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Topic: Greetings (Read 286 times) |
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LouisJ
New Board Newbie
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Posts: 5
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Hello, I've been an irregular reader of this board for some time, but never became a member. I decided to join now to help my nieces through their headaches.
I've had cluster headache for approximately 12 years now. It's been under control for about 7 when my doctor and I found that Verapamil (Calan) works for me. I am currently in a cycle. I normally start out taking 480mg daily for about 3 days and work it down to 240mg daily. My cycle usually lasts 5-7 weeks.
I just found out that 2 of my nieces ages 15 and 23 are like me. The older one has migraines but the younger one has cluster headaches. I directed them to this site and hopefully they will get something out of this site like I have.
--Louis
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Getting by
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magman
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I love YaBB 1G - SP1!
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Posts: 6
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Re: Greetings
« Reply #1 on: Jan 29th, 2004, 1:31pm » |
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Welcome Louis,
Sorry you had to find this site but glad to have you aboard [a statement i'm sure you have repeated many times already].
A recent newcomer myself, it has opened my eyes to 'what' I am actually afflicted with, and made it a whole lot easier to deal with.
In the short time i have been here I have found support and caring, a wealth of information, and the strentgh to dump my egotistical Neuro and find one that will listen and help. Not to metion becomng pain-free for almost 2 weeks now.
Read, research, ask questions. There is always someone on-line to respond.
Peace and wishing you PFDAN,
-dan
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thomas
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on Jan 29th, 2004, 1:31pm, 357Mag wrote:Welcome Louis,
Sorry you had to find this site but glad to have you aboard [a statement i'm sure you have repeated many times already].
A recent newcomer myself, it has opened my eyes to 'what' I am actually afflicted with, and made it a whole lot easier to deal with.
In the short time i have been here I have found support and caring, a wealth of information, and the strentgh to dump my egotistical Neuro and find one that will listen and help. Not to metion becomng pain-free for almost 2 weeks now.
Read, research, ask questions. There is always someone on-line to respond.
Peace and wishing you PFDAN,
-dan |
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I can't add a damn thing to that.......... perfect.
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JDH
CH.com Alumnus
New Board Hall of Famer
We will get by, We will survive!
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Re: Greetings
« Reply #3 on: Jan 29th, 2004, 2:00pm » |
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Welcome home Louis.
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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aprilbee
CH.com Alumnus
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Ain't I a stinkah!!
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Re: Greetings
« Reply #4 on: Jan 29th, 2004, 2:18pm » |
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Welcome! and also welcome to your nieces...my 10 year old daughter has migraines, its tough on the kiddos.
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TxBasslady
CH.com Alumnus
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Bass fishin' is a h00t It's the catchin' that sux
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Re: Greetings
« Reply #5 on: Jan 30th, 2004, 12:40am » |
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What a shame 
Just cannot imagine WHY a child has to suffer with this.
Welcome, Louis........and I am so very sorry.
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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The_Kid
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
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Re: Greetings
« Reply #6 on: Jan 31st, 2004, 2:25am » |
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Louis i'm glad that verapimil works for you, i don't have your luck. I feel for your nicies. I had migrians untill i was 14 and then they became CHs. Imetrix and maxalt have worked best for my migrians as for the clusters... well pray for your 15 year old neice. Best of luck. One person in a family is enough three must be hell. I've found both help and a home here i hope that both you and your nicies can do the same.
Wellcome and goodluck to all of you.
>The Kid.
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Callico
New Board Hall of Famer
Proud Dad of a US Marine!
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Re: Greetings
« Reply #7 on: Jan 31st, 2004, 2:37am » |
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Welcome to your new virtual home! 
Glad you finally joined. See Cootie for your seat assignment and oar.
Glad too that you directed your niece here. We are here to help.
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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