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Topic: The New York Headache Center(Follow Up!!) (Read 936 times) |
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E-Double
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The New York Headache Center(Follow Up!!)
« on: Jun 28th, 2004, 3:48pm » |
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Anyone have any experience with this place or dealt with Dr. Mauskop?
Always appreciated!!!
E
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| « Last Edit: Jul 9th, 2004, 5:48pm by E-Double » |
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I can't believe that I have to bang my
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E-Double
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Re: The New York Headache Center
« Reply #2 on: Jun 28th, 2004, 7:24pm » |
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Quote:
It's actually a good review if you read past the 1st sentence.
The only thing that I can see being put by is the fact that he also does alternative meds (read your reply about Accupuncture = QUACK)
Quote:| Personally I wouldn't even consider him in the running as my neurologist. |
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May i ask Why??
It's so damn hard to find a damn Dr. in NY period nonetheless a reputable one!!!
Good luck to you,
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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don
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Re: The New York Headache Center
« Reply #4 on: Jun 28th, 2004, 9:13pm » |
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Sure. This just me.
I wouldn't consider a neuro who is seeking to use alternative treatments AS an alternative to treatments that are already proven effective.
When I seek a Doc I want treatment with the most effectve medically proven results. My guinee pig days of Docs experimenting with my pain are over.
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E-Double
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Re: The New York Headache Center
« Reply #5 on: Jun 28th, 2004, 9:13pm » |
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about 9 hr drive.
Would be fun!!
Maybe we could take it together and we're lucky get a kip10 during the drive. lol
Thanks man!!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Peppermint
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Re: The New York Headache Center
« Reply #6 on: Jun 28th, 2004, 10:01pm » |
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Hey E-double, check your email.
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UN_SOLVED
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Re: The New York Headache Center
« Reply #7 on: Jun 28th, 2004, 11:43pm » |
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on Jun 28th, 2004, 7:24pm, E-Double wrote:
The only thing that I can see being put by is the fact that he also does alternative meds (read your reply about Accupuncture = QUACK)
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MHNI offers this too. They offer every type of therapy that you can imagine. From accupuncture to neurostimulators. I don't think they're "quack"s.
I'd really like to know what they are talking about HERE:
Quote:| If medical treatment is ineffective, there is also surgical treatment. This area of research is very promising. For example, there is surgery available which will get rid of the nerve itself that is sending the pain signals. As you may guess, such treatment has its risks, but the pain of cluster may make it worth investigating surgical cluster headache treatments! |
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Unsolved
PS... BTW ... Accupuncture did NOTHING for my clusters (or for anything else ! )
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| « Last Edit: Jun 28th, 2004, 11:48pm by UN_SOLVED » |
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D
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Re: The New York Headache Center
« Reply #8 on: Jun 29th, 2004, 2:37am » |
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Apparently some of you have not run into enough charlatans in the medical profession? My vote is with ‘don’ on this one.
Peace and Positive Energy
D
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Superpain
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Re: The New York Headache Center
« Reply #9 on: Jun 29th, 2004, 3:45am » |
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Screw this.
Docs and meds are too expensive.
Eat some shrooms.
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Chris
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E-Double
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Re: The New York Headache Center
« Reply #10 on: Jun 29th, 2004, 5:43am » |
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Hey all!!
How about judgement be put off until someone says they actually went there and that he is or is not effective!!!
I really asked for personal experience with this specific doctor and not a witch hunt!
I'm sure it's meant to save me time, money and hope but at the same time nothing was done yet.
and this Professional is still a "name" out there who happens offer alternative treatments for non CH'ers while providing everything we talk about on this list for the "heads"
Appreciated but wow!
I'm just trying to get some help in an area that is near impossible!! Freakin' NY!!! All I know is I'm reaching my point 
E-Double the frustrated then before
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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don
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Re: The New York Headache Center
« Reply #11 on: Jun 29th, 2004, 6:05am » |
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It's not a witchunt it is a comprehensive (as best as a message board can do that) look at a Doc you are considering to treat you for the most painful condition known to man.
It is the comprehensive research that you do that will save you the frustration.
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E-Double
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Re: The New York Headache Center
« Reply #12 on: Jun 29th, 2004, 6:32am » |
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Gotchya & i understand that....
What I'm saying is that YES I want empirically validated procedures and treatments.
and that if this fella is a Neuro that provides this to CH'ers (the meds, etc..)
then great!! Simple!
I would not go see a "quack" for anything. I know and have researched enough to know that MEDS (including O2)are going to be the way.
all I was asking or saying was: does anyone have experience with this dude?
and... just because he may also use alternatives for other types of headaches NOT like ours.... does this turn you away?
Thanks again!!
trying to keep that Positive Mental Attitude!
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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don
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Re: The New York Headache Center
« Reply #13 on: Jun 29th, 2004, 6:46am » |
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Quote:just because he may also use alternatives for other types of headaches NOT like ours.... does this turn you away?
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No but I would want to know exactly how he does treat our condition before wasting time going to see him.
Quote:| trying to keep that Positive Mental Attitude |
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Gotta say that under the conditions your doing a good job of it. Just trying to steer you clear of all the wasted time and frustrations myself and others have gone through seeking appropriate treatment.
Keep asking questions and asking for help. Have you checked the preferred Doctors listing on the OUCH site?
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| « Last Edit: Jun 29th, 2004, 6:47am by don » |
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E-Double
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Re: The New York Headache Center
« Reply #14 on: Jun 29th, 2004, 7:00am » |
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Quote:| Have you checked the preferred Doctors listing on the OUCH site? |
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don
That's where I got his name!! 
and I appreciate the "good Job" comment!! It's damn hard!
This is really fucking up my whole existence. HAHA.
Seriously, Late for a client been pacing on and off since 5 which is a damn good night! Actually got ome zzz's but feel one coming on and afraid to hit the road.
Already had when driving which seems to be just wrong!!
Best to you and will keep with the P.M.A.
Feel good,
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Superpain
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Re: The New York Headache Center
« Reply #15 on: Jun 29th, 2004, 3:14pm » |
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He's gotta be pretty good to be holding his position, I'd hope...
And if he's not... Well, it's just one more doc you don't go back to. There's plenty in NYC... Gotta be.
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Chris
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Re: The New York Headache Center
« Reply #16 on: Jun 29th, 2004, 5:44pm » |
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on Jun 29th, 2004, 5:43am, E-Double wrote:I really asked for personal experience with this specific doctor and not a witch hunt!
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I did do acupuncture. Sorry it wasn't with "this specific doctor"
Just trying to help
Unsolved
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E-Double
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Re: The New York Headache Center
« Reply #17 on: Jun 29th, 2004, 6:15pm » |
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honestly all,
I'm not concerned with the "alternatives" if this guy is going to find the right cocktail for me of prevents and aborts then the fact that he is also does the other shit is meaningless.
As far as the alternatives, accupuncture, biofeedback, Cognitive behavior therapy....
these are (atleast CBT and Biofeedback) are empirically based methods that could possibly used for the "anxiety" associated with our CH.
Not as the treatment!!!
Maybe I'll do my PhD dissertation on it. 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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D
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Re: The New York Headache Center
« Reply #18 on: Jun 29th, 2004, 7:19pm » |
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At some point ' xannax ' looks awfully good to some us.
Peace and Positive Energy
D
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E-Double
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Re: The New York Headache Center
« Reply #19 on: Jun 29th, 2004, 7:35pm » |
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on Jun 29th, 2004, 7:19pm, D wrote:At some point ' xannax ' looks awfully good to some us.
Peace and Positive Energy
D |
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Yuppers!!!!!! I love it. calms my ass down quickly!
For me that becomes half the battle. Well atleast 1/16 or 1/5
I'd love some CBT as well though!!
I have to get over feeling guilty for seeing my loved ones in pain over me!! and the factthat this has completely fucked up (in my mind) my rep. with my clientele. I know it hasn't but since I had a coouple of attacks in front.... WOW
Point is love Xanax as well.
Hee Hee, gotta go pace,
Later and be well,
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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kissmyglass
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Re: The New York Headache Center
« Reply #20 on: Jun 29th, 2004, 11:41pm » |
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Looks like you are about an hour away from the New England Center for Headaches (in Stamford CT).,,,I'd be all over that if I were you...
Good Luck!
Kev
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Superpain
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Re: The New York Headache Center
« Reply #21 on: Jun 30th, 2004, 2:49am » |
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Never met anyone that didn't like xanax... Unless they're some sort of "anxiety free freak"...
Plenty of anxiety witht his crew.
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Chris
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don
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Re: The New York Headache Center
« Reply #22 on: Jun 30th, 2004, 12:34pm » |
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Quote:| He's gotta be pretty good to be holding his position |
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Dr. Kervorkian holds prestigious positions but I aint going to him either.
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E-Double
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Re: The New York Headache Center
« Reply #23 on: Jun 30th, 2004, 5:43pm » |
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Quote:| Dr. Kervorkian holds prestigious positions but I aint going to him either. |
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don
in the meantime....
This morning I went to my original neuro and met with her associate. (Keep in mind the original was and or is sick thus having not been able to see me.....)
He goes over the previous plan and is looking over things. I brought in charts and graphs that I developed based on my Aches and all the variables including that could possibly be accounted for!
Asked the questions regarding tapering up and down and why this and why that?
He seemed to agree that a "mistake" occurred. I was freaking right and ofcourse you guys appear to be more so than the docs...
from another post: Quote: on Jun 26th, 2004, 4:05pm, don wrote:| The preventatives should be started a week or two before the prednisone taper if possible. Then the dosage level maintained or increased. |
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[quote]Why Depakote and not verapamil? |
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to answer and maybe it will be asked on another thread: I have awesome blood pressure so why be put on a med that any effect it negatively. no need to risk deceasing it...
Anyway:
I was pushed back up to 1500mg Depakote. My choice (He offered different meds)
because I honestly don't want to change so many damn variables at once. How the hell will i ever know what is going to be effective and he gave me imitrex stat dose. How is 2 shots going to make a difference if I am getting 4? and why not the syringe where we could try a lesser amount first then increase if I need it and
The kicker... NO Oxygen!!!!!!! go to hospital or will discuss in 2 weeks @ next visit.
THAT is Why I'm going to Manhattan to give this guy a shot!
Later!!
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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D
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Re: The New York Headache Center
« Reply #24 on: Jun 30th, 2004, 9:09pm » |
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Eric,
It can hurt more!!!
The most casual observer can see by your thread here that you are an intelligent fellow, intelligence is a plus, but with cluster headaches it is not enough. Do you have a supporter, wife, girlfriend, best friend, anyone? If not, maybe you should consider finding someone on this board that is not in cycle and has the time to help you make ‘better choices’.
If you are going to rely on a physician or specific clinic…get the best one you can find…even if it is in the rain forest of South America…going because anything is better than nothing is simply another ‘better bad choice’…in my opinion.
Peace and Positive Energy
D
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