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Topic: things can get better (Read 335 times) |
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J.ten_Dam
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things can get better
« on: Jun 21st, 2004, 3:31pm » |
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 Hi everyone. I have not been on the message board for quite some time, but I have been very buisy and I have been enjoying my nearly pain free time.
For the ons that do not know me I have been cronis since 1998. Never been PF for longer than two weeks with or without medication. Yet sice April this year although I have not been PF the pain has become bearable. I have not used Imigran since the beginning of April and have been med free since May. I still have the shedaws every day and short attacks at kip 3 everyday but this is a great relief. I used to get hit 3 to 5 times a day by kip 7 to 9 and used half a dose of imigran upto 4 tims a day depending on how bad it was.
I am strongly convinced that too much and too long usage of the medications we take are the bad doers.
I noticed when I had to stop medication because I had become immune to it that the longer I stayed med free the better my new prescription worked. When my neuro wanted me to try prednison I refused and just stayd med free as long as I could with the help of imigran and ice and then restarted my medication.
In this manner in december I started melatonin at 12mg at night after being totally med free for two excruciating months of hell. I stopt medication in April because as I mentiond above things were going good. The speach and memory problems as wel as the tyerdness and heavy sweting at night that I used to have while taking Verampamiel are things of the past. I feel great even tough I definitly am not PF and my eye stil swels amd hangs and my nose gets stuffy or starts running. Maby I am growing to old to be a clusterhead.  . I wish everyone better days preferably.
regards Joke
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wish you PFDAN
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thomas
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Re: things can get better
« Reply #1 on: Jun 21st, 2004, 3:43pm » |
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Joke, that is such good news, I'm am so excited to hear that you are doing so well.
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firebrix
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I must never weaken.
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Re: things can get better
« Reply #2 on: Jun 21st, 2004, 5:14pm » |
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Wonderful news J.!!! You must be so happy!
Thank you for posting what worked for you.
It is so encouraging to learn that CH does improve sometimes.
Have fun, laugh a lot and may CH be gone forever!
firebrix
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"All that it takes for the triumph of evil is for good men to do nothing."
Edmund Burke
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ave
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Re: things can get better
« Reply #3 on: Jun 22nd, 2004, 4:22pm » |
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Congratulations, Joke! Seeing all the pain that you had to deal with, it is absolutely great that you found melatonin to work for you.
I am so happy for you!
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There is a break in reality. Do not adjust your mind.
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J.ten_Dam
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Re: things can get better
« Reply #4 on: Jun 30th, 2004, 12:58pm » |
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Thank you and I hope you all may also have a break. I am still doing resonably fine but am affraid that the good times are changing. I can see now what an episodic might feel.
regards Joke
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wish you PFDAN
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miapet
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what doesn't kill me makes me stronger
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Re: things can get better
« Reply #5 on: Jun 30th, 2004, 8:17pm » |
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We are sending you lots of *positive energy and light*
We too believe that the medications the medical world so strongly believes in, is really not helpful to clusterheads . . .
I hope your pain stays away . . .minimal at worst . . .gone at best *smiles*
*positive light and energy*
D/miapet
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Clusterbusters Rock
www.clusterbusters.com
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