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Topic: Histamine Drip only offers temp. relief (Read 990 times) |
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unsolved1
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Histamine Drip only offers temp. relief
« on: Oct 31st, 2004, 6:06pm » |
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It's official and not a fluke. It costed $37,000 and lasted for uhhhhh ... . a week.
The HA's are pilin' up again.
Date Pain Level Abortive Duration
10/21 1 Kip8 Imitrex inj. 4mg 15 min.
10/28 1 Kip8 Imitrex inj. 4mg 15 min.
10/30 1 Kip8 Imitrex inj. 4mg 15 min.
10/30 1 Kip8 Imitrex inj. 4mg 20 min.
10/31 1 Kip8 Imitrex inj. 4mg 15 min.
PS. Dr. Diamond spoke of an article written by Dr. Todd Rozen about me (Doesn't name me specifically). She is going to send me a link. It was about trying a drug called Cell Cept, a drug used for the prevention of organ rejection after heart or liver transplants. It's supposed to be like a steriod, but without all the main side effects.
Anyone seen it ??
 Getting hammered again
UNsolved
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LeLimey
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Re: Histamine Drip only offers temp. relief
« Reply #1 on: Oct 31st, 2004, 6:10pm » |
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I'm so sorry to hear that, its not fair  I've not heard of the drug but I hope they find something that will work for you and soon
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Redd
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Re: Histamine Drip only offers temp. relief
« Reply #2 on: Oct 31st, 2004, 6:39pm » |
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Daymn it all to hell Dude. You sure have been threw the fucking ringer with all the different things you've tried.
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nani
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Re: Histamine Drip only offers temp. relief
« Reply #3 on: Oct 31st, 2004, 6:45pm » |
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Oh Michael - that really sucks! Hang in there, though. We're here for you dude.
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don
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Re: Histamine Drip only offers temp. relief
« Reply #4 on: Oct 31st, 2004, 7:36pm » |
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That sucks!
Reinforces my opinion of the Diamond Headache Clinic.
If it's any consolation I have heard referances to a drug called Cell Cept being used for clusters.
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BobG
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Re: Histamine Drip only offers temp. relief
« Reply #5 on: Oct 31st, 2004, 7:49pm » |
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37.000 bucks and
Quote:
That just plain sucks.
Are you going to try the Cell Cept?
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Kris_in_SJ
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Re: Histamine Drip only offers temp. relief
« Reply #6 on: Oct 31st, 2004, 8:23pm » |
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Big Hugs to you Michael - We all had such high hopes for your relief with this treatment.
Keep trying. Does this new drug sound promising?
Kris
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E-Double
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Re: Histamine Drip only offers temp. relief
« Reply #7 on: Oct 31st, 2004, 10:03pm » |
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I have a fromer colleague who has MS and is taking this......
Have read here as well as other medical sites about certain hypothesis regarding a connection with MS and Migraine so.... those who think there is that connection and believe there is a connection with migraine and CH may try Cellcept for it as well.
I just hope you get relief!!!!!! whatever you do.
Well wishes,
E.
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miapet
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Re: Histamine Drip only offers temp. relief
« Reply #8 on: Oct 31st, 2004, 11:46pm » |
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Sorry you're getting whacked again . . .I wish you would have reached for the alternative instead of the trex . . .
*positive light and energy*
miapet
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unsolved1
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Re: Histamine Drip only offers temp. relief
« Reply #9 on: Nov 1st, 2004, 7:51am » |
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No, I was misunderstood. I already tried the Cell Cept. I have mixed feelings about it. It may have helped to keep the number of HA's down, but it was no cure. I did it for 13 weeks. Dr. Todd Rozen put me on it.
Going to my local neuro today and I'm going to bring up the alternative methods again today.
There was another lady at the Diamond clinic with clusters that said Histamine always worked for her and she's been coming back for years. (At the onset of her cycle)
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Kevin_M
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Re: Histamine Drip only offers temp. relief
« Reply #10 on: Nov 1st, 2004, 8:30am » |
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I don't know Mike. I'd hope for the amount of money spent they would provide some follow-up to maintain your treatment's effectiveness, rather than just wash their hands of you as you hit the door. I mean for all that money, it seems they would want to warrantee their work somewhat, if they really thought it was worth what they ask for it. Hell Mike, going to the Nashville convention almost worked as well for you as Diamond did, you were pf for days afterward.
I hate to see you get into the same circle of rebound with the trex, maybe if oxygen can be given another try now that you are sort of starting over again. 
best to you Mike.
Kevin M
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lionsound
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Re: Histamine Drip only offers temp. relief
« Reply #11 on: Nov 1st, 2004, 9:13am » |
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Michael,
I am so sorry that treatment didn't last long.
Pain or no pain we are here for you.
I'm inspried by your incredible ability keep going every day.
Be well,
lionsound
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DerbyDemon
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Re: Histamine Drip only offers temp. relief
« Reply #12 on: Nov 1st, 2004, 9:33am » |
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Life sucks....then you get a cluster. Your trials and tribulations make me ashamed of ever complaining.
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