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   Author  Topic: Survey Question  (Read 340 times)
gpolma
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Survey Question
« on: Aug 24th, 2004, 11:16am »
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I had my first bout with CH almost exactly two years ago, during which I had a CH once a day at around 3 am for about 2 1/2 weeks.   My CH began recurring two nights ago, but last night, for the first time, I had two CH in one night (2 am and 6:30 am).  Any thoughts on whether I can now expect multiple CH every day?  
 
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IndianaJohn
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Re: Survey Question
« Reply #1 on: Aug 24th, 2004, 11:23am »
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That answer has a lot of variables, such as what kind of meds are you on, how far are you into your cycle.  I don't think that one can say with certainty how many HA's your going to get per day.  I've had one a day and up to 7 or 8 / day.  
 
Sorry if this sounds like a bummer...
 
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floridian
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Re: Survey Question
« Reply #2 on: Aug 24th, 2004, 1:17pm »
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Hard to say.  Usually, I start a cycle with one headache per day, and add another every few days.  For me, not unusual to have 4 or 5 per day at the end of the cycle, with the bastards creeping into the waking hours.  But everyone is different, and your pattern might change or stay very stable.
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Re: Survey Question
« Reply #3 on: Aug 24th, 2004, 3:27pm »
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No one can tell you exactly.  No two sufferers are exactly alike and the beast mutates and re-invents himself in some pretty cruel ways sometimes.   I started out with one a day and went up to 6 - 8 per day for a couple months.  A taper of prednisone knocked that down to 3 - 5 per day.  Nothing else has touched it since.  
 
I am in my first "cycle" but it is going on 10 months now.  
 
Hopefully the double hit was a fluke and your cycle remains a short one.  Have you read all the info in the links on the left?  Some real good info there.
 
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Re: Survey Question
« Reply #4 on: Aug 24th, 2004, 11:29pm »
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My reply cant really be based on Meds, Since my "bout" with the doctor comes again tomorrow, but mine were similar.  My first cycle was always, from almost the minute, 2 hours from when i fell asleep.  Now its 2 hours from when i fell asleep, and 2 hours from when i go BACK to sleep.  I can usually expect atleast 2 attacks a night, unless the first registers really bad.  I Also find that on rare, RARE nights, If i have an attack before I go to sleep, the chances of me not waking up are increased greatly.
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Re: Survey Question
« Reply #5 on: Aug 25th, 2004, 10:16am »
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You can expect to get hit when and as many times as the beast wants to hit you.  Sorry, but that is just the way it is.
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vig
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Re: Survey Question
« Reply #6 on: Aug 25th, 2004, 1:00pm »
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and you don't want any self-fulfilling prophecies either when you start expecting something...
Just LIVE!
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