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Topic: Finally understand cause of CH (Read 1648 times) |
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Redd
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Re: Finally understand cause of CH
« Reply #25 on: Aug 30th, 2004, 4:19pm » |
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I think this was what really cured Naook's clusters....
But I wouldn't recommend it.....
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BobG
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Re: Finally understand cause of CH
« Reply #26 on: Aug 30th, 2004, 4:21pm » |
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Quote:My cure may not work for everybody, especially not loud-mouth jerks like several of the American responses, but it may work for a few of us.
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Hey, hey, hey. Wait a minute! There are loud mouth jerks in Canada too. We may be the greatest, richest and most blessed country the world has ever seen but we do not claim to have the best nor the brightest loud mouth jerks.
Question about the Gatorade cure.........the red, green or yellow?
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| « Last Edit: Aug 30th, 2004, 4:23pm by BobG » |
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Superpain
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Re: Finally understand cause of CH
« Reply #27 on: Aug 30th, 2004, 4:39pm » |
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Well... I'm finally checking back in.
Nanook, I told you this wasn't going to be well recieved... 
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Chris
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ExplodingEyeBall
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Re: Finally understand cause of CH
« Reply #28 on: Aug 30th, 2004, 4:49pm » |
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on Aug 30th, 2004, 4:21pm, BobG wrote:
but we do not claim to have the best nor the brightest loud mouth jerks.
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Speak for yourself.
If you're going to be something, you'd might as well be the best you can at it.
I'm a good jerk, Nookie man is a good troll.
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Just poke out my eye and get it over with!!!
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Nanook_of_Inuvik
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Re: Finally understand cause of CH
« Reply #29 on: Aug 30th, 2004, 4:58pm » |
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true, superpain.
I give up trying to illuminate one possible cause of CH.
The wide variety of cures out there that may or may not work for everybody illustrates the difficulty of treating CHs.
I too would have responded rudely to a suggestion such as mine until I actually tried it. I hope that there's someone out there I can help through this suggestion.
I've met many nice intelligent Americans, and I always try think of them when the chorus of not a very nice person Americans continually drowns them out.
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BobG
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Re: Finally understand cause of CH
« Reply #30 on: Aug 30th, 2004, 4:59pm » |
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on Aug 30th, 2004, 4:39pm, Superpain wrote:| Nanook, I told you this wasn't going to be well recieved... |
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Don't you just hate it when nobody will listen to you? 
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Margi
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Re: Finally understand cause of CH
« Reply #31 on: Aug 30th, 2004, 5:24pm » |
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Folks, everyone take a breath please. Lest we forget here....we were ALL newbies at some point and we ALL thought we had found something that helped our (or our sufferer's) clusters. When that first remission hit - we figured we'd found the cure, right? Who knew about the term "remission" during that first remission?
uh...isn't there a possibility that this guy might be in his first remission? I think we all agree that he's maybe hunting down the wrong path, but...haven't we all done that at some point in our journeys?
Hell, I remember posting in the early days that Mike aborted an attack by brushing his teeth. We were pretty damned excited about it, too! I'll tell ya what - his teeth had never BEEN so clean in the ensuing days!! We were SURE it was the massaging action on the gums that did it. Then there was the time I had him shove mustard powder up his nostril - read somewhere that that might help. THAT was exciting.
Don't lose sight of the fact that we all do reach that desparation of clinging to any possible hope.
Yes, the "jerk" comment was rude and uncalled for. I won't dispute that and I'm not sticking up for Nanook just because he's a fellow countryman. Nanook, you need to take a breath too, ok?
This can be a pretty intimidating group for newcomers, remember. What is a knee-jerk reaction now to those of us who see those inevitable "cure" posts can be like a red flag to a bull (from a newcomer's perspective). I think we've become an online sorting bin - offhandedly discarding repeat subjects (I'm not saying I'm blameless here either) and not recognizing that we are discarding people in the process.
Let's not lose sight of the fact that Nanook DID say this:
on Aug 30th, 2004, 4:58pm, Nanook_of_Inuvik wrote: I hope that there's someone out there I can help through this suggestion.
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and that probably IS his reason for posting on this subject.
Posting pictures of heads up butts is pretty high school, dontcha think?
Maybe educating newbies would be a better approach?
just my two cents worth here.
p.s. Nanook - I honestly don't think that diet is a cause of CH. I don't dispute the fact that when a clusterhead is in cycle that they ARE more sensitive to food additives and I've seen many different foods trigger attacks for my husband when he is in cycle. The real test of this is to try the food in question when you are out of cycle. Chances are, it won't trigger an attack for you. So far, our research has proven that nitro-glycerine is the ONLY recognized trigger for anyone out of cycle. And - seriously - the enlarged/different hypothalmus in clusterheads really does seem to be the cause, ok?
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| « Last Edit: Aug 30th, 2004, 5:27pm by Margi » |
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Superpain
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Re: Finally understand cause of CH
« Reply #32 on: Aug 30th, 2004, 5:33pm » |
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Well, "Bear"... I really don't think it has anything to do with America.
But you must understand something. We do not know the "cause" of cluster's, nor do you, and there is so far no cure. We all know that, and that is precisely why you have been met with such opposition. People claiming to know of a cause or cure are not well recieved here because we know it's bullshit just by the title of the post! We don't even have to read the thread...
As I've stated a hundred times before, I will never be convinced that Ch has anything to do with anything you or I eat, drink or smoke.
I believe that certain foods and liquids contain ingredients that will trigger a headache, but that is all. And a trigger is something completely different from a cause, and it has nothing to do with a cure.
If you do have clusters, and they stopped once you stopped eating certain foods then either you were very lucky to stumble upon something that ended your cycle, or your cycle just ended on it's own... Either way, if you do truely have clusters, they are going to come back no matter what you do or don't eat. I'd bet all my money and both testicles on that.
Your best bet is to abandon this conversation because no one is going to listen to you... And read up on effective treatments so that you may be prepared when they do come back and you realize what I say is true.
There's alot of us that have had clusters for decades, and combined our experiences equal hundreds of years in research into this subject. And I'm telling you right now, beyond triggers, food and drink have no correlation with clusters. You can believe me now or believe me when you get back into cycle.
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Chris
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thomas
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Re: Finally understand cause of CH
« Reply #33 on: Aug 30th, 2004, 5:34pm » |
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on Aug 30th, 2004, 4:58pm, Nanook_of_Inuvik wrote:
The wide variety of cures out there that may or may not work for everybody illustrates the difficulty of treating CHs. |
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Excuse me, but there are NO cures out there, only treatment methods.
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Superpain
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Re: Finally understand cause of CH
« Reply #34 on: Aug 30th, 2004, 5:36pm » |
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on Aug 30th, 2004, 5:34pm, thomas wrote:
Excuse me, but there are NO cures out there, only treatment methods. |
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You should work for Cliff's Notes Thomas.
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Chris
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BlueMeanie
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Re: Finally understand cause of CH
« Reply #35 on: Aug 30th, 2004, 5:38pm » |
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Now all you need is Cluster Headaches to proove your cure. 
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Margi
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Re: Finally understand cause of CH
« Reply #36 on: Aug 30th, 2004, 5:47pm » |
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"wow, hey thanks Margi, for the calm, level-headed post."
"hey, no problem."
and now... back to your regularily scheduled program. 
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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Superpain
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Re: Finally understand cause of CH
« Reply #37 on: Aug 30th, 2004, 5:53pm » |
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LOL... 
That's kinda what I was thinking...
But it's not like he wasn't warned. 
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Chris
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BobG
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Re: Finally understand cause of CH
« Reply #38 on: Aug 30th, 2004, 5:54pm » |
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on Aug 30th, 2004, 5:47pm, Margi wrote:"wow, hey thanks Margi, for the calm, level-headed post."
"hey, no problem."
and now... back to your regularily scheduled program.
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Ditto what Margi said.
LMAO
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thomas
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Re: Finally understand cause of CH
« Reply #39 on: Aug 30th, 2004, 5:57pm » |
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on Aug 30th, 2004, 5:36pm, Superpain wrote:
You should work for Cliff's Notes Thomas. |
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Yeah, I'm just too damn blunt. I don't know how to use too many words.
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IndianaJohn
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Re: Finally understand cause of CH
« Reply #40 on: Aug 30th, 2004, 6:29pm » |
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on Aug 30th, 2004, 5:47pm, Margi wrote:"wow, hey thanks Margi, for the calm, level-headed post."
"hey, no problem."
and now... back to your regularily scheduled program.
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Yeah, what Margi said.
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Did my brains fall out or is this headache over?
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bean
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Re: Finally understand cause of CH
« Reply #41 on: Aug 30th, 2004, 6:43pm » |
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I actually look for foods with disodium inosphate & disodium guanylate, etc. because they help replace Mono-sodium Glutamate, a big cause of my headaches..
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Kevin_M
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Re: Finally understand cause of CH
« Reply #42 on: Aug 30th, 2004, 9:05pm » |
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on Aug 30th, 2004, 3:05pm, Nanook_of_Inuvik wrote:Look at your ingredient lists. Prove me wrong.
Please don't post replies until you investigate your ingredient lists from food in your cupboards. |
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I have looked. Not a single item in the cupboard or refrigerator in the past eight years has had this ingredient.
Quote:| My cure may not work for everybody, |
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Sure covered your butt here. But then again, the word everybody can also be replaced with anybody can't it. It would read better that way and be more truthful.
Quote:| especially not loud-mouth jerks like several of the American responses |
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Oh, this must be why your cure has not worked for me. Well, at least I know why now. You did not say this could automatically eliminate us from your cure. Darn.
Kevin M
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don
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Re: Finally understand cause of CH
« Reply #43 on: Aug 30th, 2004, 9:25pm » |
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Quote:| The wide variety of cures out there |
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Thats the fucking problem!
There are so many of them that after 26 years of suffering I still cant decide which one I want.
I've been told I look good in a tin foil hat but it clashes with my vibrating glasses. On and on and on.
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Jonny
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Re: Finally understand cause of CH
« Reply #44 on: Aug 30th, 2004, 9:38pm » |
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The big question is........Do you know who is posting as two different people?
............................jonny
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don
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Re: Finally understand cause of CH
« Reply #45 on: Aug 30th, 2004, 9:41pm » |
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Quote:| Do you know who is posting as two different people? |
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Two? You think only two.
Ever noticed there sometimes is a big influx of newbies with strange sounding names and the same posting style?
Strong knowledge of ISPs is a good thing to have.
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| « Last Edit: Aug 30th, 2004, 9:42pm by don » |
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Jonny
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Re: Finally understand cause of CH
« Reply #46 on: Aug 30th, 2004, 9:43pm » |
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on Aug 30th, 2004, 9:41pm, don wrote:
Two? You think only two.
Ever noticed there sometimes is a big influx of newbies with strange sounding names and the same posting style?
Strong knowledge of ISPs is a good thing to have. |
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Its nice to know someones paying attenion, dude
...................................jonny
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Redd
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Re: Finally understand cause of CH
« Reply #47 on: Aug 30th, 2004, 9:55pm » |
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Yeah sounds familiar Boys....
can I get in on this?
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Pegase
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Re: Finally understand cause of CH
« Reply #48 on: Aug 30th, 2004, 11:15pm » |
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on Aug 30th, 2004, 5:47pm, Margi wrote:"wow, hey thanks Margi, for the calm, level-headed post."
"hey, no problem."
and now... back to your regularily scheduled program.
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That was perfect Margi.... Thanks darling... We canadian are good peacekeeper no?
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eyhavhedaches
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Re: Finally understand cause of CH
« Reply #49 on: Sep 1st, 2004, 12:29pm » |
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I have to agree with him about the way some people were responding to him. We are all in the same boat and nanook has experianced pain just like the rest of us. There was no where in his message did he claim that he found " the" cure but that he has found what seems to be working for him. Every single one of our clusters are all differant almost in the same sense of our fingerprints are all differant, however the one common facter and simularity is that we all experiance pain. The reason this board exists is because we share what works and what don't and if what nanook helps out just one other person that uses this board than he has done that person a great deed. However nanook, I would like to caution you, I do not believe you have found your cure rather than having found your major trigger. You may be in an extended remmision period which many of us have experianced and it could be leading you to believe that the disodium was the cause. You may be setting your self up for a major dissapointment when they return. I was thirteen when I was reffered to a dietician to help with my Ch which was than very very uncommonly heard of. The dietician cut all sodiums out of my diet and it did not manage to effectively do anything. Sorry bout the bad news!!
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