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Topic: Re: nauseous clusterheads unite! (Read 3288 times) |
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JDH
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Re: nauseous clusterheads unite!
« Reply #25 on: Aug 10th, 2004, 9:05am » |
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on Aug 10th, 2004, 8:44am, thomas wrote:
It would be like having straight couples post on a gay marriage site, yes they both live together, both couples love their respected mates, and they both have sex. HOWEVER, they don't have a frickin' clue what the other couple is going through or talking about for that matter. |
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Good analogy T-man.
Jim
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ex_pat_asia
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Re: nauseous clusterheads unite!
« Reply #26 on: Aug 10th, 2004, 12:54pm » |
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on Aug 10th, 2004, 12:46am, Ueli wrote:Ex, you can't convince me with
This is a oversimplified wishy-washy statement, often quoted by people with not much knowledge, who get a headache too when they drink too much.
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Ueli, this kind of comment is counter productive and vapid to an extreme - much like the rest of your post. I don't have anything to prove to you about my experience with CH (30 years) or the extent of my knowledhe about them or why your arguments void of rationale. You wouldn't understand them. It is self evident to any person with any intelligence. So take your insults elsewhere.
Thomas, you come closest with a rational argument by posing an analogy that slightly fits. It doesn't pursuade me completely. Actually, this whole discussion took place because a psoter was treated dismissively by another...and it turned out that the original poster was most likely a clusterhead.
I appreciate DJ's intentions here and am thankful for all of this. I have expressed so many times. Those of you clusterheads with experience and rational though will selectively read and note posts that are worthwhile. In the end that is all we have anyway.
I pormise not to issue any mass invitations to migraineurs.
Ueli - Buzz off
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ex_pat_asia
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don
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Re: nauseous clusterheads unite!
« Reply #27 on: Aug 10th, 2004, 12:57pm » |
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Quote:
You know. You really haven't been around long enough to say that.
You have just asked a valuable and long time contributer to "Buzz off"?
Thats balls.
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ex_pat_asia
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Re: nauseous clusterheads unite!
« Reply #28 on: Aug 10th, 2004, 1:09pm » |
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on Aug 10th, 2004, 12:57pm, don wrote:
You know. You really haven't been around long enough to say that.
You have just asked a valuable and long time contributer to "Buzz off"?
Thats balls. |
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Nope not asking...telling because I can use the ignore. But Don, there you go again...it is a club isnt it? You just confirmed it. And I am the newbie you want to slap down.
God you folks are so self absorbed that you don't see the prize. Look, the simple fact is that Migraineuers will drive the R&D dollars in vascular headache. The simple fact is that there is much overlap in the two maladies. yes they are distinct and I am all for keeping the integrity of the board and its focus on cluster...for gosh sake...I have them too. But you guys are way off base. And Ueli with the insults will buzz off...doesnt have a choice...as far as my reading is concerned. Why waste the time?
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ex_pat_asia
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don
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Re: nauseous clusterheads unite!
« Reply #29 on: Aug 10th, 2004, 1:16pm » |
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You are going to interpret any post to fit exactly what you want it to mean.
Quote:And I am the newbie you want to slap down.
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Again not even close.
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IndianaJohn
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Re: nauseous clusterheads unite!
« Reply #30 on: Aug 10th, 2004, 1:49pm » |
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"Can't we all just get along?"
Wonder if we scared her off? Hope not, she did sound like she did have CH.
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Did my brains fall out or is this headache over?
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pubgirl
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Re: nauseous clusterheads unite!
« Reply #31 on: Aug 10th, 2004, 2:00pm » |
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ex-pat, I know you mean well, but you are reading what you want to read again and it is getting frustrating.
I DID NOT EVER SAY GR8FULNASEOUSGIRL DIDN'T HAVE CLUSTERS.
I just said that we should not "highlight upfront any atypical symptoms for newbies" as this would cause (in my view) huge numbers of undiagnosed people who do not have CH thinking they do. The upshot of this is that they go down a difficult treatment route for a condition they do not have and very probably miss a simple treatment which could relieve their pain.
The symptoms gr8fulnauseous girl (wish I had a name, feels awful using just that, sorry) has are NOT typical Ch symptoms. This doesn't mean she doesn't have CH. She knows better, but many, many who come here do not.
I feel a sense of responsibility to try my best to make sure that if somone doesn't have CH that they get the right treatment for the headache condition they DO have. Check the archives if you think I'm bullshitting
Wendy
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writer
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Re: nauseous clusterheads unite!
« Reply #32 on: Aug 10th, 2004, 2:32pm » |
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Ex_pat_asia makes some good points. I made one reasonably well-thought-out post here, some time back, and was so curtly and quickly dismissed I have not cared to repeat the experience.
Writer
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pubgirl
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Re: nauseous clusterheads unite!
« Reply #33 on: Aug 10th, 2004, 2:41pm » |
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writer
I can't get my PC to find your old posts. What was your point? Would it help to make it again with everyone (including me  ) to remember that we have to stop being cranky impatient sleep deprived clusterheads (which many of us are) and listen.
Wendy
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| « Last Edit: Aug 10th, 2004, 2:42pm by pubgirl » |
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don
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Re: nauseous clusterheads unite!
« Reply #34 on: Aug 10th, 2004, 3:09pm » |
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Quote:| Ex_pat_asia makes some good points. |
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Never said he didn't. What I did say is that he seems to be missing the whole point and intention of the site.
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Prense
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Re: nauseous clusterheads unite!
« Reply #35 on: Aug 10th, 2004, 4:30pm » |
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on Aug 10th, 2004, 1:09pm, ex_pat_asia wrote:| Look, the simple fact is that Migraineuers will drive the R&D dollars in vascular headache. |
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Pass that on to Goadsby and ask him to stop wasting his time...
Out of all the websites out here that are devoted to head pain, I ended up finding the only support board for CH...
Wonder why...
Chris
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E-Double
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Re: nauseous clusterheads unite!
« Reply #36 on: Aug 10th, 2004, 8:25pm » |
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Pain Sucks!!!!!!!!!!
so does the intolerance and the impatience that some of us develop from this damn affliction
I support those who need it and ya'll are my family.
Now besides the prevents and the aborts ... take a Xanax and chill because all the drama is going to trigger someone into an attack! 
Thanks for listening...
Love ya'll and here to help if I can.
Eric
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don
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Re: nauseous clusterheads unite!
« Reply #37 on: Aug 10th, 2004, 8:46pm » |
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Decaf dude. Decaf.
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E-Double
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Re: nauseous clusterheads unite!
« Reply #38 on: Aug 10th, 2004, 8:51pm » |
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on Aug 10th, 2004, 8:46pm, don wrote:
LOL!!!!!
Sorry Don but I guess the point was made 
E
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ex_pat_asia
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Re: nauseous clusterheads unite!
« Reply #39 on: Aug 11th, 2004, 3:11am » |
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All points taken, will think them through...believe as always that in the loggerheads good points can be missed.
Special apologies to Ueli for telling him to "buzz off". Don't do it and allow me a retraction.
Written with humility and a sure knowledge that I won't always be able to get a point across.
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| « Last Edit: Aug 11th, 2004, 3:14am by ex_pat_asia » |
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ex_pat_asia
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Margi
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Re: nauseous clusterheads unite!
« Reply #40 on: Aug 11th, 2004, 9:06pm » |
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hey, great post, nauseagirl (we gotta find you a better name! )
We have some sufferers in your area over at OUCH Canada - they may be able to get you in touch with a cluster knowledge doc in Ontario, ok? Please come visit us.
And, again - please try the gravol. It's magic.
Hope to see you north of the 49th!
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IndianaJohn
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Re: nauseous clusterheads unite!
« Reply #41 on: Aug 11th, 2004, 9:17pm » |
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Yes, Great post ngirl, welcome back!
For the rest of us, I know I'm a newbie too, but lets not have these kind of debates on a newbies thread. Can't you see how absolutely discouraging it can be? I agree that this board should be for CH suffer's only, lord know we get misdiagnosed enough. But if a debate must take place, could we not start it on another thread? All I'm saying that we should direct newbies to the cluster quiz and ask questions. I feel very fortunate to have been diagnosed by a doctor and have most of the classical symptoms.
I wish to say one more thing. This board and all of you have made an enormous difference for the better in my life. Just know that you are here makes going through this shit so much easier and I am greatful to all of you. 6 weeks ago I thought that I was completely alone. Do you remember what that was like for yourselves? Then I found this site. And my life and my outlook on it has changed so much for the better. All of you have given me hope, and comfort that I am NOT alone...
PFDAN to ALL!
John
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E-Double
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Re: nauseous clusterheads unite!
« Reply #42 on: Aug 11th, 2004, 9:22pm » |
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on Aug 11th, 2004, 9:17pm, IndianaJohn wrote:Yes, Great post ngirl, welcome back!
For the rest of us, I know I'm a newbie too, but lets not have these kind of debates on a newbies thread. Can't you see how absolutely discouraging it can be? I agree that this board should be for CH suffer's only, lord know we get misdiagnosed enough. But if a debate must take place, could we not start it on another thread? All I'm saying that we should direct newbies to the cluster quiz and ask questions. I feel very fortunate to have been diagnosed by a doctor and have most of the classical symptoms.
I wish to say one more thing. This board and all of you have made an enormous difference for the better in my life. Just know that you are here makes going through this shit so much easier and I am greatful to all of you. 6 weeks ago I thought that I was completely alone. Do you remember what that was like for yourselves? Then I found this site. And my life and my outlook on it has changed so much for the better. All of you have given me hope, and comfort that I am NOT alone...
PFDAN to ALL!
John |
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Samantha_Smith
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Re: nauseous clusterheads unite!
« Reply #43 on: Aug 11th, 2004, 9:26pm » |
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Holy cow! Gr8fulnauseousgrl survives all the flamings, miscommunications, misinterpretations, and lives to post again while being a newbie! All hail Gr8tfulnaesousgrl! Props! You go girl! You have my total respect (whether or not you have clusters) just based upon the fact that you posted again and beat all the odds! Unbelievable! Wow! Samantha LOL
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don
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Re: nauseous clusterheads unite!
« Reply #44 on: Aug 11th, 2004, 9:57pm » |
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We sufferer the most intense pain known to man.
What is there not to believe about that making someone sick to their stomach while being attacked.
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Big Dan
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Re: nauseous clusterheads unite!
« Reply #45 on: Aug 11th, 2004, 10:34pm » |
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Yeah..... so anyway.
Its not so much that the light that the uber-bitch would insist on shining in my eye (when I used to believe in the ER) really made it hurt more, it just made me want to strangle someone....
.... and the only time I got 'ill' was toward the end of a 6 hour bangfest... and it was purely from exhaustion...
.... and Don's a poopie head.
-Big Dan
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| « Last Edit: Aug 11th, 2004, 10:35pm by Big Dan » |
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Big Dan
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Re: nauseous clusterheads unite!
« Reply #46 on: Aug 11th, 2004, 10:40pm » |
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Thing is, gr8fulnauseousgrl (so much easier to copy and paste)....
... is that each and every CHer is different... sure, ya can break it down into those who spew and those who don't... but then it breaks down even farther from there...
... ultimately, you'll just have to find out what works specifically for YOU, while working with a Neuro that's worth his weight in salt....
and PF2U...
-Big Dan
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Azrael
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Re: nauseous clusterheads unite!
« Reply #47 on: Aug 12th, 2004, 2:47am » |
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gr8fulnauseousgrl... Just wanted to mention that you may want to google "Cluster-Migraine Syndrome" Good luck and welcome!
PFDAN....................................... Drk^Angel
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don
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Re: nauseous clusterheads unite!
« Reply #48 on: Aug 12th, 2004, 2:57pm » |
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A poopie head? Your fucking brutal!
ROFLMMFAO.
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| « Last Edit: Aug 12th, 2004, 2:57pm by don » |
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Lizzie2
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Re: nauseous clusterheads unite!
« Reply #49 on: Aug 12th, 2004, 7:50pm » |
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So my question is a spin off...what do you take for this nausea? Anything?
I've been having some major nausea/vomiting lately, but it isnt due to CH. It's due to the meds for CH. We figure it is the lithium which is making me so sick since the zonegran WAS making me sick, but that was stopped, so now it seems like the lithium is the culprit! I have bad reactions to compazine and phenergan, so I just was given Zofran the other day. I really wanted to test it out, but 10 seconds after I took the pill, I threw it back up. Oy....
Well hope you get something that treats the nausea! And I would have to say that I agree with Dan because there are so many tiny variations for people even though we have major things in common...it's rather difficult to pinpoint them all...
Good luck!
Carrie/Lizzie2 
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