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Topic: Your longest attack (Read 1701 times) |
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pubgirl
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Can I ask people what their longest lasting unaborted CH attack has been?
I'm referring here to a full blown attack with autonomic symptoms and severe pain, not shadows or low level attacks.
I don't use a clock but estimate my longest before I got good abortives and stopped them all was about an hour.
I'm not just being nosy, this will help when talking to new people on the Helpline where there is a migraine/CH symptoms overlap.
Thanks
Wendy
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forgetfulnot
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I dono, blew my head off 
4:30 yes I was talking to the MAN
Lee
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UN_SOLVED
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Re: Your longest attack
« Reply #2 on: Jul 3rd, 2004, 7:15pm » |
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on Jul 3rd, 2004, 6:44pm, pubgirl wrote:| longest lasting unaborted CH attack ...... a full blown attack |
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About 2 - 2.5 hours ... long time ago. Couldn't handle that again.
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E-Double
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Re: Your longest attack
« Reply #3 on: Jul 3rd, 2004, 7:27pm » |
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Quote:on Today at 6:44pm, pubgirl wrote:
longest lasting unaborted CH attack ...... a full blown attack |
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I've gone a bit over 3.
I hope never again.
I keep this sick spread sheet which has only shown that I can go for an hour with zomig or 3 or 25 minutes or fill in the blank.
No more fo all!!
E
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Melissa
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1.5hrs
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mynm156
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Re: Your longest attack
« Reply #5 on: Jul 3rd, 2004, 11:16pm » |
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Hey PubGirl,
I think it was about 2.5 hours I get consistant 1.5 CA though. I was at a my girlfriends/ future wifes house and it was the first time she ever saw one. (she lived one and a half hours from my house) Her mom was an LPN and I was without drugs at the time. Her mom gave me some Vicodine at the time but she was the perfect Angel trying to take care of me yet understanding there was nothing she could do.
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Jayne
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Re: Your longest attack
« Reply #6 on: Jul 3rd, 2004, 11:19pm » |
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Mine was 3 1/2 hours. It's a good job there wasn't a gun in the house that day.
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FZfan
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Re: Your longest attack
« Reply #7 on: Jul 4th, 2004, 12:04am » |
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1 and 1/2 hours here. I'm a clock watcher when I get attacked, so I'm certain on this.
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chrismo
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Re: Your longest attack
« Reply #8 on: Jul 4th, 2004, 1:09am » |
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2 to 2.5 hours
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pubgirl
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Interesting. I had never heard of someone having an attack longer than 2 hours.
Of course the 'experts' say 15 minutes-3 hours, or it probably isn't CH.
I ask because although in theory we have the restlessness and abrupt onset/cessation differentiator as well, there are migrainers who have those, and migraine attacks that can be that short.
So I also want to know if there are many CH'ers that have long attacks when I talk to callers with confused symptoms.
Thanks folks, keep 'em coming
Wendy
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| « Last Edit: Jul 4th, 2004, 2:08am by pubgirl » |
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Ronny
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Re: Your longest attack
« Reply #10 on: Jul 4th, 2004, 2:47am » |
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Hi,
It started about 7 years ago, from time to time i had an attack which lasted 15 to 30 mins. Since i didnt know what it was, i took a few pain killers and poof, 15 mins later the pain was gone. Good pain killers i thought. I would never leave home without them. Then, early this year, all of a sudden, the attacks changed from 15 mins to 2 hours, then i realised that the painkillers didnt help, took a whole bottle the first couple of times. So, since this year, the attacks last for at least 60 mins, with an average of 90 mins and peaks of 120 mins. 2 during the day and 1 at night.
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ave
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Re: Your longest attack
« Reply #11 on: Jul 4th, 2004, 4:07am » |
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Usually did 20 - 40 minutes. Just once had an all day attack with waxing and waning, but mixed in with a migraine - which uses the same side of the head.
So cluster pain rather inseperable, but never over a kip 7 that day, I think. Migraine reigning supreme at mig 10. Which excarbated the cluster symptoms.
Lots of fun was had all round...
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Tory
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Re: Your longest attack
« Reply #12 on: Jul 4th, 2004, 9:26am » |
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Hi, Pubgirl,
My longest attack was 1 hour 15 minutes. It was only the second attack I had ever had and I ended up in casualty. The ususal amount of time is 15 to 20 minutes. The second longest was 45 minutes (on a coach in Paris last week!!).
I have been keeping a spreadsheet aswell. Trying to find a pattern.
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Jayne
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Re: Your longest attack
« Reply #13 on: Jul 4th, 2004, 10:55am » |
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Just to add, my usual attacks were 1.5 to 2 hours, but that day I had the 3.5 hour attack, it was a cluster, I have never suffeered with migraines.
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Redd
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Re: Your longest attack
« Reply #14 on: Jul 4th, 2004, 11:13am » |
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Before I knew what these were and had any meds to help? Never had one only last 15 minutes. Always lasted between 2 and 3 hours. I don't think the topomax ever did anything but rip me off of a good chunk of IQ points, but I will say the Verapamil must be whats helped to shorted them to 45 min to an hour without aborting. I really hate having to ride out some attacks because they won't allow me enough Trex. But I do. Talk about effecting productivity in the workplace. Oh well what ya gonna do?
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Lobster
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Re: Your longest attack
« Reply #15 on: Jul 4th, 2004, 2:26pm » |
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About 1.25 - 1.50 hours.
Now I abort them in 1.25-1.50 minutes.
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Prense
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Re: Your longest attack
« Reply #16 on: Jul 4th, 2004, 3:33pm » |
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My average attack duration without aborting is about 2 hours with my longest lasting just under 3.
When I abort, they are normally 30-45 minutes. The length is due to me being selective on which attacks to abort.
Good thread Wendy.
Chris
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pubgirl
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Brilliant info. Thanks folks. Apart from poor Jayne's nasty, the 3 hour limit suggested by the Doc's looks relatively sound at the moment
Can I add in another question?
These very long attacks, did they end abruptly, or did they 'wane'?
Wendy
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Biker
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Re: Your longest attack
« Reply #18 on: Jul 4th, 2004, 7:55pm » |
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Before being told I had CH, I thought my brains were leaking out. Not real sure just how long they lasted. A couple of hours seemed like weeks. Never really remember looking at a clock. I do know now, that it takes Imitrex from 40-60 minutes to start working after I swallow it. Never had a CH stop abruptly. They kinda wayne away in waves.
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Kris_in_SJ
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Re: Your longest attack
« Reply #19 on: Jul 4th, 2004, 8:13pm » |
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My longest was 2.5 hrs - just before I was diagnosed. It was the third night in a row. If I remember it right, it kind of waned.
The ones I have at the beginning and end of a cycle now (the ones I try to "ride out" are like that too- though shorter - beyond 15 minutes and I'm reaching for the Imitrex (relief in 2 minutes max). I have a few seconds of the most intense pain imaginable (10+ if possible) then it starts to decrease in intensity.
Kris
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jonny
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3 hours
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Melissa
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on Jul 4th, 2004, 6:37pm, pubgirl wrote:
Can I add in another question?
These very long attacks, did they end abruptly, or did they 'wane'?
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Mine always end like a big wave crashing into shore and whisking them away. They leave as quickly as they come. I suppose that would fall into the "abruptly" catagory.
mel
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| « Last Edit: Jul 4th, 2004, 8:32pm by Melissa » |
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don
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I didn't realize there were that many people here that actually GET CH !
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catlind
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Re: Your longest attack
« Reply #23 on: Jul 4th, 2004, 11:20pm » |
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I would think one of the key things to help differentiate would be to use the IHS criteria and query about the nature of the pain. As far as I know CH pain is always boring or piercing in nature, and migraine pain generally has a throbbing or pounding quality to it. So if there is some question as to which it is, ask the person to describe the nature of the pain maybe?
Just my 2 cents worth
Cat
edited to help Don past the easy mark LOL
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| « Last Edit: Jul 5th, 2004, 1:27am by catlind » |
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don
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Quote:| generally has a throbbing quality to it |
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Nah! To easy.
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