Author |
Topic: Nortriptyline (Read 371 times) |
|
phishphan
New Board Newbie
Dont eat that one....
Gender: 
Posts: 31
|
 |
Nortriptyline
« on: Jan 26th, 2004, 1:46pm » |
 Quote  Modify
|
anyone ever heard of using this??
I have been taking verapamil and have achieved some relief with 480mgs a day. I told the doctor that I needed more releief so he wants to take me off verapamil and put me on this nortriptyline..
Any advice??
|
|
 IP Logged |
If the thunder dont getcha...then the lightning will!!!
|
|
|
thomas
Guest
|
Sorry, no experience here...........
|
|
IP Logged |
|
|
|
forgetfulnot
Guest
|
Stick with the verap, there is no reason I know of that would keep you from taking both, I have.
Lee
|
|
IP Logged |
|
|
|
kissmyglass
CH.com Alumnus
New Board Hall of Famer
Don't Mix Triptans
Gender:
Posts: 1398
|
|
Re: Nortriptyline
« Reply #4 on: Jan 26th, 2004, 5:19pm » |
Quote Modify
|
Stay with the verap & hell the doc you want to add Lithium....Works miracles for my chronic head....
480mg Verap & 600 mg Lith is what I use. an Imitrex shot once in a while (instead of 2-4 a day) & I'm kicking the beasts ass....Hope I didn't just jinx myself.....
Kev
|
|
IP Logged |
"It does so fucking look like her" - Picasso
[img][/img]
|
|
|
jonny
Guest
|
on Jan 26th, 2004, 5:19pm, kissmyglass wrote:Stay with the verap & hell the doc you want to add Lithium....Works miracles for my chronic head....
480mg Verap & 600 mg Lith is what I use. an Imitrex shot once in a while (instead of 2-4 a day) & I'm kicking the beasts ass....Hope I didn't just jinx myself..... |
|
Yeah!!!....What he said!!!
Then get your fucking ass to church.....LMMFAO 
....................jonny
|
|
IP Logged |
|
|
|
Cerberus
New Board Hall of Famer
Whomever said that two heads are better than one?
Gender:
Posts: 2117
|
|
Re: Nortriptyline
« Reply #6 on: Jan 26th, 2004, 8:48pm » |
Quote Modify
|
The Reason for the Nortryptiline Rx is because (although it is generally an anti-depressant) It is supposed to be a pain blocker when levels are high enough.
Been there and Done that, those of you who have survived Amytriptiline know the results, as they are sister to each other just delivered differently (Nortryptiline being the stronger of the two)
Unfortunately (at least in my case) having been on Both (Nor). and (Amyt.) the results were equally as equal. TOO Zombified after one dose to realize the benefits. The Nortryptiline version has slightly lesser of an immediate drowsiness effect, but, I still felt detatched and sluggish most of the time.
Verap. and Nortryptiline, basically you run a higher risk of lowering your BP too far. And the pain blocking properties are suspect. A friend of mine with C.R.I.P.S. and onother with Fibromyalgia were put on it for the pain blocking reason, and both claim it didn't do squat to ease thier discomfort. I suspect, it will do little to ease your suffering from CH. But then again, it might, no two people are alike ya know.
Just my experience with them,
Ramon
|
|
IP Logged |
I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: Nortriptyline
« Reply #7 on: Jan 26th, 2004, 9:20pm » |
Quote Modify
|
Yeah, my doc likes it, I don't. He doles it out to me as his idea of a preventative. 100mg at 6:00pm, 125mg at bedtime. Suppose to help with the headaches at night.
Well, when the cycle starts, it has a small affect. When CH hits stride, forget it. When the cycle gets well through doing what it wants to do and is on the downside, letting up, then again it does a little.
Being that this is the only preventative he has been prescribing, I am going to a new headache clinic. Appointment Feb 6, to get things changed around, new ideas.
This cycle which is concluding, soon I hope, I just stopped taking them. I get the script filled so the insurance can't say I am neglecting to take my meds and has an excuse to say they are not going to cover my abortives because I am causing my own problems by not following doc's advise.
I think what I was taking was a lot of nortrip, in the form of the name called Pamelor. I know CH is tough and perhaps can't expect much better from preventatives, but I've read people here who fair better than I have been while using prevens other than nortrips. Getting new advice with appointment from the doc who is the medical director of the institute. I'm done with half ass advice, these last two cycles have been the worst. The lack of sleep makes me less tolerant at work, nonetheless I'm doing good there.
So if it works for you, maybe it will, I'd be happy for you, but I'm moving on from nortrips. Oh, and kiss your sex life goodbye usin' em. My neuro put me on Paxil and Depakote that did the same thing and didn't work at all for me.
Try it out, see if it helps, maybe at first it will. But if it doesn't, don't stop looking. My doc seems to think they should work for some reason, perhaps because he read somewhere it should, but I've had some pretty bad cycles using them.
Kevin M
|
|
IP Logged |
|
|
|
Edski_1
New Board Veteran
All the years combine...they melt into a dream...
Gender:
Posts: 197
|
|
Re: Nortriptyline
« Reply #8 on: Jan 26th, 2004, 9:38pm » |
Quote Modify
|
fishfan, I've posted this before, but I'll post it again...othrs have enjoyed the link 
http://www.future-drugs.com/Iparticle.asp?publicationid=4&articleid= 286
I think it's from late November 2002, so it's not to old. Several statements in it are worth note: "polypharmacy is not discouraged and extremely high dosages of medications are normally needed" is one of the most striking. It might not be this article, but somewhere along the line I remember reading that cluster patients usually tolerate very high doseages of meds...some unusal sets of paramets we have it seems 
On the surface, it would sound like a better idea to add the nortriptyline to the verapamil rather than discontinue the verapamil...I'm not a doctor but I can read what a doctor has writen inthe medical journals! 
|
|
IP Logged |
This is the mystery of the quotient; upon us all a little rain must fall...
|
|
|
Wifeofchman
New Board Newbie
Gender: 
Posts: 33
|
|
Re: Nortriptyline
« Reply #9 on: Jan 27th, 2004, 8:34am » |
Quote Modify
|
There's alot of discussion about using anti-depressants as deterents for CH.
|
|
IP Logged |
TTYL,
Carrie
Wife of CH Sufferer
|
|
|
don
Guest
|
Quote:| On the surface, it would sound like a better idea to add the nortriptyline to the verapamil |
|
Thats makes a ton of sense rather than discontinue a medication that is already proven effective.
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss