Author |
Topic: Relief at last!!!!! (Read 322 times) |
|
synergy
New Board Veteran
There is a rainbow out there somewhere....
Gender: 
Posts: 106
|
 |
Relief at last!!!!!
« on: Aug 26th, 2004, 4:45pm » |
 Quote  Modify
|
Marc started using the oxygen therapy yesterday and so far it has aborted 3 out of 4 attacks!!!!
We dont want to get our hopes up too much but it is so hard not to - this is the first time something has worked.
On the one attack that the oxygen didnt abort the beast - it did seem to stop the attack getting any worse, but marc said just concentrating on his breathing with the O2 helps.
Im so happy i could cry - its so nice to see marc back again without that pain expression on his face - he managed to play with our baby daughter emma for over 2 hours today and feed her dinner without the beast stopping him!!!!
I know the O2 wont work every time but even if it works just on one attack a day - thats better than what we had to deal with!!
Thankyou to everyone and love and PF days to all!!!
love sarah, marc and baby emma!!
|
|
 IP Logged |
The fastest thing on 2 legs is the toddler you have just taken your eyes off!
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
  
Gender: 
Posts: 6458
|
 |
Re: Relief at last!!!!!
« Reply #1 on: Aug 26th, 2004, 5:16pm » |
Quote Modify
|
truly is!! best and keep us updated,
Eric
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Ronny
CH.com Alumnus
New Board Hall of Famer
Yabba Dabba Doo
Gender:
Posts: 914
|
|
Re: Relief at last!!!!!
« Reply #2 on: Aug 26th, 2004, 5:32pm » |
Quote Modify
|
Yabbe Dabbe Doo
Great !!!!! 
|
|
IP Logged |
Count your rainbows, not your thunderstorms.
|
|
|
IndianaJohn
New Board Hall of Famer
Into the jaws of the Beast we ride!
Gender:
Posts: 643
|
|
Re: Relief at last!!!!!
« Reply #3 on: Aug 26th, 2004, 5:42pm » |
Quote Modify
|
Great news Sarah! So glad that marc and all of your family is getting some much needed relief!
Best Wishes!
John
|
|
IP Logged |
Did my brains fall out or is this headache over?
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: Relief at last!!!!!
« Reply #4 on: Aug 26th, 2004, 7:39pm » |
Quote Modify
|
Oxygen has saved many here. It seems to work for him, keep him in good supply. Glad to hear. 
Kevin M
|
|
IP Logged |
|
|
|
Kris_in_SJ
New Board Hall of Famer
There's no place like home.
Gender:
Posts: 1539
|
|
Re: Relief at last!!!!!
« Reply #5 on: Aug 26th, 2004, 8:27pm » |
Quote Modify
|
So glad for all of you!
Many Hugs,
Kris
|
|
IP Logged |
I'm a small woman in small town being chased by a VERY BIG BEAST!
|
|
|
Biker
New Board Old Timer
OUCH!!!!!!!!!!!
Gender:
Posts: 268
|
|
Re: Relief at last!!!!!
« Reply #6 on: Aug 26th, 2004, 8:33pm » |
Quote Modify
|
You may wish to consider getting a back up bottle of O2. Comes in real handy when one runs out. Glad something is working. Happy Day!!!!!!
|
|
IP Logged |
Ride it like ya stole it.
|
|
|
Redrum
New Board Junior
Doh!
Gender:
Posts: 65
|
|
Re: Relief at last!!!!!
« Reply #7 on: Aug 26th, 2004, 10:34pm » |
Quote Modify
|
WOOOHOOO! 
on Aug 26th, 2004, 4:45pm, synergy wrote:
On the one attack that the oxygen didnt abort the beast - it did seem to stop the attack getting any worse, but marc said just concentrating on his breathing with the O2 helps. |
|
This is what I have happen too, In my experience when the O2 doesn't abort the HA it will maintain it at a more tolerable level BUT if I quit the O2 before the HA is completly gone it will come back at me with a vengence. dont know if Marc will have the same but I thought it was worth the warning.
Breathe on
|
|
IP Logged |
It's hard to be an optimist when the glass is shattered on the floor!
|
|
|
synergy
New Board Veteran
There is a rainbow out there somewhere....
Gender:
Posts: 106
|
|
Re: Relief at last!!!!!
« Reply #8 on: Aug 27th, 2004, 4:05am » |
Quote Modify
|
Thanks for the advice redrum - its still early days and we know not to expect it to work wonders everytime - we were told by ouch to stay on the oxygen for a further 5-10mins after the attack has gone just to make sure.
Biker - we were prescribed 8 cannisters and we thought that would last a while! But marc has already used up one big cannister in 2 days!!! We are only allowed to get more cannisters once marc is on the last one.
Thanks again to everyone!
p.s marc had another night of success!!!!
|
|
IP Logged |
The fastest thing on 2 legs is the toddler you have just taken your eyes off!
|
|
|
Woobie
CH.com Alumnus
New Board Hall of Famer
I luv you guys!!!!!!!!
Gender:
Posts: 3800
|
|
Re: Relief at last!!!!!
« Reply #9 on: Aug 27th, 2004, 7:55am » |
Quote Modify
|
on Aug 27th, 2004, 4:05am, synergy wrote:
Biker - we were prescribed 8 cannisters and we thought that would last a while! But marc has already used up one big cannister in 2 days!!! We are only allowed to get more cannisters once marc is on the last one.
|
|
Don't EVER let him run out! If he's anything like Ramon - he'll keep O2 in the house all year long. YOu know, JUST IN CASE!
There's also tricks you can use with the O2 - like getting it COLD. I dont know how -but I've heard people talking about it. Apparently it works better.
I know someone knows how - i'm sure they'll speak up.
Congratulations on the success!
tina 
|
|
IP Logged |
|
|
|
FZfan
New Board Old Timer
Not Insane
Gender:
Posts: 459
|
|
Re: Relief at last!!!!!
« Reply #10 on: Aug 27th, 2004, 8:48am » |
Quote Modify
|
fantastic news, sarah. so glad o2 is helping.
I highly recommend continued breathing for 5 to 10 minutes after the attack aborts. Good job.
I love o2 success stories.
|
|
IP Logged |
There is no such thing as a dirty word. Nor is there a word so powerful, that it's going to send the listener to the lake of fire upon hearing it. - FZ
|
|
|
lionsound
CH.com Alumnus
New Board Hall of Famer
breathe
Gender:
Posts: 2021
|
|
Re: Relief at last!!!!!
« Reply #11 on: Aug 27th, 2004, 9:59am » |
Quote Modify
|
That's fantastic!
|
|
IP Logged |
|
|
|
synergy
New Board Veteran
There is a rainbow out there somewhere....
Gender:
Posts: 106
|
|
Re: Relief at last!!!!!
« Reply #12 on: Aug 27th, 2004, 11:51am » |
Quote Modify
|
Ive heard about cooling the o2 down - your supposed to put the hose in icy water or something like that - anyone know?
Marc says it really hurts his lungs after about 5 mins on the o2 - is this normal?
|
|
IP Logged |
The fastest thing on 2 legs is the toddler you have just taken your eyes off!
|
|
|
IndianaJohn
New Board Hall of Famer
Into the jaws of the Beast we ride!
Gender:
Posts: 643
|
|
Re: Relief at last!!!!!
« Reply #13 on: Aug 27th, 2004, 12:20pm » |
Quote Modify
|
Got a bubbler on the O2? that may help.
|
|
IP Logged |
Did my brains fall out or is this headache over?
|
|
|
ex_pat_asia
New Board Veteran
"Sometimes the wolves lie down and the Moon howls
Gender:
Posts: 126
|
|
Re: Relief at last!!!!!
« Reply #14 on: Aug 27th, 2004, 12:31pm » |
Quote Modify
|
on Aug 27th, 2004, 12:20pm, IndianaJohn wrote:| Got a bubbler on the O2? that may help. |
|
John is right. If you aren't humidifying the Oxy then it could be the trick to make it more comfortable. Having said that---> THREE CHEERS AND WHOOPEE!
I love to read posts like this. Its victory dance time. 
PFDAN to all,
|
|
IP Logged |
ex_pat_asia
"Work like you don't need the money,
dance like no one is watching,
love like you'll never get hurt" - Anon.
|
|
|
synergy
New Board Veteran
There is a rainbow out there somewhere....
Gender:
Posts: 106
|
|
Re: Relief at last!!!!!
« Reply #15 on: Aug 27th, 2004, 1:23pm » |
Quote Modify
|
what is a bubbler???
|
|
IP Logged |
The fastest thing on 2 legs is the toddler you have just taken your eyes off!
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss