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toolong
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What now??
« on: Sep 20th, 2004, 7:05pm »
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Seeing family Dr. Fri. am and need a plan to find something to use as a cycle buster.I can't take any of the triptans due to heart attack.Use O2 and it works about 70% of the time,but when I get too far into the CH it fails to help.Tried narcotic pain meds.,but they seem to make the pain worse.Any suggestions???HELP!David
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Hey,watch this!I saw it on a cartoon and I think it might work!
Jonny
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Re: What now??
« Reply #1 on: Sep 20th, 2004, 7:10pm »
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Start with verapamil......if that dont work add some Lithium.....Its a chronics cocktail but it also works for episodics
 
Good luck
 
................................jonny
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Re: What now??
« Reply #2 on: Sep 20th, 2004, 7:17pm »
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on Sep 20th, 2004, 7:05pm, toolong wrote:
Seeing family Dr. Fri. am and need a plan to find something to use as a cycle buster.I can't take any of the triptans due to heart attack.Use O2 and it works about 70% of the time,but when I get too far into the CH it fails to help.Tried narcotic pain meds.,but they seem to make the pain worse.Any suggestions???HELP!David

 
Sorry your suffering dude!!
 
As far as your question of abortives (triptans) I don't know of any other than Oxygen (which you are successfully using @ a high %),
 
As far as your cycle buster... have you used steroids? or are you on any preventatives? "Preventatives" are used to knock down the cycle or atleast to knock down the frequency and intensity.
 
Do you get them @ night? Have you tried melatonin? It's been a blessing for many including myself @ getting rid of the nocturnal visitor.
 
Will get you a link to different meds...
 
Good luck and hope you catch a break.
 
E
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toolong
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Re: What now??
« Reply #3 on: Sep 20th, 2004, 7:38pm »
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Take melatonin at night and it does help with sleep.Tried the Lithium but stoned me out pretty bad.(got to work and can't do it stoned).Maybe I didn't give it a long enough try.I was on Inderal but Dr.switched it to Nadolol 120mg.and Voltaren 150mg.David
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Re: What now??
« Reply #4 on: Sep 20th, 2004, 8:08pm »
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on Sep 20th, 2004, 7:38pm, toolong wrote:
Tried the Lithium but stoned me out pretty bad.(got to work and can't do it stoned)

 
Man, Ive been taking 600 mgs of Lithium everyday for 12 years and running my company.
 
You must have been taking the really good Lith.......LOL Grin
 
..............................................jonny
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Re: What now??
« Reply #5 on: Sep 20th, 2004, 8:08pm »
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There is Verapamil and Topamax (check the spelling).  Those are also front line prevents.  O2 and ice packs if you can't do the triptains.  Check the meds forum, some new stuff there that may help.  Ask your doc about trigger point injections.  They knocked out the frequency for a few days for me.  I knew they wouldn't work long term for me because I burn novacain pretty quickly, but I get 4 days of good results.  
 
T
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Re: What now??
« Reply #6 on: Sep 20th, 2004, 8:23pm »
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Hi - sorry you're suffering!
 
Here's the link that helped me the most.  I just printed it out and took it to my doc.  It's now a part of my permanent record (my doc loves it!)
 
http://www.future-drugs.com/admin/articlefile/ERN020304.PDF
 
We're all different, but something in here just might do the trick!
 
Good Wishes and Hugs,
 
Kris
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