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Topic: Your OUCH advocacy team (pic added) (Read 1147 times) |
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catlind
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Your OUCH advocacy team (pic added)
« on: Jan 21st, 2004, 10:15am » |
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There will be some great things going on for OUCH in the next year. Some details of what is going to be discussed at the meetings next week with the New England Center for Headaches can be found on OUCH on the advocacy board:
http://www.clusterheadaches.org/members/cgi-bin/yabb/YaBB.cgi?board=advo cacy_public;action=display;num=1074682707
Join OUCH and read what is going on for you 
Cat
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| « Last Edit: Jan 26th, 2004, 10:14am by catlind » |
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thomas
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Re: Your OUCH advocacy team
« Reply #1 on: Jan 21st, 2004, 10:20am » |
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Cat, keep up the good work. We're so fortunate to have some one like you working for us.
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ozzman
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Re: Your OUCH advocacy team
« Reply #3 on: Jan 21st, 2004, 10:41am » |
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To reiterate Cat's message, the Advocacy and PANJ are working very hard on making sure that in the future *if* you end up at the ER, you will be treated as a Cluster patient and with dignity. This does not only affect one hospital in Sothern New Jersey, it has national implications. If you want to read more, go to the link above and join OUCH.
It is amazing what kind of contacts you can come up with if you're paying attention, things don't just fall on people's laps, we work hard to obtain them. You can too.
Ozzy
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Jackie
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Re: Your OUCH advocacy team
« Reply #4 on: Jan 21st, 2004, 12:29pm » |
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Cat,
You, the team and PANJ are doing very good and important work.
I thank you ......as we all do I'm sure.
Jacks 
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Elaine
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Re: Your OUCH advocacy team
« Reply #5 on: Jan 21st, 2004, 9:25pm » |
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This work will help us all, supporters and clusterheads. I Thank You and your team. Your team is making a dream come true for my family and me. I want thank you each for the hard work your team is doing. The hours on the phone writting letters, the trips. I know its been hard on you guys and your familys. I love you for it!
You Guys ROCK!!!
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TxBasslady
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Re: Your OUCH advocacy team
« Reply #6 on: Jan 22nd, 2004, 1:01am » |
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Good luck to ya in NE, Cat
Take care of Tracey the Trigger for us, ya hear??
Don't let her dance on the bar!! 
Seriously, I hope you 2 have a great time and get alot accomplished.
PF vibes and lots of love to ya,
Jean
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Charlie
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Re: Your OUCH advocacy team
« Reply #7 on: Jan 22nd, 2004, 2:18am » |
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Do you ever rest?
Silly of me; of course not.
Very very good work Cat.
Charlie
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Woobie
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Re: Your OUCH advocacy team
« Reply #8 on: Jan 22nd, 2004, 3:07am » |
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Cat - you amaze me.......
Thank you all for everything you are doing!
You and Tracey TRY to have some FUN while you're there... I know it'll be hard... but just TRY.
THANK YOU!
tina
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Donna_D.
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Re: Your OUCH advocacy team
« Reply #9 on: Jan 22nd, 2004, 5:39am » |
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The Advocacy Team makes it easy to write the news!
Great Job to all of you.
Definately a lot of things to look forward to in our future!
Donna D.
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Roxy
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Re: Your OUCH advocacy team
« Reply #10 on: Jan 22nd, 2004, 7:17am » |
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on Jan 22nd, 2004, 1:01am, TxBasslady wrote:| Don't let her dance on the bar!! |
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Hey Jean....I think you might have Cat and I confused....  I'll try and make her behave on the trip.
I can't tell you how excited I am to be able to attend these meetings, and how honored I am to be on the Advocacy Team. OUCH is moving forward, so for those who haven't joined....please click on the button to your left, and come join us and help.
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Jackie
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Re: Your OUCH advocacy team
« Reply #11 on: Jan 22nd, 2004, 12:22pm » |
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Just wanted to bump this back to the top...
For any of you that missed it....Please use the link Cat provided and check out the very important work being done by the advocacy team.
JOIN OUCH!!!!!!!!
Jacks
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jonny
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Re: Your OUCH advocacy team
« Reply #12 on: Jan 22nd, 2004, 4:49pm » |
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Great work team!!!
.......................jonny
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Mr. Happy
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team travel
« Reply #14 on: Jan 25th, 2004, 4:12pm » |
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Sure hope the Bobsie Twins keep us updated with this weeks travel attractions. Should be interesting. They'll be here in the Philly area in a few hours......just ahead of the snowstorm on their heels. Tomorrow morning, they'll be driving north to Stamford in a day long dirge of snow, sleet and ice. They may be a tad late for dinner.......
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TomM
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Re: Your OUCH advocacy team
« Reply #15 on: Jan 25th, 2004, 6:17pm » |
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The 'Twins' left my place a little after 5:00 PM, Randy. They are ahead of the snow. The drive from Bowie (between DC and Annapolis, MD) to Philly is about 3 hours, right? I would expect them by 8:00 PM.
At the risk of getting mushy these two ladies are the friendliest and most congenial I have ever met. I will post a picture later.
TomM
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Roxy
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Re: Your OUCH advocacy team
« Reply #16 on: Jan 26th, 2004, 1:24am » |
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Tom and Renee are absolutely wonderful people. They gave me my cat fix...... . We will be stopping at their house on the way back....and they might be hiding and not answer the door.
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| « Last Edit: Jan 26th, 2004, 10:10am by Roxy » |
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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TomM
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Re: Your OUCH advocacy team (pic added)
« Reply #17 on: Jan 26th, 2004, 11:01am » |
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Looky here...a thorn between 2 roses!
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Mr. Happy
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Re: Your OUCH advocacy team (pic added)
« Reply #19 on: Jan 26th, 2004, 11:41am » |
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Quote:
Most congenital would be closer to the mark.
We ate dinner. They were starved. Even the fortune cookies were nervous.
It was 9:30. We found a Watering Hole nearby. Not much of a place, but it had a truly impressive stainless steel pisser.
WE got `em back to the motel. Roxy really fukked with the night desk guy......."Where can I plug in my truck?" Texans, diesels, and BBQ grills. Sheesh.
A short while later, even Joe started looking cute. It was time to go.
Big "doin's" coming up this week. NECH, next stop.
God help New England,
RJ
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TomM
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Re: Your OUCH advocacy team (pic added)
« Reply #20 on: Jan 26th, 2004, 12:49pm » |
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on Jan 26th, 2004, 11:41am, Mr.Happy wrote:
[We ate dinner. They were starved. Even the fortune cookies were nervous....God help New England,
RJ |
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I offered them food AND drink. They refused. Too polite for the first meeting, perhaps? Hmmm. I think the return stop will be a little different. Hell, I'll offer each of them a warm bed for the night.
TomM
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kissmyglass
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Re: Your OUCH advocacy team (pic added)
« Reply #21 on: Jan 26th, 2004, 6:21pm » |
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Cat? T? I know you guys are close by..... Can you sneak me into a meeting? Hope ya arrived safe...
Kev
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Sean_C
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Re: Your OUCH advocacy team (pic added)
« Reply #22 on: Jan 26th, 2004, 8:15pm » |
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Hi guys,
You are changing the world...... 
Thank you for being you.........
Sean...............
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TomM
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Re: Your OUCH advocacy team (pic added)
« Reply #23 on: Jan 27th, 2004, 2:42pm » |
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on Jan 26th, 2004, 11:41am, Mr.Happy wrote:| "Where can I plug in my truck?"[/i] Texans, diesels, and BBQ grills. |
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Does she bring her own extension cord?  I'll bet I have the answer.
My in-law's in PennsylTuckey thought I was nuts when I'd bring my Mercedes 300SD Turbodiesel to thier place in the winter and ask "Where can I plug it in?" The neighbors always asked "Is that some kind of 'lectric Cadilliac car?" I'd just shake my head and say "Yup."
Anyone who owns a diesel knows what a block heater is all about. I got one in the Expedition and she's gas.
Rox--If ya spend the night at my place, I got cords to keep your Bubba warm. 
TomM
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"Everyone should believe in something. I believe I'll go fishing."
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catlind
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Re: Your OUCH advocacy team (pic added)
« Reply #24 on: Jan 27th, 2004, 6:30pm » |
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on Jan 26th, 2004, 8:15pm, Sean_C wrote:Hi guys,
You are changing the world......
Thank you for being you.........
Sean............... |
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You do not yet know just how true that statement is.
Mind boggling, earth shaking, unbelievable things happened today. Beyond our wildest dreams folks. For those that experienced what happened at the convention with Lori and Marcelo, and how far that advanced us, it's at least 10 fold to what happened that weekend. In 2 days of meetings with NECH and Glaxo we are reeling at what has just happened.
We have a great deal of work to do (OUCH, CH'ers and just Rox and I tonight) so you will have to give us the opportunity to get it organized and presented to you. If ever you needed a reason to join OUCH, you will never see a better reason than what we will show you.
Amazing, extraordinary things.
And Tom, yes she has her own extension cord LOL.
We'll get you the info as soon as we can, but know that we have shaken the foundation of the pharmaceutical giant known as Glaxo on just how important CH'ers are to their trex empire. Cutting edge folks ... cutting edge.
Fasten your seat belts...it's going VERY fast now.
Cat
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A true friend is someone who reaches for your hand and touches your heart
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