Reply #10 on: Feb 3rd, 2004, 5:56pm » |
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Bash away Thomas! LMAO
I don't think they were rebound headaches. Instead of getting hit 2 or 3 times a day I would get hit 5 or 6 times and instead of having a 3 or 4 week cycle I had become chronic. I consider a rebound headache to be one that occurs 2 hours after an injection. You know, when there isn't anymore imitrex left in your system? I've had that happen to me too. I prefer oxygen...it's not harmful to my body.
What do you consider a rebound headache Thomas?
hugs
Ann
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thomas
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the half life of imitrex is 2.5 hours......... so you still have 1/4 of the imitrex you used after 5 hours in your system.... I consider any headache caused by an abortive med to be a re-bound headache........ I get hit half as much with zomig or amerge, than I did with imitrex....... you said yourself you got hit more when using it....... some people can ONLY use it........ but personally I'll try to never use it again. Again, I'm not trying to piss you off, I'm trying to help 
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Patrick_A
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Re: hello again
« Reply #12 on: Feb 4th, 2004, 12:29am » |
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I have been preaching the Imitrex rebound theory for 3 years. I have taken Imitrex since 1997. I have absolutely no doubt in my mind that Imitrex causes rebounds. I could care less if 10 Neuros told me that wasnt true. WTF do they know?
Patrick
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renny
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Re: hello again
« Reply #13 on: Feb 4th, 2004, 1:22am » |
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Thanx to all for answers, ideas, suggestions...just went a whole day with no hits...did sleep more than 12 hrs after 3 biggies yesterday...coincidence? In reality I know they are lurking, probably waiting for me to go back to work on Friday...(I am gate agent for airline so I deal with various-er-crap all day long on my feet, there is nowhere to hide) BTW how do y'all deal with this in tour professional life? Do you inform people who need to know up front or just wait til it happens OTJ and let them think you are full blown nuts?! Also...As I bet some of you can tell I am Knew to computer so it takes me longer to locate things and reply, I will eventually work it out! On that note, I understand Dallas meet to be Feb 28th @ Renaissance Hotel...time? All day? t'anx again....and, lastly, when one is reading replys how do you respond individually to that person while reading said reply? Is there something on screen I am missing? Do not see post reply til end of msgs...though I know it must be there somewhere. Help! and keep the faith all of you. Karen, who is no longer alone
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thomas
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on Feb 4th, 2004, 1:22am, RENNY wrote:| I understand Dallas meet to be Feb 28th @ Renaissance Hotel...time? All day? |
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It better be all weekend, unless those Texans want to be made fun of forever, a one-day meet and greet?
There should be a "reply" button to push at the bottom right of all messages, just hit that and you will be given a blank screen to write your reply in.
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| « Last Edit: Feb 4th, 2004, 8:42am by thomas » |
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floridian
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Quote:| you are meant to get the pain. If you take sumatriptans (or any other abortives) then all you are doing is making that pain stay at bay. Then when the drugs cool off, the pain returns (because, remember, you are meant to get the pain!) |
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Have to agree with benj on part of this theory: We are not meant to have the pain. The pain occurs because things are out of whack somehow. Triptans block a headache without improving the underlying problem much - allowing the pain to return another day. A rebound effect is real for many treatments - but as a side effect of the medicine (withdrawal, or tolerance, or toxicity). There's every reason to believe that a better medicine wouldn't have rebounds - it could block the pain without causing any side effects. And someday, there will be a treatment that effectively gets at the underlying problems.
We are not meant to have the pain.
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| « Last Edit: Feb 4th, 2004, 9:57am by floridian » |
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Patrick_A
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Re: hello again
« Reply #16 on: Feb 4th, 2004, 11:51am » |
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Ok, I am going to try to give an explanation of what i call a rebound headache, and why i think it is exactly that.
I started having CH's at the age of 16. Never had any meds until the age of 37. In all of those years, I rarely had more than 1 CH a day, and they always came about 2 hours after work. I have worked all 3 shifts in my life, and it was always the same. 1st shift, i would get a CH about 6pm everyday. 2nd shift, i would get it about 2am when i was asleep. 3rd shift, i would get it about 10am also when i was asleep.
Now about the rebound theory, I was officially diagnosed in 1997, and was given Imitrex to abort the CH. It did a wonderful job of stopping the CH's, but i began to notice that i would start getting the CH's away from my usual times. I also started getting CH's 3 to 5 times daily, but only when i was taking the Imitrex. Coincidence? I don't think so!
I started taking notes during my last 2 cycles, and i realized that the more imitrex i took, the more CH's i got and they also seemed more severe. I rarely got Kip 10's before, but when i started taking Imitrex, I started getting Kip 10's on a regular basis.
I am not suggesting that people should throw away their Imitrex. Sheeeeit, I still take Imitrex. It is almost impossible to not reach for some kind of pain relief, even when you are just in a Kip7. Its just that old "Damned if you do, and Damned if you dont" thing.
My 2 cents, Patrick
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mikeyd
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Re: hello again
« Reply #17 on: Feb 4th, 2004, 1:15pm » |
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Hello again Karen,
If you want to reply to a specific post(person), click on their name in the top right corner of the message and it will take you to a page that shows you a map with a pin in it to show you where they live(if they have selected that option), below the map is a link to send a message to that person or add them to your buddylist. That will send them a private message that will not be posted on the main message board. If you want to post a message on the main message board for that string, then you will have to scroll to the bottom of the messages and use the reply link.
Hope that is helpful girl!
Mikeyd
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Waging war with the beast is tiresome & painful but never boring ;-D
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