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Topic: staring ........in the Face of clusters (Read 4381 times) |
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kim
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staring ........in the Face of clusters
« on: Jan 3rd, 2004, 5:10pm » |
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Bandit reads lots of old stories. Those stories faise the hair of familiarity and my soul sings with that connection.
A cluster attack is still for me something that is PRIVATE and inexplicable. After 25 years I have not been successful in finding that majic that fix. It just never worked out that way for me. I think i'm in the company of LOTS. I think it's a rare few who can end that pain and then are able to carry on like nuttin.
I don't like it when i see pics of imitrex needles spread about like we are junkies.......that to me is a false expression of what is to suffer clusters. It only seeks our curiosity and misunderstanding. It is INCORRECT!!!!
I don't like it when folks lend their support in the way of asking if we have 02 or imitrex. Cluster headaches are not in the majority of responding to either and most of us have tried this in varying forms many times over only to experience the total despondent feeling of one more defeat.
I ask folks who come here and I ask folks who have been here to understand that this illness is not a common demon that is fought in the common way. Most of us have tried for so long only to fail again and again. It's not cuz we want to. It's cuz that is how this illness affects MOST OF US!!!!
There is no magic cure. We must all search for what works individually.
cluster headaches are felt by a MINIMAL GLOBAL PERCENTAGE.
I am finally starting to understand those old posts...........U know the ones i'm tawkin bowt. I'm happy that attention is being paid,,,,,,,,,,,,but i keep t hinking we are missing home plate......... 
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captdshea
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Re: staring ........in the Face of clusters
« Reply #1 on: Jan 3rd, 2004, 5:20pm » |
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Kim- Great post, DITTO. Thats why I do not use meds.
David
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BlueMeanie
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Re: staring ........in the Face of clusters
« Reply #2 on: Jan 3rd, 2004, 5:44pm » |
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on Jan 3rd, 2004, 5:20pm, captdshea wrote:Kim- Great post, DITTO. Thats why I do not use meds.
David
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I would like to know how you manage to get through a KIP 10 ???
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captdshea
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Re: staring ........in the Face of clusters
« Reply #3 on: Jan 3rd, 2004, 5:48pm » |
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All are not dealing with Kip 10 here.
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kim
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Re: staring ........in the Face of clusters
« Reply #4 on: Jan 3rd, 2004, 5:52pm » |
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You can ask me that question for the past 30 years.........
ya just git through it. Sometimes are betta than others. It ALL sux. I don't know the answers....wish i did............but i'll tell ya this..........there are also no miraculous cures.
Clusters feel like yer gonna die, but ...............YA DON'T 
No imitrex or 02 ever took me out a the loop.
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BlueMeanie
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Re: staring ........in the Face of clusters
« Reply #5 on: Jan 3rd, 2004, 5:58pm » |
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on Jan 3rd, 2004, 5:52pm, kim wrote:| No imitrex or 02 ever took me out a the loop. |
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I know that everyone is different with CH. Some meds work better for some than others. I was just wondering what you all use instead of meds to get through this Hell.
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brain_cramps
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Re: staring ........in the Face of clusters
« Reply #6 on: Jan 3rd, 2004, 6:02pm » |
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I've been med-free for years too and...
on Jan 3rd, 2004, 5:44pm, BlueMeanie wrote:| I would like to know how you manage to get through a KIP 10 ??? |
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you manage... what are your options?
grant
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kim
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Re: staring ........in the Face of clusters
« Reply #7 on: Jan 3rd, 2004, 6:15pm » |
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Letting the attack run it's course with NO MEDS, that's how i got through the worst of it.
Every time I interrupted cycle with "MEDS" i had the most memorable, intense cycles................Don't mess with mudda nature
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captdshea
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Re: staring ........in the Face of clusters
« Reply #8 on: Jan 3rd, 2004, 6:21pm » |
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BlueMeanie
Nice to meet you here at the board and welcome.
I've been dealing with CH for most of my life, with a
pain free period that lasted six yrs. I'm now suffering
again with CH. I'm a perfect Kip 7 sufferer.
I perservere is how I get through. Take a walk and deal with it.
pf nights to you BlueMeanie, All the best
David
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t_h_b
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Re: staring ........in the Face of clusters
« Reply #9 on: Jan 3rd, 2004, 6:22pm » |
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Wow.
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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captdshea
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Re: staring ........in the Face of clusters
« Reply #10 on: Jan 3rd, 2004, 6:37pm » |
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Kim,
Thanks again for your post. I've been feeling the same
for a few yrs.
When the computers off, I still have to deal with this
HA.
Robin Trower helps me some 
David
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kim
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Re: staring ........in the Face of clusters
« Reply #11 on: Jan 3rd, 2004, 7:01pm » |
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David,
I hope the nite brings peace and a sunshiney mawn****
No need to thank me. I'm like you..........and you're like me.........we have each other. The rest is rubble****
Peace
Plus, Robin Trower has it goin on(GRIN)
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| « Last Edit: Jan 3rd, 2004, 7:02pm by kim » |
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Mastifflvr28
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Re: staring ........in the Face of clusters
« Reply #12 on: Jan 3rd, 2004, 7:05pm » |
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Any of you guys ever WITNESS a cluster attack??
Kim, I respect your opinion, and mine is the complete opposite.
Mast, who had to rock with Roxy and give her shots at LEAST 4 times a night in NY.
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Mastifflvr28 (aka Michelle A.)
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kim
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Re: staring ........in the Face of clusters
« Reply #13 on: Jan 3rd, 2004, 7:24pm » |
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glad ya were there for on nudder. I doubt either ofya'd a died without onenudder thou. That's my statement and I'm standin byit.
I prefer to be alone. call me weird. You will NEVER see me having a hard time. I am not judging. i am just telling you***
ain't gonna happen. i did it too much alone to simper to anyone at any time for any "ting"
Kim who will have clusters forever. They are a part of me that i can't share. Sorry. But I'm not gonna apologize for it ****
Some tings just ARE.
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captdshea
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Re: staring ........in the Face of clusters
« Reply #14 on: Jan 3rd, 2004, 7:38pm » |
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Mast- Thanks for being there for Roxy, I'm sure she needed you there and loves you for it.
I don't suffer Kip10 or attacks as you put it.
I don't want to surcum to meds, I will feel defeat.
I want and need to manage the pain, to keep my head up and deal with this. I do cry for myself and those like roxy But I don't want to.
DAVID
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Mastifflvr28
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Re: staring ........in the Face of clusters
« Reply #15 on: Jan 3rd, 2004, 7:43pm » |
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Kim,
Don't apologize! In the "suffering alone", I totally agree. I, myself would have to be alone too, but I do have trex, and will not just suffer through.
Just a new perspective I got when I went to the convention and got to "witness" it. After the 10 to 15 minutes of HELL, things did go back to normal.
And the trex needles ARE all over, at my house. In my "drug drawer" anyways, wanna see?
I know you don't, but they ARE there, and that's how I gotta deal.
Never apolgize for your opinion, that's not what I wanted.
Mast
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Mastifflvr28 (aka Michelle A.)
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jonny
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Re: staring ........in the Face of clusters
« Reply #16 on: Jan 3rd, 2004, 7:59pm » |
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on Jan 3rd, 2004, 7:05pm, Mastifflvr28 wrote:| Mast, who had to rock with Roxy and give her shots at LEAST 4 times a night in NY. |
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4 Times a night?
Damn!!
....................jonny
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kim
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Re: staring ........in the Face of clusters
« Reply #17 on: Jan 3rd, 2004, 8:07pm » |
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don't tink i don't get uppered by the thought of one day seeing a comrade.........i still dunno what or how i'll feel........
what i AM sure of is that we cannot DIE from this..........and we can't very well go around w ailing outloud about it...........(that's how i grew up)..............i am so happy to know i'll (god willing) grow old and laugh my arse off and stare at the meadow..............that is a blessing ...................i'm sorry i just think how i think!!!!
I will wear those pants Brian(smile). I'm alive, olives are good and those friggin pants are friggin awsome(grin)***
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OneEyeBlind
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Re: staring ........in the Face of clusters
« Reply #18 on: Jan 3rd, 2004, 8:16pm » |
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I personally prefer not to suffer. So I enjoy the indulgence of a shot of trex, or the O2. I am lucky that both work for me.
If you haven't found something that works for you, I would suggest you keep looking. Lots of ideas on this board. Different stuff works for different people.
Suffering is not why God put us on this planet. At least not in my opinion. I'll take the easy way out every time. And if the trex and the O2 discontinue working ........... I will start my search for the perfect drug combo again. Just my way. For those of you that can get through a cycle with nothing ......... more power to ya !
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kim
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Re: staring ........in the Face of clusters
« Reply #19 on: Jan 3rd, 2004, 8:21pm » |
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yep sufferin sure make obvious what most fail to see.
Like I said
Clusters are a MINISCULE representation of the populus.
We do what we gotta do.
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captdshea
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Re: staring ........in the Face of clusters
« Reply #20 on: Jan 3rd, 2004, 8:41pm » |
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It's not about power, not about crying tough, not about
Billy Bad Ass.
It is about managing the pain.
David
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kim
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Re: staring ........in the Face of clusters
« Reply #21 on: Jan 3rd, 2004, 8:48pm » |
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Yep. agree with you***
I neve fucking banged my head okay????I never had a "friend" "SHOOT ME WITH IMIT REX"
WHAT IS THIS ????I t hink it is a bad signal to people who could act ually be starting a life time of stuff.
they see ya stickin the imitrex and taking pictures of it...........i think ya are NOT ASSISTING in any way whatsoever.
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Mastifflvr28
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Re: staring ........in the Face of clusters
« Reply #22 on: Jan 3rd, 2004, 9:14pm » |
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Keeping medical information from newbies who just found out they have clusterheadaches is right?
Withholding the info that there are trex injections out there, and that they can use less then a full dose and how to do is it right?
Roxy never asked me to help her, be near her, inject her or rock with her.
The picture I took at the convention had a message behind it, we weren't at the convention just partying the whole time, some of us were suffering. And some of us were ending suffering.
Since I can't manage my pain by myself, what's that make me?
Mast
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Mastifflvr28 (aka Michelle A.)
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kim
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Re: staring ........in the Face of clusters
« Reply #23 on: Jan 3rd, 2004, 9:23pm » |
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whatever you are you make yourself, mast. i can't and won't give your name***
I will tell you that you do what youhave to do. I don't know whythis thread offers some kind a rebuttal, where i NEED NONE.
Give it if you will. But I am one who was not there. The pics mean to me whatever you mean them to mean...........
PFDAN. to you and yours****
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Linda_Howell
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Re: staring ........in the Face of clusters
« Reply #24 on: Jan 3rd, 2004, 9:24pm » |
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I don't understand your logic Kim.
When someone I loved died...would I have gotten through it alone. Of course!
Was it a hell of a lot easier having someone there to hold me and just help me through it. You BET!
If you've never seen someone you care about in the throes of a KIP 10, then I don't know what to say to you.
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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