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Topic: Occipital Nerve Stimulator (Read 286 times) |
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Lizzie2
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"L'Chaim"~Hebre w Toast~"To Life"
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Occipital Nerve Stimulator
« on: Jul 15th, 2004, 7:20pm » |
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Well, it's come to the point where my neuro wants me to look into this. I've failed just about every preventive and abortive known to man. I don't have any idea if my insurance would cover this, but I guess it is worth looking into. Do any of you know where I can find more information about the ONSI? Thanks!! Carrie
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Tiannia
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Life does not apologies......
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Re: Occipital Nerve Stimulator
« Reply #1 on: Jul 15th, 2004, 7:28pm » |
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Unsolved.... I had the RFG (on my occipictal nerve and it did dick. The nearve block helped for a little bit but 2 days later bck to full strength HA) Sorry shadows hitting hard. Hope it works for you.
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Lizzie2
CH.com Alumnus New Board Hall of Famer
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Re: Occipital Nerve Stimulator
« Reply #2 on: Jul 15th, 2004, 7:33pm » |
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Sorry to hear you aren't doing well either, Tia. I had the nerve block done again today. Last time, I got 2 days relief out of it. Today, no CH yet but my constant headache is still at a 9. I couldn't go to any classes today. This shit is getting bad...... Hugz, Carrie
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pubgirl
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Re: Occipital Nerve Stimulator
« Reply #3 on: Jul 15th, 2004, 7:41pm » |
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Lizzie/Carrie Beth You could post on the Visitors section of the Support Board at OUCH UK. One of the moderators there has had the ONSI and also knows about the progress of most of the others who have had it done in the UK by Goadsby's team. Alternatively, message me your email and I will ask him to email you for a chat. Wendy
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Lizzie2
CH.com Alumnus New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
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Re: Occipital Nerve Stimulator
« Reply #4 on: Jul 15th, 2004, 8:03pm » |
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Thanks, Wendy! I just PM'd you some stuff! Hugz, Carrie
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UN_SOLVED
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Re: Occipital Nerve Stimulator
« Reply #5 on: Jul 16th, 2004, 12:49am » |
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YES ... been there, done that. What questions do you have ? ASK AWAY... http://www.chhelp.org/michaelsprocedures.html I'd be happy to answer any questions you have about the ONSI procedure. PM me ... (but I won't be back until Sunday ... going to Nashville ) Unsolved
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Lizzie2
CH.com Alumnus New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
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Re: Occipital Nerve Stimulator
« Reply #6 on: Jul 16th, 2004, 12:51am » |
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Unsolved, I talk to you about it in Nashville...I'll be there tomorrow night! See you soon, Carrie
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UN_SOLVED
New Board Hall of Famer
I need a fully-automatic Imitrex injector !!
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Re: Occipital Nerve Stimulator
« Reply #7 on: Jul 16th, 2004, 12:53am » |
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Cool ... see you then Unsolved
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pubgirl
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Re: Occipital Nerve Stimulator
« Reply #8 on: Jul 16th, 2004, 3:45am » |
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Carrie That would be a good balanced view. Talk to one person who has now had success with the ONSI (Mike's ONSI is working well now), and one who hasn't. At least you can get the whole picture then Wendy
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