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Topic: Please help (Read 375 times) |
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tracey
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Please help
« on: Jun 1st, 2004, 11:08am » |
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Hello, I got diagnosed with this hell 3 months ago after suffering for years with no answers, even though I have had a fantastic Neurologist and a rubbish GP i have lots of questions to be answered. No-one seems to know why this has happened, i have now been through four months of hell with only a break of six days free from a ha. The neurologist says this may be linked to a head injury i had when i was 12 now 31. any ideas??? I also suffer from coeliacs disease allergy to gluten e.t.c is this common, the neurologist seemed to think pre-disposing factors are common....
HAVE ANY OF YOU ANY IDEA???????
Hope to hear from you soon.
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thomas
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CH is caused by a malfunctioning/overactive/deformed hypothalamus. Sorry to hear that you have this affliction. 
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Bob_Johnson
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Re: Please help
« Reply #2 on: Jun 2nd, 2004, 8:45am » |
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There is plenty of medical evidence that cluster can arise as a result of head trauma. There are a number of other medical problems which can have various headache syndromes as part of the package. A good doc is also a good detective.
Having said that, it's the reality that we don't know why we have clusters. Brain studies suggest that they hypothalamus is involved in cluster but just how/why is still not understood.
The best thing you can do is to put your energy into learning how to care for yourself and not get too absorbed in the "why" issues--beyond working with your doc in screening out other, possible, causes.
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Bob Johnson
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Elaine
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Tracy Take it from me it was years before anyone told me what they were and I questioned why everyday. I will more than likely question why till I die. I want to know why.
Right now the best thing to do is as Bob said find what works for you.
I tried Verapmil, O2, and I used Imitrex shots.
There are a lot of different meds that work for people here.
There is also a lot of things you can do like, a cold shower, ice around the eye. If you don't have o2 put your head in front of a air condition vent.
Just read as many post and all the stuff on this site.
Don't be afraid to email any of us. We have been where you are and we are hear to help any way we can.
You might even try visiting the chat room we use and chat we are there at night. www.headachesupportgroups.com look for Chat and thats where we will be after 9 PM eastern time some times people are there durning the day. If you need to talk just post Chat Please someone will show up 
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