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Topic: What is the "Official" name of Clusters (Read 1082 times) |
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vangogh71
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What is the "Official" name of Clusters
« on: Mar 25th, 2004, 12:41am » |
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I refuse to call them headaches. It's like comparing torn knee tendons to a twisted knee!
I've heard all the different versions from OUCH,
Synonyms: Bing-Horton Syndrome, Histaminic Cephalalgia, Cluster-Migraine, Paroxysmal Nocturnal Cephalgia, Red Migraine, Erythromelalgia of the Head, Sphenopalatine Neuralgia, Migrainous Neuralgia
But has there been any consensus. I've called it Migrainous Neuralgia in the past but too many only hear Migraine and think it's the same (no offense to migraine sufferers, I get them too usually before a cluster cycle starts, but I'd trade one Cluster for an all day migraine!)
When I have presented in more medical terms I get more people listening to me describe it and sometimes educating friends, family, coworkers etc. just helps the pain every so slightly.
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Superpain
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Re: What is the "Official" name of Clust
« Reply #1 on: Mar 25th, 2004, 2:35am » |
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Doesn't matter what you call it. They won't understand.
Kinda like Harley Davidsons saying...
If I have to explain you wouldn't understand...
I think suicide headaches is about the closest verbal description to doing it any justice.
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Chris
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t_h_b
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Re: What is the "Official" name of Clust
« Reply #2 on: Mar 25th, 2004, 3:51am » |
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See my personal description below. You can always say "cephalalgia" instead of "headache".
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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pubgirl
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Re: What is the "Official" name of Clust
« Reply #3 on: Mar 25th, 2004, 6:12am » |
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The Official name?
Unsurprisingly it is "cluster headaches".
The others are old names before the condition was properly identified.
Personally I call it Freddy Kruger 
Wendy
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KarynG
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Re: What is the "Official" name of Clust
« Reply #4 on: Mar 25th, 2004, 9:59am » |
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I think it would be great if CH's were renamed without the word headache in the description at all. Originally, AIDS had a different name that was offensive to homosexuals so they changed it. I find the words "Headache" and "Migraine" just as offensive when describing a cluster attack. (Also, no offense to anyone suffering from other types of headaches or migraines). It immediately suggests a more tolerable condition than it is. Maybe we need a thread on name suggestions! That would be fun.
Karyn
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| « Last Edit: Mar 25th, 2004, 10:00am by KarynG » |
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drap
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Re: What is the "Official" name of Clust
« Reply #5 on: Mar 25th, 2004, 11:01am » |
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suicide headaches works for me. drap
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vangogh71
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Re: What is the "Official" name of Clust
« Reply #6 on: Mar 25th, 2004, 12:21pm » |
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I kinda like a mix of the names how's this;
Episodic or chronic Trigeminovascular Neuralgia.
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Superpain
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Re: What is the "Official" name of Clust
« Reply #7 on: Mar 25th, 2004, 12:46pm » |
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I call it "Oh m*th*rf**k*r! Not again!"!
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Chris
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PittsburghJoe
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Re: What is the "Official" name of Clust
« Reply #8 on: Mar 25th, 2004, 1:05pm » |
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I call it "Bob" and welcome him like an old friend.
I also lie like a rug.
Joe
P.S. Was that funny, or is the combination of pred and sleeplessness finally winning?
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Nothing worth having comes without some kind of fight. Gotta kick at the darkness till it bleeds daylight. - Bruce Cockburn, "Lovers in a Dangerous Time"
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Superpain
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Re: What is the "Official" name of Clust
« Reply #9 on: Mar 25th, 2004, 1:12pm » |
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Chris
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t_h_b
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Re: What is the "Official" name of Clust
« Reply #10 on: Mar 25th, 2004, 6:54pm » |
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on Mar 25th, 2004, 9:59am, KarynG wrote:| Originally, AIDS had a different name that was offensive to homosexuals so they changed it. |
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??????????????????????????
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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PittsburghJoe
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Re: What is the "Official" name of Clust
« Reply #11 on: Mar 26th, 2004, 1:19am » |
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Just to clarify the AIDS comment: it was originally called GRID (Gay-Related Immune Disorder). When it became apparent that the syndrome could affect more than gay men, and to remove some of the stigma, the medical community agreed on AIDS.
We now return you to your regular programming...
Joe
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Nothing worth having comes without some kind of fight. Gotta kick at the darkness till it bleeds daylight. - Bruce Cockburn, "Lovers in a Dangerous Time"
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Superpain
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Re: What is the "Official" name of Clust
« Reply #12 on: Mar 26th, 2004, 2:59am » |
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How about "cranial cluster bombs"...
"cerebral terrorist attack"?
The good ones I've always called "screamers", I think that gets the point across.
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Chris
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Luke63
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Re: What is the "Official" name of Clust
« Reply #13 on: Mar 26th, 2004, 8:28am » |
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The official name? Hmmm...lemme think.....
Depending on the severity and when it hits....I usually term it differently every time.Mostly tho I think.."This is bullshit!" I dunno know what to call 'em....but I know I'm gettin real tired of 'em! 
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I think we should all get together and do a movie..."Night of The Clusterheads". George Romero would have nothing on us!!!
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CJohnson
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Re: What is the "Official" name of Clust
« Reply #14 on: Mar 26th, 2004, 10:51am » |
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on Mar 25th, 2004, 1:05pm, PittsburghJoe wrote:I call it "Bob" and welcome him like an old friend.
I also lie like a rug.
Joe
P.S. Was that funny, or is the combination of pred and sleeplessness finally winning? |
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I laughed out loud. Bob... That's funny.
PFDANs
-Curtis
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Pinkfloyd
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Re: What is the "Official" name of Clust
« Reply #15 on: Mar 26th, 2004, 2:56pm » |
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on Mar 25th, 2004, 1:05pm, PittsburghJoe wrote:I call it "Bob" and welcome him like an old friend.
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This term is usually more widely accepted as references to a pain in the ass rather than the head.
PF
(Bob)
(at least that's how I've always heard it used)
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"Nothing is so firmly believed as what we least know."
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Opus
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Re: What is the "Official" name of Clust
« Reply #16 on: Mar 29th, 2004, 6:52pm » |
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I Call it my,
"Pain-so-bad-that-I-can't-talk-think-or-stop-banging-my-head"
headache
Opus/Paul
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sandie99
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Re: What is the "Official" name of Clust
« Reply #17 on: Mar 31st, 2004, 3:23am » |
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Vangogh71,
when I did an essay about CH last year, I found out that there are indeed many names refering to CH. When I was diagnosed, my neuro called it horton's neuralgia and cluster headaches. Personally, the suicidal headache works best with me.
Best wishes,
sandie99
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CH happends, Live anyway! PF days to us all!
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Jeepgun
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Re: What is the "Official" name of Clust
« Reply #18 on: Apr 1st, 2004, 3:44pm » |
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I personally vote for, "GODDAMNEDMOTHERFUCKINSONOFABITCHMYGODDAMNEDEYEISGOINGTOFUCKINGEXPLODE AND I CANTQUITPOUNDINGMYHEADONSHITBECAUSEITHURTSSOFUCKINGBADFUCK!!!!!"
Yes. I think this will fit nicely into the modern anatomy and physiology textbooks for new medical students. 
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Pegase
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Re: What is the "Official" name of Clust
« Reply #19 on: Apr 6th, 2004, 9:41am » |
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And in french... "Céphalée vasculaire de Horton" or "Algie vasculaire de la face"... Just FYI
Pegase
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Eeyore
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Re: What is the "Official" name of Clust
« Reply #20 on: Apr 8th, 2004, 10:31pm » |
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I always call the episode an "attack" ...simply because it affects my whole body in some way or another... I refuse to use the term "headache" ...it is so much more than that...
- Eeyore -
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mynm156
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Re: What is the "Official" name of Clust
« Reply #21 on: May 16th, 2004, 3:32pm » |
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Sorry guys I still like Bob!
However, "GODDAMNEDMOTHERFUCKINSONOFABITCHMYGODDAMNEDEYEISGOINGTOFUCKINGEXPLODE AND I CANTQUITPOUNDINGMYHEADONSHITBECAUSEITHURTSSOFUCKINGBADFUCK!!!!!"
Isnt too bad .
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BobG
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Re: What is the "Official" name of Clust
« Reply #22 on: May 16th, 2004, 4:17pm » |
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on Mar 25th, 2004, 1:05pm, PittsburghJoe wrote:I call it "Bob" and welcome him like an old friend.
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I'll go along with that. As long as it refers to your headache or that other guy.
Beats the hell outa Brucie.
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Dover
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Re: What is the "Official" name of Clust
« Reply #23 on: May 18th, 2004, 2:38pm » |
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"Pre Cranial-Dismemberment With Or Without Optical Leakage"
The state that exists just before the head explodes and the eye ball flies across the room.
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Bob P
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Re: What is the "Official" name of Clust
« Reply #24 on: May 18th, 2004, 4:30pm » |
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Quote:| Beats the hell outa Brucie. |
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Ya know Bob, you, Dennis, Mr. Hap and Paco ought to take that show on the road. You guys have those senses of humor that really make me envious.
Hub gets a chuckle once in a while too, hubism - "I tried to light a fart with a match. It didn't work, just made the stink warm!"
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| « Last Edit: May 20th, 2004, 10:39am by Bob P » |
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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