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Topic: CH free for over 24 hrs (Read 360 times) |
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Janzokris
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CH free for over 24 hrs
« on: Jan 15th, 2004, 3:01am » |
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Hey
This is great I havent had a CH in over 24 hrs,(maybe I shouldnt say that) I guess I should be going and doing all those things I want to do but cant when I have a CH. As the CH I had started in November, it lasted 10 wks, thats shorter than the last one I took it lasted 6 months.
Could it be because of the jabs I have now got. The only thing is I will be pain free when I go see neuro, but with all the knowledge I have at least I can explain to him properly what is going on in my head.
A very happy
Janet 
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Please someone take this pain away and let me sleep!!!
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amen
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Re: CH free for over 24 hrs
« Reply #1 on: Jan 15th, 2004, 10:35am » |
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Congrats!!!! Hope it stays that way!!!
Andrea
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aprilbee
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Re: CH free for over 24 hrs
« Reply #2 on: Jan 15th, 2004, 10:40am » |
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nice to be pain free even if its for a small span of time! thats two posts I've read today that someone has been pain free, its so great to hear!
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AlienSpaceBabe
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Re: CH free for over 24 hrs
« Reply #3 on: Jan 15th, 2004, 11:31am » |
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Congrats, Janet! 
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thomas
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Re: CH free for over 24 hrs
« Reply #4 on: Jan 15th, 2004, 12:59pm » |
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I'm soooooo happy for you......... 
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Belle
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Re: CH free for over 24 hrs
« Reply #5 on: Jan 15th, 2004, 3:18pm » |
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Congrats as well. Hope you stay PF forever.
Cheers
Belle
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Take the time to stop and smell the roses!
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grumpett
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Re: CH free for over 24 hrs
« Reply #6 on: Jan 15th, 2004, 3:28pm » |
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oh what a feeling!
that is great! 
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Tiannia
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Re: CH free for over 24 hrs
« Reply #7 on: Jan 15th, 2004, 3:39pm » |
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That is great. May the beast never darken your doorstep again...
Tiannia 
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ZAIRA
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Re: CH free for over 24 hrs
« Reply #8 on: Jan 15th, 2004, 4:36pm » |
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This news makes me happy for you!
It means that the bastard sometimes gives for someone of us a present!
I wish that the beast leaves you definitively!
Regards, Zaira
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Janzokris
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Re: CH free for over 24 hrs
« Reply #9 on: Jan 15th, 2004, 4:53pm » |
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Still pain free and have had a very very stressful day
I wish more of us could be pain free for a while.
Thanks for all your kind words.
Janet
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Please someone take this pain away and let me sleep!!!
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5-string
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Re: CH free for over 24 hrs
« Reply #10 on: Jan 15th, 2004, 6:54pm » |
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Three cheers for Janet!
That's great news! That's a long, blessful, time..keep'em comin'.
...Mark..
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pubgirl
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Re: CH free for over 24 hrs
« Reply #11 on: Jan 15th, 2004, 7:01pm » |
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Hurraaaahhhhh!
Long may it continue
Wendy
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Prense
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Re: CH free for over 24 hrs
« Reply #12 on: Jan 15th, 2004, 7:05pm » |
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KICKA$$!! Keep it up!
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TxBasslady
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Re: CH free for over 24 hrs
« Reply #13 on: Jan 15th, 2004, 9:52pm » |
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Very good news, Janet 
Hang in there!!!!!!!
Sending lotz of wishes for lotz of pfdan's
Jean
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CHmess
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Re: CH free for over 24 hrs
« Reply #14 on: Jan 16th, 2004, 2:24am » |
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 That's what I like to hear!!
Stay PAIN FREE!!!!!!!!!
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JohnM
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Re: CH free for over 24 hrs
« Reply #15 on: Jan 16th, 2004, 9:47am » |
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Good news Jan, as several guys predicted it would, your cycle seems to have ended or is near to ending anyway.
Some advice/suggestions though, being as you have had such mean doctors as I recall who refuse you enough imigran.
When you get to see that neuro don't tell him your cycle has ended just yet, so that when he pronounces you an "official" CH sufferer (like you need really him to confirm it  ) you can make sure you get some more imitrex ready for the next cycle which unfortunately may be only a year away (sorry  ) Don't leave without a multiple repeat prescription for the injections. Keep pestering that doctor! He will probably happily let you get 2 a month once you explain how well it works for you.
Experience on this board says that the injections last well beyond the stated expiry date. Keep refilling those prescriptions during the year so that you have a stockpile for next time around. Kep them in a cool dark place and they will keep just fine for years. Many of us do this. Sorry if this dampens your spirits a bit thinking about the next cycle, but better to be prepared to win the next fight without too much suffering.
Good luck
John
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Tiannia
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Re: CH free for over 24 hrs
« Reply #16 on: Jan 16th, 2004, 9:51am » |
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on Jan 16th, 2004, 9:47am, jmorgan52 wrote:
Keep refilling those prescriptions during the year so that you have a stockpile for next time around.
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Very good advise. Just in case the beast ever knocks again you will have a way to fight him and you wont have to struggle until you can get into see the doc again. As I know that appointments can be weeks out.
I pray that you never have to use your stockpile, but it is better to be prepared.
Tiannia
PS - I am so very happy for you.
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echo
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Re: CH free for over 24 hrs
« Reply #17 on: Jan 16th, 2004, 10:03am » |
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Great news! Glad you are still PF. Gives those of us presently dancing hope that the dance will end soon.
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| « Last Edit: Jan 16th, 2004, 10:03am by echo » |
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