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Topic: Relief at last!!!!! (Read 318 times) |
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synergy
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Relief at last!!!!!
« on: Aug 26th, 2004, 4:45pm » |
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Marc started using the oxygen therapy yesterday and so far it has aborted 3 out of 4 attacks!!!!
We dont want to get our hopes up too much but it is so hard not to - this is the first time something has worked.
On the one attack that the oxygen didnt abort the beast - it did seem to stop the attack getting any worse, but marc said just concentrating on his breathing with the O2 helps.
Im so happy i could cry - its so nice to see marc back again without that pain expression on his face - he managed to play with our baby daughter emma for over 2 hours today and feed her dinner without the beast stopping him!!!!
I know the O2 wont work every time but even if it works just on one attack a day - thats better than what we had to deal with!!
Thankyou to everyone and love and PF days to all!!!
love sarah, marc and baby emma!!
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E-Double
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Re: Relief at last!!!!!
« Reply #1 on: Aug 26th, 2004, 5:16pm » |
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truly is!! best and keep us updated,
Eric
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Ronny
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Re: Relief at last!!!!!
« Reply #2 on: Aug 26th, 2004, 5:32pm » |
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Yabbe Dabbe Doo
Great !!!!! 
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IndianaJohn
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Re: Relief at last!!!!!
« Reply #3 on: Aug 26th, 2004, 5:42pm » |
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Great news Sarah! So glad that marc and all of your family is getting some much needed relief!
Best Wishes!
John
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Kevin_M
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Re: Relief at last!!!!!
« Reply #4 on: Aug 26th, 2004, 7:39pm » |
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Oxygen has saved many here. It seems to work for him, keep him in good supply. Glad to hear. 
Kevin M
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Kris_in_SJ
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Re: Relief at last!!!!!
« Reply #5 on: Aug 26th, 2004, 8:27pm » |
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So glad for all of you!
Many Hugs,
Kris
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Biker
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Re: Relief at last!!!!!
« Reply #6 on: Aug 26th, 2004, 8:33pm » |
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You may wish to consider getting a back up bottle of O2. Comes in real handy when one runs out. Glad something is working. Happy Day!!!!!!
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Redrum
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Re: Relief at last!!!!!
« Reply #7 on: Aug 26th, 2004, 10:34pm » |
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WOOOHOOO! 
on Aug 26th, 2004, 4:45pm, synergy wrote:
On the one attack that the oxygen didnt abort the beast - it did seem to stop the attack getting any worse, but marc said just concentrating on his breathing with the O2 helps. |
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This is what I have happen too, In my experience when the O2 doesn't abort the HA it will maintain it at a more tolerable level BUT if I quit the O2 before the HA is completly gone it will come back at me with a vengence. dont know if Marc will have the same but I thought it was worth the warning.
Breathe on
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synergy
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Re: Relief at last!!!!!
« Reply #8 on: Aug 27th, 2004, 4:05am » |
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Thanks for the advice redrum - its still early days and we know not to expect it to work wonders everytime - we were told by ouch to stay on the oxygen for a further 5-10mins after the attack has gone just to make sure.
Biker - we were prescribed 8 cannisters and we thought that would last a while! But marc has already used up one big cannister in 2 days!!! We are only allowed to get more cannisters once marc is on the last one.
Thanks again to everyone!
p.s marc had another night of success!!!!
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Woobie
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Re: Relief at last!!!!!
« Reply #9 on: Aug 27th, 2004, 7:55am » |
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on Aug 27th, 2004, 4:05am, synergy wrote:
Biker - we were prescribed 8 cannisters and we thought that would last a while! But marc has already used up one big cannister in 2 days!!! We are only allowed to get more cannisters once marc is on the last one.
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Don't EVER let him run out! If he's anything like Ramon - he'll keep O2 in the house all year long. YOu know, JUST IN CASE!
There's also tricks you can use with the O2 - like getting it COLD. I dont know how -but I've heard people talking about it. Apparently it works better.
I know someone knows how - i'm sure they'll speak up.
Congratulations on the success!
tina 
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FZfan
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Re: Relief at last!!!!!
« Reply #10 on: Aug 27th, 2004, 8:48am » |
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fantastic news, sarah. so glad o2 is helping.
I highly recommend continued breathing for 5 to 10 minutes after the attack aborts. Good job.
I love o2 success stories.
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lionsound
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Re: Relief at last!!!!!
« Reply #11 on: Aug 27th, 2004, 9:59am » |
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That's fantastic!
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synergy
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Re: Relief at last!!!!!
« Reply #12 on: Aug 27th, 2004, 11:51am » |
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Ive heard about cooling the o2 down - your supposed to put the hose in icy water or something like that - anyone know?
Marc says it really hurts his lungs after about 5 mins on the o2 - is this normal?
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IndianaJohn
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Re: Relief at last!!!!!
« Reply #13 on: Aug 27th, 2004, 12:20pm » |
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Got a bubbler on the O2? that may help.
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ex_pat_asia
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Re: Relief at last!!!!!
« Reply #14 on: Aug 27th, 2004, 12:31pm » |
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on Aug 27th, 2004, 12:20pm, IndianaJohn wrote:| Got a bubbler on the O2? that may help. |
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John is right. If you aren't humidifying the Oxy then it could be the trick to make it more comfortable. Having said that---> THREE CHEERS AND WHOOPEE!
I love to read posts like this. Its victory dance time. 
PFDAN to all,
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ex_pat_asia
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dance like no one is watching,
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synergy
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Re: Relief at last!!!!!
« Reply #15 on: Aug 27th, 2004, 1:23pm » |
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what is a bubbler???
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