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   Author  Topic: Who's currently in cycle ( episodics, I guess )  (Read 1005 times)
rubberplant
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Who's currently in cycle ( episodics, I guess )
« on: Oct 5th, 2004, 6:56am »
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Hi all,
 
just wondering how many of us episodics are currently PF and who of us is suffering.
 
I'm late by a couple of weeks but PF
 
PFDAN to all,
 
James
 
P.S. I understand if you don't want to jinx it by answering!
 
P.P.S my site is finally up but in the beginning stages of being built! Have a look if you fancy!  http://www.james-gardner.co.uk
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Re: Who's currently in cycle ( episodics, I guess
« Reply #1 on: Oct 5th, 2004, 7:35am »
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Couple weeks late?  Sure you aren't pregnant?   laugh laugh laugh
 
 
 
 
 
 
 
 
Sorry couldn't resist that one.  Have to make the most of the PF time dude, even if it's just cracking a sick joke.
 
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Re: Who's currently in cycle ( episodics, I guess
« Reply #2 on: Oct 5th, 2004, 7:48am »
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LMAO laugh Grin laugh
 
I may have to go wee on a stick to find out.
 
We could be in for a Cluster head first.
 
I'll post pictures of my pregnancy!
 
James
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Re: Who's currently in cycle ( episodics, I guess
« Reply #3 on: Oct 5th, 2004, 8:01am »
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im in a cycle now.  getting about 1-2 bad attacks a day.  
 
and still no meds Sad
 
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Re: Who's currently in cycle ( episodics, I guess
« Reply #4 on: Oct 5th, 2004, 8:44am »
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Not yet but I'm starting to get small shadows almost daily.  
 
This may be getting triggered by the people who are installing a new roof here at work. The hot tar and other junk are pretty strong in here.
 
It's almost that time of year though. I don't have my cycles timed that good yet so I don't know if I'm late (pregnant?) or right on time.
 
Pat
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Re: Who's currently in cycle ( episodics, I guess
« Reply #5 on: Oct 5th, 2004, 8:50am »
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I'm in cycle, somewhat controled by meds, still having heavy shadows though. J.
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Re: Who's currently in cycle ( episodics, I guess
« Reply #6 on: Oct 5th, 2004, 11:14am »
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Was in cycle, 6 months late or early, depends on how you look at it, I'm usually spring.  Did a pred taper, on verap now and had trigger point injections.  Been PFDAN for 5 or 6 days now.  Don't know which worked but still taking melatonin at night cuz I don't want to change any habits.  Did nap on Sunday and woke up with a K2 shadow for about 1/2 hour.  Didn't Trex and it went away by itself.
 
T
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Re: Who's currently in cycle ( episodics, I guess
« Reply #7 on: Oct 5th, 2004, 11:23am »
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I'm having 2 a day and shadows throughout the day. Just finishing a Prednisone Taper and taking Verapamil Seems to help, I've not had one over K7 since I started the meds.
 
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Re: Who's currently in cycle ( episodics, I guess
« Reply #8 on: Oct 5th, 2004, 11:31am »
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I've been in this cycle for a month - I hoping it will end soon but I'm not seeing any signs of that.
 
ARRRRGH!!!
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Re: Who's currently in cycle ( episodics, I guess
« Reply #9 on: Oct 5th, 2004, 11:47am »
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3 1/2 cycle just ended.  40 HA's during that time.  Was taking 240 mg of Verapamil daily.  Got some side effects from it like shortness of breath and light headedness.  Also was using Imitrex injections and Nasal Spray as an abortive.  Not sure if the Verapamil broke the cycle or it just ended on its own.  Hoping for PFD for all...
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Re: Who's currently in cycle ( episodics, I guess
« Reply #10 on: Oct 5th, 2004, 11:47am »
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Cool Pix James...
Currently in high season.
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« Reply #11 on: Oct 9th, 2004, 3:35am »
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I fuckin am...another dirty rat shit bastard goddam motherfuckin hell spawned cycle.  
 
Got a long holiday that I figger I owed to them little umbrellas...and now this cycle could not be any wierder...all the shit Clusters never did before...they are doin now....
 
You want wierd? Try this. Third one today switched from my usual leftside attack...it was comin hard on the right...then my whole fucking face went to pain...BOTH SIDES AT ONCE...you heard me...then it went left side and kicked my ass there till it faded. Put that in yer twilight zone cluster fuck diary.
 
Good Grief
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Re: Who's currently in cycle ( episodics, I guess
« Reply #12 on: Oct 9th, 2004, 8:42am »
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I am in cycle (unfortunately in more ways than 1  Embarassed)  I am getting them more often this round than last year, but they haven't been as intense - knocking on wood, knocking on wood - as last year so far.  The worst thing I have notices with this cycle is the ear pain.  God help me I can't take it.  I would rather rip my own arm off and beat myself about the head and neck than to go thru the mfer's again.  So is life, I guess.  I am so incredibly happy I found this site so I can at least find out what is working for others.  I didn't have this last year and went the whole cycle (6 weeks) with NO meds.  I don't know how I made it.  Hang in there - send me a message if you need to rant and rave it out!  
 
Karen
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Re: Who's currently in cycle ( episodics, I guess
« Reply #13 on: Oct 9th, 2004, 10:36am »
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In cycle going on two months.
Ruth
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« Reply #14 on: Oct 9th, 2004, 12:20pm »
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I had an attack too early  (in August)
and am now waiting to see if the shadows
will develop into an attack, or just postpone the normal
October battles.
 
over thelast 6 years, only the October hit has
been right on schedule...never late....
but as soon as you type "never"...
it slips out of pattern....sooooooo
 
maybe i get lucky and be pf for 6 years.....????
 
hey, it could happen....
and I am a great day-dreamer.....
 
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Re: Who's currently in cycle ( episodics, I guess
« Reply #15 on: Oct 9th, 2004, 12:27pm »
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Still in... Week 20.
 
Anyone need dance lessons Wink
 
They're a lot less frequent though so that is a +
 
Happy times ahead Cheesy
 
E.
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Re: Who's currently in cycle ( episodics, I guess
« Reply #16 on: Oct 10th, 2004, 3:14pm »
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I'm in tailwinds of late June cycle.  Ramped to god-awful during July and August and has been dwindling ....weak but still posing inteference....
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Re: Who's currently in cycle ( episodics, I guess
« Reply #17 on: Oct 10th, 2004, 10:23pm »
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Emerged from an Oct - June episode, just stopped shadowing.  
 
wish I could do a cartwheel.
 
 
Kevin M
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Re: Who's currently in cycle ( episodics, I guess
« Reply #18 on: Oct 11th, 2004, 2:18pm »
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This cycle kicked off on Sept. 19 with a nighttime trio that included one K8 pushing K9 and knocked me on my butt for about 18 hours and then settled into the usual routine of 3 per night at 90-minute intervals with a day off every now and then.
 
That experience prompted me to come back here after a two-year absence.  Checking back in with the clusterheads was definitely a Good Thing, because I got the message about melatonin.
 
I started taking melatonin four nights ago and have been PF since--but I still feel like I'm waiting for another shoe to drop.
 
thudpucker
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Re: Who's currently in cycle ( episodics, I guess
« Reply #19 on: Oct 12th, 2004, 9:12am »
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I have obviously managed to jinx myself. Should've kept my fucking trap shut  Lips Sealed
 
Started shadowing yesterday, haven't yet been hit but I can feel it sitting there.
 
Did a pre-emptive strike at the doctors yesterday, getting my imitrex injector thing today so if and when it happens...
 
not a happy bunny today.
 
I understand if you read this thread and didn't answer it if you were clear, will endeavour to not be so daft talking about being PF again! bollocks!
 
James
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Re: Who's currently in cycle ( episodics, I guess
« Reply #20 on: Oct 12th, 2004, 9:19am »
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Does having daily shadows and  one kip 4 about every 4 days for the last 3 weeks count as being in a cluster? If yes, then I'm in cycle.
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Re: Who's currently in cycle ( episodics, I guess
« Reply #21 on: Oct 12th, 2004, 9:23am »
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Sorry James, I hope it's not starting  Sad
 
Valerie
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Re: Who's currently in cycle ( episodics, I guess
« Reply #22 on: Oct 12th, 2004, 9:44am »
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me too...
 
thanks...
 
just not looking forward to doing the first shot of Imitrex. I'm not scared of needles, have pulled a needle out of my own arm when I used to have blood tests because of the carbemezepine for my epilepsy. The nurse collapsed my vein and I told her, she couldn't understand why no blood was coming out!!!
 
It's different when your doing it to yourself though. Do you know what I mean?
 
James
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Re: Who's currently in cycle ( episodics, I guess
« Reply #23 on: Oct 12th, 2004, 9:55am »
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I haven't used the Trex injections - I had the trex NS - it worked some of the time.  This cycle I was given Zomig fast release tablets.  They are working great for me, it knocks the headache out completely in about 5 min.  Some people haven't had luck with it though.
 
I think when the ha hits hard (which I hope it doesn't) sticking yourself with a needle will be minor in comparison.  Do you have someone that can do it for you?
 
Valerie
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Re: Who's currently in cycle ( episodics, I guess
« Reply #24 on: Oct 12th, 2004, 9:57am »
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I'm in cycle.... 18 months now!!!! Life is so Fun!!!
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