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Topic: Saw the neuro today (Read 544 times) |
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Virginia
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Saw the neuro today
« on: Apr 20th, 2004, 7:14pm » |
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Well, I had an appt with my neuro today. Geez, this guy drives me nuts. He wouldn't prescribe the Verap/Lithium combo for me. He doesn't think "that Lithium should be our next course of action", "too many long-term side effects", "blah, blah, blah".
Geez, this guy drives me nuts!
He had given me a scrip for Topomax back in January that I never got filled because I was afraid of the side effects that everyone here complains about. He basically insisted that I try the Topo and that the dosage that I'm starting out I should be fine. Again "blah, blah, blah".
I was going to tell him about shrooms today but didn't work up the nerve.
He also gave me a scrip for Relpax. Did I mention this guy drives me nuts? 
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The Clusterhead formerly known as 9erfan.
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pubgirl
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You might have done 
Perhaps he deserves a kick in them!
Wendy
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| « Last Edit: Apr 20th, 2004, 7:55pm by pubgirl » |
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Prense
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Re: Saw the neuro today
« Reply #2 on: Apr 20th, 2004, 7:45pm » |
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Virginia,
My neuro also hesitated with the lith script for me. Finally, I just started on lith on April 13th. It's too early to tell if it is working or not yet. I have gone through periods of light to no attacks. Since last thursday, I have only had a couple of severe attacks, which is very good for me, but as I said...too early to tell. I hope your topamax experience is no where near what mine was.
Hang in there!
Chris
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purpleydog
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Re: Saw the neuro today
« Reply #3 on: Apr 20th, 2004, 7:47pm » |
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I once went to an appointment with a pain management Dr. I was actually interviewing him and told him as much, since I had been to a few Dr.'s by then. He didn't listen to anything I said. I told the next doc that, and he didn't believe me! My current doc is very good and listens well. 
Keep trying.
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rbmb
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Re: Saw the neuro today
« Reply #4 on: Apr 20th, 2004, 8:01pm » |
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For what its worth (and I realize everyone's different), I took lithium for quite a while and never thought it helped me much. Had to keep gradually upping the dosage and then had to have blood sample taken frequently (therapudic dose and toxic dose aren't too far apart).
Topomax controlled HAs for the first month or so that I took it, but I suffered the side effects others have complained about (memory loss, confusion). I guess my advice(if you decide to take it) would be to start out with a low dose and see if it helps with HAs and see how the side effects are (they do seem to subside with time).
By the way, I'm a 9er fan too......from way back(even before Montana, Lott and Walsh). Good luck with your headaches.
Rich
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Dover
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Re: Saw the neuro today
« Reply #5 on: Apr 20th, 2004, 9:38pm » |
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If your doc is driving you nuts, get a new one. He's not your brother. You can change your doc, you're stuck with your brother.
I am so pissed at my GP that there is no way in hell I will go pack. I am in love with my neuro. She's great.
If he bugs ya, your not going to be communicating the way you need to to make it all work. Dump him on the side of the road.
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Renee
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Re: Saw the neuro today
« Reply #6 on: Apr 20th, 2004, 11:44pm » |
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9erfan,
I tried trex and it quit working eventually, had bad reaction to zomig. Relpax has less side effects and does a good job of knocking the ch out but the only problem is it takes awhile as it is in pill form.
get a new doc!
pf times wished your way
renee
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
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CJohnson
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Re: Saw the neuro today
« Reply #7 on: Apr 21st, 2004, 8:26am » |
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on Apr 20th, 2004, 7:14pm, 9erfan wrote:| He had given me a scrip for Topomax back in January that I never got filled because I was afraid of the side effects that everyone here complains about. |
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Not everyone complains about topamax side effects. Some people tolerate it very well.
PFDANs
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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Superpain
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Re: Saw the neuro today
« Reply #8 on: Apr 21st, 2004, 5:01pm » |
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I agree, get another neuro...
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Chris
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miapet
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Re: Saw the neuro today
« Reply #9 on: Apr 21st, 2004, 10:58pm » |
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The best advice I had a doc give me was: if your doctor won't listen to you . . .it's time to change docs . . .
*positive light and energy*
miapet
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UN_SOLVED
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Re: Saw the neuro today
« Reply #10 on: Apr 22nd, 2004, 12:16am » |
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I took both Lithium and Topamax, at different times. For me, the Topamax side effects were MUCH worse than the Lithium. And we kept the Lithium levels as high as possible which included blood tests every week for awhile. I even reached 'toxic' levels twice with really no bad side effects. On the other hand, Topo made me feel stupid, confused, forgetful, and did I mention I got kidney stones twice !!!???
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mucho_pain
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Re: Saw the neuro today
« Reply #11 on: Apr 30th, 2004, 4:29pm » |
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I agree with the gettin a new doc part. I went through with the military docs and now the VA docs. They were always hesitant to try new or different meds.
Finally I told my doc to give me lithium and regular verap after reading different articles from this and other sites. He agreed and said it’s worth a try.
That was April 11th 2002, by the end of April I was relatively pain free.
I do use O2 and imitrex injections when needed, but for the most part just the verap now does it. 360mg twice a day. I weaned of the lith about a month after I went pain free.
I was serious chronic gettin hit with 6 to 8 kip 9'ers a day. I was pretty much at the end of my rope when I finally got on the lith/verap.
All good now.... so far anyway.
Greg
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jonny
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Give me an address, Im gonna put my boot in that Docs ass.
Long term sides from Lith?.....Ive taken 600 mgs every single day for well over a decade and im fine (Did I say that) a blood test every six months is all you need to tell you this. I know diff meds dont work the same on diff people but WTF!.....Dude should have at least let you try......THE SCUMBAG!
......................................jonny
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Tiannia
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Re: Saw the neuro today
« Reply #13 on: Apr 30th, 2004, 7:07pm » |
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Jonny at least you did not say that you are normal.
Virginia, find a new doc. If you are scared to take a med, they should not force you to, 1, and 2 you should be working with your doc as you are one of his subjects but a patent.
I hope htat the topomax works for you. My experience was very bad. Felt like food poisoning, vomitting, cramping the whole nine yards. Started within 24 hours of taking my first dose and stoped within 24 hours of my last dose and I was only on it for 16 days. It did seem to make the HA kless severe, or I just hurt all over and could not tell when one HA sarted and stopped anymore.
Keep close tabs on the dose and work up slowly. Some peole swear by Topomax....
PF Wishes to you hun.
-Tia
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HypnoticFreddy
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Doctors like 3000 years ago would tell their ailing patients to go swim daily in the natural spring waters. Why? One belief is that they were loaded with lithium salts, like lithium carbonate. Like the form we take today for all the conditions it is used for.
So, perhaps, daily bathing in these spring waters could have indeed been a pre-historic use of lithium for a lot of disorders. I read something about it somewhere. Very interesting.
Yes lithium is toxic, and you do need occasional blood work-up. All I know is I have had 4 episodes of CHs. I am 31. Started at age 24. They last for 3-4 months 1-6 per day, yada, yada, yada. THE PAIN. THE GODDAMN PAIN. If lithium was not "allowed" to be prescribed when for so many (and I mean other Neuros) suggest, you must try it. I would try any med to defend against this thing this wicked thing in the eye of a CH as I KNOW IT!
-Scott
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Sean_C
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Hi V
Lith works great for some but it killed me. I got nastey and my skin on my skull twitched wicked uncontrolably. And I still got hit hard so it didn't matter anyway. Side affects suck just as bad as CH. Only not as painful.
Hope something works for you soon
Kiss kiss
Sean
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Ann
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Re: Saw the neuro today
« Reply #16 on: May 4th, 2004, 11:00am » |
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Hey Virginia!
Sorry your neuro is such a prick! 
I was on the lithium/verapamil combo for quite a while and it did wonders for me. No side effects!! Like Jonny said, just had to have regular blood test to make sure everything was ok. If you can, change doc's...this one sounds like a creep!
hugs
Ann
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Virginia
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Re: Saw the neuro today
« Reply #17 on: May 4th, 2004, 12:23pm » |
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Yes, this Dr. is a DOOFUS. But I don't think changing Neuros is going to do me much good because I am in an HMO in a particular "group" where all the neuros are in one office. So I just think it will be more of the same. I mean they all have access to my records online (they even read all my primary physicians records online) so they will just all back each other up I fear.
The good news is...I seem to be getting some relief from Topamax....the jury is still out...and I don't want to jinx myself...so...shhhh...don't tell anyone...ok?
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The Clusterhead formerly known as 9erfan.
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Ann
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Annage
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Re: Saw the neuro today
« Reply #18 on: May 4th, 2004, 1:56pm » |
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Your secret's safe with me!!! 
hugs
Ann
ps...good news!!!
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