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Alan12
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How to get Oxygen in UK
« on: Jan 25th, 2004, 3:13pm »
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Are there any members in the UK - or South Wales -  who have found a source of oxygen? I asked my doctor and he just laughed.....we don't prescribe oxygen for (mere) headaches. Tried Boots?  
Thanks, Al
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kissmyglass
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Re: How to get Oxygen in UK
« Reply #1 on: Jan 25th, 2004, 3:36pm »
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You guys across the pond have welding shops?
I visit my welding shop on a regular basis for O2.  The guy hasn't asked me yet why O2 is the only welding supply I need..... Smiley
 
Kev
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Mr. Happy
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Re: How to get Oxygen in UK
« Reply #2 on: Jan 25th, 2004, 3:47pm »
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Al,
 
You might have better luck asking the folks over at OUCH-UK.
 
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Re: How to get Oxygen in UK
« Reply #3 on: Jan 25th, 2004, 3:49pm »
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Alan
 
 
Hello, from a fellow Brit. There are hundreds of us in the UK, and last year we had the biggest gathering of clusterheads ever known in the world!
 
There are full details of what oxygen you need and where to get it (via your GP of course) available on a link and via emails from our 'Gasman' Curt at OUCH UK
(www.clusterheadaches.org.uk) or via clicking on the link kindly posted by Mr Happy above.
You can buy a full kit from BOC but it costs several hundred £'s just for one tank, and I've no idea how you would get them to refill it.
 
Far better in the long run would be to get your GP to prescribe it so you only pay the £6 or whatever the prescription charge is now.
 
The best way we have found for ignorant GP's is to refer them to their own BNF (the bible they all have where they look up treatments and dosages)
It very clearly says in there that high flow 02 is a standard treatment for CH.
It often also helps to send in advance of your appointment with a letter a copy of the Clusterheadache article written by Prof Goadsby from the London Institute of Neurology (they are usually impressed by that) where he lists the main treatments including 02. This is also available on the OUCh UK site.
 
Good luck, most GPs cave in and precribe if you do both the above. If he won't, or laughs again ask to be referred to a neurologist so you can be treated correctly
 
 
Wendy
« Last Edit: Jan 25th, 2004, 4:00pm by pubgirl » IP Logged
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Re: How to get Oxygen in UK
« Reply #4 on: Jan 25th, 2004, 3:52pm »
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P.S.
 
One of the most knowledgeable OUCH UK trustees, also the main telephone Helpline counsellor is a lady called Val who lives in Wales
 
 
Wendy
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Re: How to get Oxygen in UK
« Reply #5 on: Jan 25th, 2004, 7:38pm »
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And Europeans wonder why we keep our Constitutional right to bear arms..........Good Grief!
 
Any Questions?
 
Ramon
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Re: How to get Oxygen in UK
« Reply #6 on: Jan 25th, 2004, 7:41pm »
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on Jan 25th, 2004, 7:38pm, Cerberus wrote:
And Europeans wonder why we keep our Constitutional right to bear arms..........Good Grief!
 
Any Questions?
 
Ramon

 
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.........................................jonny
 
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Re: How to get Oxygen in UK
« Reply #7 on: Jan 26th, 2004, 9:13am »
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on Jan 25th, 2004, 7:38pm, Cerberus wrote:
And Europeans wonder why we keep our Constitutional right to bear arms..........Good Grief!
 
Any Questions?
 
Ramon

 
Please pardon my husband ...............    Roll Eyes
 
 
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