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cakelady
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Life choices
« on: Jan 23rd, 2004, 10:41am »
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 Sad This recent cycle and some of the recent posts have really got me thinking about how the Beast has effected so many of the life choices I'd made. How much different life would be had my choices since the age of 13  not been colored by the beast inside my head.  
 
I'm afraid I'm slipping into a real low this time. Help
 
Christine
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thomas
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Re: Life choices
« Reply #1 on: Jan 23rd, 2004, 10:47am »
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Grab my hand and I'll try to pull you back up....... Smiley We all have made poor choices........ to quote myself, I once told a very special person...."I can do nothing to change the past.....all I can do, is hold onto the present, and dream about the future."
« Last Edit: Jan 23rd, 2004, 10:52am by thomas » IP Logged
Carl_D
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Re: Life choices
« Reply #2 on: Jan 23rd, 2004, 10:54am »
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Ah, this was the whole point of my post, 'when life gives you lemons...bust out some windows.'
All of our choices have been coloured by the effect of the beast. It has the ability to drive some mad, and some into total despondency; sadly some to the grave.  
I'm not sure, but I think the key is if you give up and let it overtake you, the beast has won. Fight it with everything you are. The diligence of a fighter makes him stronger.
If you need to vent - this is the perfect place. Don't hold it in and let it eat at you - that is way too easy to do - trust me, I know.
 
Peace,
Carl D
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catlind
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Re: Life choices
« Reply #3 on: Jan 23rd, 2004, 10:54am »
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Christine,  
 
We've all experienced the deadly lows that the beast can bring.  Many of us have even tried the suicide solution.  It's a permanent solution to a temporary problem.  It's hard, very hard to shift your perception of this disease as a temporary problem, but it is one.  CH will not kill you, and it WILL end.
 
I am leaving tomorrow for a trip of OUCH business that is going to help us move forward in our fight.  Each and every one of us has done something to help the other.  Just being here, and letting us know you need help is doing something for others.  It helps us to remember that this is a terrible battle that can sap our energy and our will.  But remember, we are all here to help you, and by letting us help you, you help us.  It makes me feel good to do something that will further our cause.  
 
In the words of our OUCH president, a day will come when we will all sit back and talk about this war as veterans, instead of combatants.  It will get better, there is always hope.  Hang in there, and know that you have the collective support of this entire family.  Hang on to your hope, and if you have none left, hang on to mine.  To my dying breath, I will not stop until we have this thing beat!  
 
Give yourself permission to take the time to hurt, then find the strength to carry on.  Look at CH as an opportunity to make some very real and positive changes in the world.  They may be small, but as each of us makes a very small impact, it combines to make a very large one.  You WILL get through this, you WILL survive, and you will be stronger for it.  
 
Together we will win.
 
Hang in there kid, I know you can beat this.
 
Cat
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Re: Life choices
« Reply #4 on: Jan 23rd, 2004, 11:41pm »
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Hey Cakelady....check you private message..or you can call me 615-485-1786   I think I can point you in the right direction. I live in Nashville too!!!
Love Jayne
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Re: Life choices
« Reply #5 on: Jan 24th, 2004, 12:23am »
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Hi Christine
 
Have faith.. things will get better. Without faith nothing is possible with it nothing is impossible
 
tari
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6108764393 6108764393   Randy   Piscatorus
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I have chosen POORLY....
« Reply #6 on: Jan 24th, 2004, 1:13am »
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Cakes,  
 
The crosssroads of life never have proper signs. Given a choice of paths, I always seem to take the wrong one. After a while, it's no harder than falling off a floating log. Damned CH doesn't help any, either.
 
on Jan 23rd, 2004, 10:41am, cakelady wrote:
I'm afraid I'm slipping into a real low this time. Help

Just reach _Down_ and grab my hand.
 

 
Hang in. You'll rebound. It's a nature/genetic/Darwin thing......called survival. Imprinted at birth, free of charge.
 
Keep breathing,
RJ
 
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Re: Life choices
« Reply #7 on: Jan 24th, 2004, 1:43am »
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I say dittos to Cat.  She said it as well as it could be.  Hang in there and go on from here.  
 
I saw a sign the other day that I have tried to hang on to, "Don't let yesterdays take up what you have of today."  It will end, and you can make it.
 
Jerry
PS  We will be praying for you specially right now.
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Re: Life choices
« Reply #8 on: Jan 24th, 2004, 1:50am »
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The beast does color our lives.  With these colors I have painted some of the most vivid paintings that darn the hallways of my mind.  With its paintings I have learned the true color of friendship, understanding, pain, grief, happiness and love. These colors become such a part of us. It is a deep rich pallette that few can see.  It is a curse, it is a blessing.  Please share your paintings with us. We are not critics, we appreciate all art.  You are a gifted artist.
 
Our souls are our canvas and life is our medium. Please share.
 
Athos
« Last Edit: Jan 24th, 2004, 2:33am by athos » IP Logged

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Re: Life choices
« Reply #9 on: Jan 24th, 2004, 8:01am »
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Cakelady!  You want a real booster???  You are 8 hrs away from Raleigh!  Come join us on th 31st.  We will give you enough hugs to keep you going for a long time, at least until the convention in Nashville!!!!!
 
Please join us?????  Please???
 
We would so love to have you.
 
Keep smiling, one day at a time. Smiley
 
Little Deb
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cakelady
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Re: Life choices
« Reply #10 on: Jan 24th, 2004, 8:37am »
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I can't even begin to thank you. I used to be very good at dealing with these, but after 7 years PF, I had just begun to see the possibilities of life without the Beast. I am sure that this low will pass ( with help and support like this it has to).  
 
Thanks for the invite to Raleigh. Wish I could. But I will be working. Which frankly scares the hell out of me. During my last cycle, I had a cake fall because I was in so much pain I forgot the supports in one layer. Can not let that happen this time. Thankfully this time they only seem to come at night. And so far the o2 and verapamil is doing OK. I am trying to avoid the Prednisone if at all possible.
 
I have already put the convention on my calender and I will bring the most outrageous, decadent cake you have ever seen.
 
Love and prayers back at ya'
 
Christine heart
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Re: Life choices
« Reply #11 on: Jan 24th, 2004, 8:41am »
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THAT"S THE SPIRIT!   YOU GO GIRL!!!!! Grin Grin Grin Grin
 
Can you make a cake in the shape of a MULE for jonny??? laugh laugh laugh
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Re: Life choices
« Reply #12 on: Jan 24th, 2004, 9:10am »
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Hey C,
 
I think the bard said it best:
 
"What is past, is prologue"
 
The future is up to you. No point looking back, only forward to every single PF moment the future has to offer. If there is something this affliction gives us all, it's the ability to appreciate exactly that.
 
What kind of person would you be without this fight in you? what strength has this put in you that mightn't have been there otherwise?
 
YOU'RE NOT ALONE IN THIS FIGHT. If there is something I have learnt in the past week it is that. Reaching my hand out to ya - we can do it.
 
Faith in this
 
ben
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Re: Life choices
« Reply #13 on: Jan 24th, 2004, 9:18am »
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It will Christine.  You are a fighter and a winner.
 
Steve G
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Re: Life choices
« Reply #14 on: Jan 24th, 2004, 10:49am »
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I think about how much worse my life would be, if CH didn't stop my heavy drinking in it's tracks!!!!  I was DEFINATELY on the wrong path.......
 
I consider myself lucky, even when my head hurts.
 
-Brad
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Re: Life choices
« Reply #15 on: Jan 24th, 2004, 5:59pm »
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Just remember that there is always light in the other end of the long black tunell that we all have been so many times
 
Svenn
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Re: Life choices
« Reply #16 on: Jan 24th, 2004, 9:56pm »
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Welcome and I'm hoping things are looking better. I Can't add much but these two links are worth a look.....The first is to a technique that worked for me:
 
[url]"http://www.ouch-uk.org/ch/note_colleagues.cfm"  
[/url]
 
This one is for a letter that does a great job describing to others that CH has nothing to do with what is thought of as a "headache." It's well worth copying.
 
Good luck and stick around.
 
Charlie
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cakelady
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Re: Life choices
« Reply #17 on: Jan 25th, 2004, 8:16am »
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Again, thanks for the support.
Yes, these beasties do breed strength. I am in fact stronger than the average bear.
I have had 7 HA since 9pm, no higher than 7 (Thank God for o2 and frozen peas)
did my homework on melatonin this am and will try it starting tonight.
Just like everyone else here, I will get thru this. Thanks to this board.
And Damn right I'll be at the Convention and I'll bring cake

Cakes
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Re: Life choices
« Reply #18 on: Jan 25th, 2004, 8:22am »
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on Jan 25th, 2004, 8:16am, cakelady wrote:
And Damn right I'll be at the Convention and I'll bring cake


 
In the shape of a mule?
 
Make sure little deb gets the head......LMMFAO
 
Never mind.....LOL
 
............................jonny Grin
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cakelady
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Re: Life choices
« Reply #19 on: Jan 25th, 2004, 11:08am »
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Jonny,
 
if you explain why a mule and just what "eat cake" means on this board, I will be happy to oblige
 
Cakes
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Re: Life choices
« Reply #20 on: Jan 25th, 2004, 11:15am »
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uh oh cakelady.....  you asked for it....   Shocked
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Re: Life choices
« Reply #21 on: Jan 25th, 2004, 11:24am »
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on Jan 25th, 2004, 11:08am, cakelady wrote:
Jonny,
 
if you explain why a mule and just what "eat cake" means on this board, I will be happy to oblige

 
Dont know what "eat cake" means but little deb would love a cake in the shape of a mule (Male private part)
 
You getting the idea now?
 
Lil deb loves mules Grin
 
....................................jonny
 
PS:....LMMFAO Brad Grin
« Last Edit: Jan 25th, 2004, 11:26am by jonny » IP Logged
cakelady
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Re: Life choices
« Reply #22 on: Jan 25th, 2004, 12:50pm »
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oh hell, is that all. I do those all the time for bachelorette parties. I fact once I did one to serve 50 for a swingers group. They are even cream filled
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Re: Life choices
« Reply #23 on: Jan 25th, 2004, 1:01pm »
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MMMmmmmmmmmmmmmmmmmm...............YUMMY!!
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Re: Life choices
« Reply #24 on: Jan 25th, 2004, 1:31pm »
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Mule shaped cake?.................LMMFAO!, no thanks Grin
 
Ramon
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