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Topic: Does everyone Dance? (Read 2229 times) |
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becky8
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I hear everyone say they bang their heads and stuff. Am I not the norm, cause I don't sit still but I don't want to bang my head. I press my finger on my eye area hard. I know everyones different but I have have never danced. I moan and sometimes cry, am I werid. Do all CH people dance? I have every other symptom of CH but that? What happens with you???
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thomas
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Re: Does everyone Dance?
« Reply #1 on: Oct 15th, 2004, 11:32am » |
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"The Dance" is a generic term we use to reference our extremely weird behaviour during a ch attack. The dance has many meanings, depending on the individual.
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nani
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Re: Does everyone Dance?
« Reply #2 on: Oct 15th, 2004, 12:07pm » |
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Durin my everyday k3-5's I "rock" either sitting up or in a fetal position on the bed. I also put pressure on my eye and/or temple. During my higher kips, I pace and press. And cry and moan and generally curse everyone or everything that crosses my path. I had several "head bangers" during my first cluster episode, which my neuro and I just discovered, was in 1973. For years, I thought those headaches was a side effect of a spinal block during the delivery of my first child. (yes I'm THAT old, but I was a teen Mom  ) The neuro told me last week that that was my first cluster episode. Gee- and I thought I've only been a clusterhead since 1999 
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becky8
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Re: Does everyone Dance?
« Reply #3 on: Oct 15th, 2004, 12:10pm » |
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When you cry doesn't it make it worse? Does me but can't help. Some times I feel so alone and wiped out by this.
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becky8
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Re: Does everyone Dance?
« Reply #4 on: Oct 15th, 2004, 12:12pm » |
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Sorry, Emotional today, not alot of sleep  
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thomas
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Re: Does everyone Dance?
« Reply #5 on: Oct 15th, 2004, 12:20pm » |
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on Oct 15th, 2004, 12:10pm, becky8 wrote:| Some times I feel so alone and wiped out by this. |
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We have all been there.
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thudpucker
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Re: Does everyone Dance?
« Reply #6 on: Oct 15th, 2004, 1:13pm » |
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I don't bang my head. I can't stand to touch it when it's hurting.
In the upper Kips, I stand up, sit down, walk around, wave my hands in the air, talk to the mofo under my breath and urge it in most unkind and uncomplimentary terms to go away, and give it a deadline for its departure.
And I'm often wiped out when the string is done, not just tired and sleepy, but feeling sore in muscles and joints and as if I've aged umpteen years overnight.
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nani
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Re: Does everyone Dance?
« Reply #7 on: Oct 15th, 2004, 1:47pm » |
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Quote:| When you cry doesn't it make it worse? |
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Yes - but I can't help it either. I'm a wuss.
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E-Double
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Re: Does everyone Dance?
« Reply #8 on: Oct 15th, 2004, 1:53pm » |
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I've always been told that I am a great dancer for a white boy 
Thomas as always hit the nail on the head (no comment Nani  ) It is just a term that people use here to describe our behavior during hits.
for me: I rock when things are lower level but starting to hurt. I pace during my mid level hits, I really pace and thrash when they are at their peak.
It's all yours Call it a tango if ya like but do whatever makes you feel better.
E.
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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rubberplant
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Re: Does everyone Dance?
« Reply #9 on: Oct 15th, 2004, 2:33pm » |
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on Oct 15th, 2004, 1:47pm, nani wrote:
Yes - but I can't help it either. I'm a wuss. |
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Not a wuss,
I watched my wife go through labour whilst in a Kip 6-7 and held her hands when she was in the pool. I didn't know where I was and at points neither did she, but,
She didn't cry. She screamed. But I cried.
I cried again when I saw him but thats another story.
We all have different ways of dancing . They are ALL normal. We must have all pressed our eyes so hard at some point wondering if when we let go we'll ever be able to see aout of them again!
james
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ExplodingEyeBall
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Re: Does everyone Dance?
« Reply #10 on: Oct 15th, 2004, 3:09pm » |
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Rock, Pace, Chain Smoke, Drink Coffee, Put extreme pressure on eye......
Repeat if needed.
That's how I dance.
If it's a lower kip CH, I drink water or coffee and play my guitar.
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Just poke out my eye and get it over with!!!
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nani
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Re: Does everyone Dance?
« Reply #11 on: Oct 15th, 2004, 3:23pm » |
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Quote:| Thomas as always hit the nail on the head (no comment Nani |
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Me? 
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cschick
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Re: Does everyone Dance?
« Reply #12 on: Oct 15th, 2004, 5:38pm » |
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Nani heard my dance the other night. Rocking, smoking, moaning, crying, begging to die, bang, bang, bang....etc., etc. Your dance may be completely different just as all of us are here. Unfortunately none of us are the same or maybe the docs could figure out how to help us. Keep on!
Karen
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BlueMeanie
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Re: Does everyone Dance?
« Reply #13 on: Oct 15th, 2004, 5:40pm » |
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My dance is more like a fish out of water. Everyones dances different but to the same tune. 
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Charlie
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Re: Does everyone Dance?
« Reply #14 on: Oct 15th, 2004, 6:03pm » |
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I never banged my head. I would sit in my kitchen, half out of the chair, twisting my neck, looking at the wall while strecthing, dabbing my eye with a wet cloth, grinding my teeth, spilling cold water on myself, and moaning. I can imagine the sight. Otherwise, I did nothing odd. 
Charlie
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Jonny
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Re: Does everyone Dance?
« Reply #15 on: Oct 15th, 2004, 6:08pm » |
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on Oct 15th, 2004, 11:32am, thomas wrote:| "The Dance" is a generic term we use to reference our extremely weird behaviour during a ch attack. The dance has many meanings, depending on the individual. |
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That is by far the best description of "The Dance" that I have ever heard or read!!....Ever, and I have read hundreds if not more.
WTG...Thomas
................................jonny
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Charlie
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Re: Does everyone Dance?
« Reply #16 on: Oct 15th, 2004, 6:11pm » |
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Jonny looks a little fruity when he dances though 
Charlie
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Jonny
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Re: Does everyone Dance?
« Reply #17 on: Oct 15th, 2004, 6:15pm » |
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on Oct 15th, 2004, 6:11pm, Charlie wrote:Jonny looks a little fruity when he dances though
Charlie |
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You been peeking in my window again, Charlie?
Oh God!.....Tell me you didnt see the thong 
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Charlie
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Re: Does everyone Dance?
« Reply #18 on: Oct 15th, 2004, 6:18pm » |
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 Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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cschick
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Re: Does everyone Dance?
« Reply #19 on: Oct 15th, 2004, 6:18pm » |
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heeheheeee! Jonny do you wear the thong even when the midgets are flying out your ass?
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Jonny
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Re: Does everyone Dance?
« Reply #20 on: Oct 15th, 2004, 6:28pm » |
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on Oct 15th, 2004, 6:18pm, cschick wrote:| heeheheeee! Jonny do you wear the thong even when the midgets are flying out your ass? |
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I most ceartinly do
Charlie....That sign is killing me....ROTFFLMMFAO
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alleyoop
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Re: Does everyone Dance?
« Reply #21 on: Oct 16th, 2004, 1:25am » |
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I could never press my eye! It is extremely sensitive when I'm being hit. The closest I'm able to get to my eye is when I'm wiping the constant flow of tears coming from it.
I only bang my head on the higher kips(8-10). Mostly I will rock back and forth holding my left forehead and trying to put pressure on my trigeminal nerve.
...............alley
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Biker
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Re: Does everyone Dance?
« Reply #22 on: Oct 16th, 2004, 9:22am » |
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In and out the shower, inhaling oxygen, walking around the meadow, through the woods, up and down the road. Sitting or laying with my legs shaking from time to time. Streatching my neck, pushing on my head and eye. Yea, I have danced, and fear I will again.
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Redd
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Re: Does everyone Dance?
« Reply #23 on: Oct 16th, 2004, 9:39am » |
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Thomas is so very dead on. We all "dance" in our own ways. Least for me now that I know what the hell is going on in my head I've stopped trying to pry my own teeth out, probably the ugliest part of that old dance.
Thanks to the verap, I haven't had any K9-10's, to dance to, but those 7-8's still had me paceing, cursing, looking like a lunatic, and grinding the heal of my hand into my eye socket like I'm trying to stop profuse bleeding. I also rub the sinus area real hard, and try to sniff in real hard to unblock that side...(doesn't really help but I still do it). Yeah it's not pretty.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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vig
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Re: Does everyone Dance?
« Reply #24 on: Oct 16th, 2004, 1:29pm » |
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Dancing for me is usually rocking back and forth or side to side while on my knees. Sometimes I'm jamming my eye socket into the edge of the couCH. I pace a lot too.
Never banged my head though. I always figured the bruising would hurt.
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never, Never, NEVER quit. -Winston Churchill
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