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Topic: Topomax (Read 469 times) |
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Liz04
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Anyone here on it? if so, whatcha think?
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UN_SOLVED
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I need a fully-automatic Imitrex injector !!
 
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Re: Topomax
« Reply #1 on: Mar 21st, 2004, 3:18pm » |
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Makes me feel stupid, lose hair, and oh yea ... GAVE ME KIDNEY STONES ! And it did nothing for my clusters (although, I believe it has helped others)
"DOPEY MAX"
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I'm STILL alive ?
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Karla
CH.com Alumnus
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One of Many and Never Alone - Join OUCH
 
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Re: Topomax
« Reply #2 on: Mar 21st, 2004, 3:21pm » |
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I went all the way up to 600mg. Turned stupid at 200mg. Didin't do a thing for my ch.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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Tiannia
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Life does not apologies......
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Re: Topomax
« Reply #3 on: Mar 22nd, 2004, 3:45pm » |
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Do a search on it and you will see lots of different realctions. It helps some does nothing for others. Make some of us sick, and some ditzy. Others swear by it. Each clusterhead is different.
Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Lizzie2
CH.com Alumnus
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"L'Chaim"~Hebre w Toast~"To Life"
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Re: Topomax
« Reply #4 on: Mar 22nd, 2004, 4:55pm » |
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I went up to 375mg and I could never remember anything. I couldn't remember words I had learned when I was 2! LOL They dropped me back to 100mg twice a day for awhile, and then down to 100 mg at night, and the memory loss continued. In fact, I still have it! It seems like for me, the topamax turned on some switch in my brain that now will not shut off.
I do know some people who have been greatly helped by it. Everyone's different!
Lizzie 
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Prense
CH.com Alumnus
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Kerry is an idiot!
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Re: Topomax
« Reply #5 on: Mar 22nd, 2004, 6:56pm » |
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on Mar 21st, 2004, 3:10pm, Liz04 wrote:| Anyone here on it? if so, whatcha think? |
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Not anymore, but it was almost the worst thing I have ever experienced in my life...the only thing that keeps CH higher on the suck scale is I still have the fuckin' CH! 
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Where does the white go in a snowman when the snow melts?
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CJohnson
New Board Old Timer
Cannot kill the family, Battery is found in me
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Re: Topomax
« Reply #6 on: Mar 23rd, 2004, 8:27am » |
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Worked great for me. Didn't make me stupid. Stopped my headaches. Never went over 75mg/day at bedtime.
PFDANs
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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toader
New Board Veteran
there were fireworks on mars
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Re: Topomax
« Reply #7 on: Mar 23rd, 2004, 10:51am » |
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best served with key lime pie
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Edski_1
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All the years combine...they melt into a dream...
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Re: Topomax
« Reply #8 on: Mar 23rd, 2004, 12:12pm » |
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And Toader would recoomend reading a lot of Garfield. 
Has helped me greatly as far as pain...but I really don;t like what I suspect it's done to my personality. I really can't put my finger on it...but I'm not the "real me"... 
The stupidity side effects seemed to abate after a couple of weeks. The only other major side effect is a noted change in taste...carbonated beverages taste a lot different.
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This is the mystery of the quotient; upon us all a little rain must fall...
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Liz04
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Re: Topomax
« Reply #9 on: Mar 25th, 2004, 2:43am » |
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Um yeah..I'm now at 125mg and my taste buds are now compared to a diet coke verses a regular.
My feet tingle..but doc says that is normal..
Lastly, at work i just sit at my desk starring at my computer for fifteen minutes and can't figure out what i'm suppose to do next. it's only been 9 days..so, i'm HOPING it will get better.
thanks for the advice...
oh, and the pain is getting better with it, so i guess i can be a little dopey as long as my boss doesn't know...although he is a doctor and does know...so oh well
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magman
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I love YaBB 1G - SP1!
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Re: Topomax
« Reply #10 on: Mar 25th, 2004, 2:55am » |
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Liz,
I have been doing 100 x2 since mid Jan. Stopped the HA’s dead first night I went from 25 to 100.
Same as you though, I can sit here and try to figure out what it is I am supposed to do and it just won’t come to me. I am lucky though, for I am the boss and work at home….haven’t gotten stupid enuff to fire myself yet….LOL.
Do find it difficult at times to carry on conversations with clients….especially when they refer to something we talked about a few days back. Typing is a bit more difficult as well.
Hoping some of this subsides as I taper down to a maintenance level of 50mg x2. Cycle ‘should’ be over by now so this week is 75 and next week will be 50 x2.
Hope it works for you HA’s as well as it did for mine.
Peace,
-dan
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Liz04
New Board Newbie
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Re: Topomax
« Reply #11 on: Mar 25th, 2004, 3:14am » |
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Dan
I hear ya, I was sitting hear with a flashing cursor for what felt like forever .....hehe...will you be on the lower dose forever or is that it..until the next cycle begins? Or is that only if you are chronic?
Right now....one full day without any head pain at all? Yeah..
Liz
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t_h_b
New Board Hall of Famer
primary chronic since 1999
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Re: Topomax
« Reply #12 on: Mar 25th, 2004, 7:08am » |
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Never took it. Sounds like a carnival ride to me--The TopoMax. No one under 4' 9" allowed.
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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