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renny
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guess what subject might be
« on: Feb 1st, 2004, 3:48am » |
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hello anyone who might be there. I've had these miserable beasts since I was 17, but not continuously thank SOMEONE! Mine started almost a year to the day after a car accident in which I suffered some head trauma...on opposite side of head....at any rate they only occurred in periodic episodes and were initially seriously death threatening scary, ie, no drs could find cause, I was gonna die from unexplained anuerism, etc...after numerous tests like y'all have had cluster beasts were diagnosed. They almost became extinct then rose their filthy heads again 3 yrs ago after lying dormant for 24 yrs, I'll save you the math, I'm 42 now.Last years episodes were the most horrid,excruciating, kill me now pain situations I literally was ready to end it, I couldn't believe they were back and I instinctively knew how bad it was gonna be even after all these years...so I got on Imitrex and truly it saved my life. Two months later the imitrex started to slay the beast...I thought he was dead but I guess not...I am really really pissed. Forgive the language ...the only thing different in my life besides the usual stress of job, family and just trying is I have been eating frozen dinners, 3 this past week...know they are filled w/msg...could this be it? For those of you who haven't tried it, Imitrex works...if you can catch it soon enough. This particular monster has been showing his colors for the past 2 days, I was trying to ignore him and make him leave but he got me on my way home from work 3 hrs ago, he is subdued but like y'all know he will awaken me 1 hour after I go to bed...ya know, just writing this HAS to help!!! So. Thanx for listening. I will be here for duration, I feel for everyone and hope somehow we can beat this!!! Karen
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tell me...did the wind sweep you off a' your feet...
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thomas
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Re: guess what subject might be
« Reply #1 on: Feb 1st, 2004, 3:51am » |
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WElcome aboard, is your doctor willing to try other meds besides imitrex, that could explain why your cylce may be lasting longer......... just food for thought.
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renny
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Re: guess what subject might be
« Reply #2 on: Feb 1st, 2004, 4:11am » |
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actaully, I am so disheartened w/ my dr I do what makes sense to me and works at this point
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tell me...did the wind sweep you off a' your feet...
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renny
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Re: guess what subject might be
« Reply #3 on: Feb 1st, 2004, 4:25am » |
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just so I know....keep getting pop ups that say I am not member...have filled out forms...am I on board or not???
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tell me...did the wind sweep you off a' your feet...
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Kirk
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Re: guess what subject might be
« Reply #4 on: Feb 1st, 2004, 8:14am » |
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I have not had any reaction to MSG or other food additives. I can detox off them or eat them. Makes no nevermind to the beast.
Like others here, I would suggest you investigate O2. Or rather I urge you to get O2. No thats not right either. Get some O2 NOW!.
TTFN 
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Giovanni
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Re: guess what subject might be
« Reply #5 on: Feb 1st, 2004, 8:46am » |
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Hi Karen,
Many of us have had luck with verapamil as a preventative. This usually takes awhile to get into your system and start working in dosages of 240 and up. Also, look up the links with melatonin as it has helped in some way about 50% of us. O2 in the configuration suggested to the left would be a good addition to the imitrex as to limited the quantities of imitrex. Some believe here that imitrex will prolong your cycle.
We wish you a speedy end to your cycle. Best of luck.
John
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Melissa
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Re: guess what subject might be
« Reply #6 on: Feb 1st, 2004, 8:46am » |
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MSG can be a trigger for the attacks, but not the cause. Please click on this link: http://www.clusterheadaches.org for more information. I am glad you have found imitrex. Some, unfortunately, cannot take trex because of heart and BP problems. Anyhow, I'm very sorry to hear you suffer from clusters, but this is the best place to be for your condition.
take care,
 mel
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Renee
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Re: guess what subject might be
« Reply #7 on: Feb 1st, 2004, 10:35am » |
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Karen,
We are having a cluster meet & greet on feb 28 in Dallas. Since you live in the metroplex and are new this your new ch family, I strongly urge you to come to the meet & greet. Many, including myself, have never met another clusterhead in person but I hear it is an awesome gathering of love, understanding and compassion.
Please check out the Texas Meet and Greet post and email me with any other questions.
email: txcowgirl0830@aol.com
pf2all
renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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TxBasslady
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Re: guess what subject might be
« Reply #8 on: Feb 1st, 2004, 11:01am » |
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Hi Karen,
Welcome to the board.
Hope the beast lets you get some rest today.
Check out the links to the left. You will find tons of info there. Also, reading the previous threads, you can see what combo of meds work for most here. Keep in mind that not all meds work the same for all.
Come to the TEXAS MEET & GREET on Feb. 28. You will have the time of your life!
THERE'S NOTHING LIKE MEETING ANOTHER CLUSTERHEAD!!!!!!!!!
Best of luck to ya, and sending you pf vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Charlie
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Re: guess what subject might be
« Reply #9 on: Feb 1st, 2004, 3:36pm » |
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Hi Karen and welcome to our madhouse. Lots of good stuff and support here.
Quote:| They almost became extinct then rose their filthy heads again 3 yrs ago after lying dormant for 24 yrs |
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Don't say this...... I'm going on 13 years dormant.
Quote:| I have been eating frozen dinners, 3 this past week...know they are filled w/msg...could this be it? |
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Aaaarrggghh.....Don't say this either. I'd be dead without my plastic frozen dinners with spices of mass indigestion.
Good luck and let us know how you're getting along.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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