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Topic: Nothing for 36 hours (Read 352 times) |
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echo
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Chronic and still alive --- I Win!
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Nothing for 36 hours
« on: Mar 30th, 2004, 6:01pm » |
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Hopefully I'm starting to end this cycle from hell.
I cannot possibly write how happy I am to have had this reprieve.
I hope the SOB lost my address.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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snyder
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Nothing can hurt me as much as my head.
  
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Re: Nothing for 36 hours
« Reply #1 on: Mar 30th, 2004, 6:05pm » |
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I am at 58 hours and counting.
Oh yeah, all of my fingers, all toes, and everything else I have that I can cross is crossed.
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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t_h_b
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primary chronic since 1999
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Re: Nothing for 36 hours
« Reply #2 on: Mar 30th, 2004, 6:18pm » |
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Bill, I'll bet you look funny with your eyes crossed for 58 hours!
Congratulations to both of you. I hope your last attack was truly your LAST attack.
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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snyder
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Nothing can hurt me as much as my head.
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Re: Nothing for 36 hours
« Reply #3 on: Mar 30th, 2004, 6:29pm » |
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My eyes crossed that long IS indeed getting tiresome. BUT, what my nose is crossed with is really starting to hurt my back. If I had two noses it would be easier.
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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Tiannia
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Life does not apologies......
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Re: Nothing for 36 hours
« Reply #4 on: Mar 30th, 2004, 7:34pm » |
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on Mar 30th, 2004, 6:29pm, wsnyder wrote:My eyes crossed that long IS indeed getting tiresome. BUT, what my nose is crossed with is really starting to hurt my back. If I had two noses it would be easier.
Bill |
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OMG...   
Good Luck guys I hope you have seem the last of the Beast ... well forever, but at least long enough to enjoy yourselves for a long while.
-Tia
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| « Last Edit: Mar 30th, 2004, 7:35pm by Tiannia » |
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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joesf
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Re: Nothing for 36 hours
« Reply #5 on: Mar 30th, 2004, 8:02pm » |
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That is great. Stay free! I' m rootin for ya!
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Jill_R
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I love YaBB 1G - SP1!
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Re: Nothing for 36 hours
« Reply #6 on: Mar 30th, 2004, 9:05pm » |
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I'm at 39 hours and counting too (after being wiped out since March 5) ...shhhh! Not too loud!
Major weather swing here up north - sunny and warm - finally.
-Jill
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miapet
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what doesn't kill me makes me stronger
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Re: Nothing for 36 hours
« Reply #7 on: Mar 30th, 2004, 9:05pm » |
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*happy dance* for you both!!!!
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Clusterbusters Rock
www.clusterbusters.com
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snyder
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Nothing can hurt me as much as my head.
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Re: Nothing for 36 hours
« Reply #8 on: Mar 30th, 2004, 9:16pm » |
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Welcome aboard with us Jill. Let's all be a sailin'.
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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snyder
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Nothing can hurt me as much as my head.
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Re: Nothing for 36 hours
« Reply #9 on: Mar 31st, 2004, 4:40am » |
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I only made it 67 hours. At 3:00AM the attacker was back awaking me from sleep. O2 took care of it in quick time.
This has been a really long (nineteen weeks now) cycle and a very hard one. I am over anxious for relief. I have to go back to waiting for that day, as in the past, when I realize suddenly that it has been several days since I have hugged the tanks.
Good luck to you two. I'll be watching for updates.
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Nothing for 36 hours
« Reply #10 on: Mar 31st, 2004, 8:08am » |
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That's fantastic! I hope there'll loads of days to count soon!!!!
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: Nothing for 36 hours
« Reply #11 on: Mar 31st, 2004, 9:02am » |
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Shit!!
44 hours and the fuckstick came back with a vengence. I think at one time last night he actually had my eye pulled out of my head. Held on until 10 min into number three when I reached for the abortive meds -- it was empty! Hell of a ride -- if concrete was a little softer the side of my head won't look so bad this morning. When my office pal saw me this morning all he said was - "Fuck! - you must have had one hell of a dance last night. Need me to do anything this morning for you?"
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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snyder
New Board Veteran
Nothing can hurt me as much as my head.
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Posts: 143
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Re: Nothing for 36 hours
« Reply #12 on: Mar 31st, 2004, 9:08am » |
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Echo,
Sorry to hear that your night was as bad as mine. I had another one at 7:00 AM just to show me that the game isn't over if I had any doubts whatsoever.
What a bummer.
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: Nothing for 36 hours
« Reply #13 on: Mar 31st, 2004, 9:11am » |
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Sorry to read that yours was cut short as well Bill. Maybe tonight things will turn for the better for us.
I'm at 3hr 45 min and counting.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Jill_R
New Board Newbie
I love YaBB 1G - SP1!
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Re: Nothing for 36 hours
« Reply #14 on: Mar 31st, 2004, 9:41am » |
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Bill and Echo,
I am so sorry. We build up hope that it is the end, and then it crumbles. What a disappointment. Wow Bill, that's a long episode. I am sorry.
Luck to you both...
-Jill
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joesf
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Re: Nothing for 36 hours
« Reply #15 on: Mar 31st, 2004, 10:58am » |
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Sorry echo...I know those...hang in there
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Luke63
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Re: Nothing for 36 hours
« Reply #16 on: Mar 31st, 2004, 11:03am » |
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Echo.....Bill..sorry guys. Guess we all get kinda excited. I went 2 days last week and thought I was in heaven...then the fucker for the past 3 nights has been visiting 3-4 times....O2 helps with the first....but the 3rd...no help...and the 4th..I've been sayin fuck it....Imitrex...cuz by then its about 530am...and i gotta be at work in an hour...not much of a choice . Be strong guys....He might be loosening the Grip...just a bit...day by day. Sometimes you have to take this stuff one second at a time...right? Vibes to all!!! Luke
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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Superpain
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GOT O2!?
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Re: Nothing for 36 hours
« Reply #17 on: Mar 31st, 2004, 3:35pm » |
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33 hrs!
WooHoo!
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Chris
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snyder
New Board Veteran
Nothing can hurt me as much as my head.
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Posts: 143
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Re: Nothing for 36 hours
« Reply #18 on: Mar 31st, 2004, 4:09pm » |
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I am keeping my fingers crossed for you Superpain.
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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Superpain
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GOT O2!?
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Re: Nothing for 36 hours
« Reply #19 on: Mar 31st, 2004, 4:26pm » |
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Thanks!
Me too!
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Chris
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snyder
New Board Veteran
Nothing can hurt me as much as my head.
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Posts: 143
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Re: Nothing for 36 hours
« Reply #20 on: Mar 31st, 2004, 6:21pm » |
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My last attack was at noon. That makes three today and all quickly quelled with O2. I have felt well otherwise, very little shadowing. But, I'm not sure that 6 1/2 hours is a long enough time for me to bgin counting again.
I want this cycle to be DONE. Now ... !
Bill
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"Comedy is the last refuge of the nonconformist mind." -- Edward Albee
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Cathi04
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Re: Nothing for 36 hours
« Reply #21 on: Apr 2nd, 2004, 2:03am » |
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Aww, Echo....and Luke, and all of you....
HOW FRUSTRATING!!! So close...yet so far away!!! I am glad you all got a bit of a break...but I am so sorry that it was not the end....
Echo....my stud muffin...please protect that noggin of yours....we will not have damaged merchandise! 
To all of you with those near-misses, I wish you PF...SOOONNN!
Luke.....you TOLD me only till the end of March...we'll have NO MORE of that!
Take care....be PF!
Cathi
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Life is not measured by the number of breaths we take but by the moments that take our breath away.
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