Author |
Topic: Rec. Medications? (Read 342 times) |
|
Mike_Easton
New Board Newbie
YUP
Gender: 
Posts: 17
|
 |
Rec. Medications?
« on: May 17th, 2004, 10:08am » |
 Quote  Modify
|
Hi again. I was wondering how else I could approach my clusters.
I am 99% sure I have clusters, and the only things that would take me not to believe this fact are that: I also have a migraine, I don't get a droopy eyelid, and nothing seems to really help it.
I so far have tried many drugs, but here are the ones that are really supposed to help.
Imitrex- Not too good. Aborted the headache after 20 minutes but came back more severe next time, which was an hour and 1 half later. Doctor said I couldnt take so much. Status- Not using
Prendisone- I am on the limit of the adult amount, and since I am not what you would call a large 14, the side effects are getting to me. I get extremely hyper after I take them, and I don't know if I get nauseous (and I vomit) and/or dizzy because of these meds or the verapamil.
Verapamil- Same thing as the prendisone minus the hyper.
None of the above two have seemed to have done anything.
Zomig- I can only use two a day and when I use it, it has the same effect as the imitrex. But what was most surprising with it, was that a 6 pack costs 190 dollars!
Along with Melatonin, Benadryl and this stuff I take under my tongue that is all I am taking.
-----------------------------------------------------------------
Is there any other stuff that I can reccommend to my doctor? (He works at the Headache Center of Connecticut.)
|
|
 IP Logged |
No my name isnt Michael, nor Easton, No I dont live in South Carolina. I am 14 though.
Still waiting to see if chronic or episodic.
|
|
|
floridian
Guest
|
Quote:| I am 99% sure I have clusters, and the only things that would take me not to believe this fact are that: I also have a migraine, I don't get a droopy eyelid, and nothing seems to really help it. |
|
You need to get diagnosed - it sounds like you are working on that with a specialist. Have they ruled out CPH? That is very responsive to indomethacin and resembles clusters, although it usually has drooping. Drooping itself is not 100% required to have clusters, but it is usual. What about secretion from the eye and sinus?
|
|
IP Logged |
|
|
|
Mike_Easton
New Board Newbie
YUP
Gender:
Posts: 17
|
|
Re: Rec. Medications?
« Reply #2 on: May 17th, 2004, 3:43pm » |
Quote Modify
|
I have been diagnosed, and I dont have excrutiating jabs. It is excrutiatingly relentless.
Im just looking for more medication.
|
|
IP Logged |
No my name isnt Michael, nor Easton, No I dont live in South Carolina. I am 14 though.
Still waiting to see if chronic or episodic.
|
|
|
FZfan
New Board Old Timer
Not Insane
Gender:
Posts: 459
|
|
Re: Rec. Medications?
« Reply #3 on: May 17th, 2004, 6:05pm » |
Quote Modify
|
Have you tried Oxygen? High flow rate, non-rebreather mask. Read the link about it on the menu to the left. I'd say if you breath o2 for 10-20 minutes and the h/a aborts, there's a pretty good chance you have clusters, but get a confirmed diagnosis from a doc. If it is clusters (and I hope it isn't), then you will definitely want the o2.
Although not technically a medication, o2 therapy works for a majority of CH sufferers, and, unlike medication, has no side effects. I urge you to read about it and try it.
|
|
IP Logged |
There is no such thing as a dirty word. Nor is there a word so powerful, that it's going to send the listener to the lake of fire upon hearing it. - FZ
|
|
|
Mike_Easton
New Board Newbie
YUP
Gender:
Posts: 17
|
|
Re: Rec. Medications?
« Reply #4 on: May 18th, 2004, 10:16am » |
Quote Modify
|
I forgot oxygen, tried it. Worked the first couple of times, then it didn't.
|
|
IP Logged |
No my name isnt Michael, nor Easton, No I dont live in South Carolina. I am 14 though.
Still waiting to see if chronic or episodic.
|
|
|
miapet
New Board Hall of Famer
what doesn't kill me makes me stronger
Gender: 
Posts: 676
|
|
Re: Rec. Medications?
« Reply #5 on: May 18th, 2004, 1:16pm » |
Quote Modify
|
D gets severe rebound h/as when using over the counter meds, such as benedryl, so I would suggest stopping that one.
*positive light and energy*
miapet
|
|
IP Logged |
Clusterbusters Rock
www.clusterbusters.com
|
|
|
Harrold
New Board Newbie
I love YaBB 1G - SP1!
Posts: 1
|
|
Re: Rec. Medications?
« Reply #6 on: May 19th, 2004, 12:50am » |
Quote Modify
|
I took 960mg/day of Verapamil to abort my last attack and I take 480mg/day as a preventive. I had my first cluster attacks in 1956. I didn't discover Verapamil till after I found this site in 1997. I read about it on the message board and it's changed my life. I've had nothing worse than shadows in the seven years since I began using it.
|
|
IP Logged |
|
|
|
UN_SOLVED
New Board Hall of Famer
I need a fully-automatic Imitrex injector !!
Gender:
Posts: 733
|
|
Re: Rec. Medications?
« Reply #7 on: May 21st, 2004, 7:39pm » |
Quote Modify
|
on May 17th, 2004, 10:08am, Mike_Easton wrote:
Prendisone- I am on the limit of the adult amount |
|
WTF is that ???
Advice : (1) get properly diagnosed
(2) There are many CH meds. If you haven't found one that works, keep looking. If your doc doesn't have a 'list' to try, find another doc who is more knowledgeable about CH.
Unsolved
|
|
IP Logged |
I'm STILL alive ?
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss