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Topic: are they supposed to go away (Read 531 times) |
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renny
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are they supposed to go away
« on: Feb 23rd, 2004, 2:13am » |
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Just wondering....are they supposed to go away as we get older???? Because some of the stuff I've read indicates that.....boy it sure would be NICE!!!!!
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BobG
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Re: are they supposed to go away
« Reply #1 on: Feb 23rd, 2004, 2:21am » |
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Yes, most indicators say we will out grow them. But at what age? I don't think anyone knows. We have some clusterheads in their 60's. I'm 57 and still get them but they are no way near as bad or as often as 10 years ago.
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renny
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Re: are they supposed to go away
« Reply #2 on: Feb 23rd, 2004, 2:25am » |
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 wellthat's maybe some sort of relief.....this was the first i'd heard of us outGROWING them!!!
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Mark C
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Re: are they supposed to go away
« Reply #3 on: Feb 23rd, 2004, 2:47am » |
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After 27 years frequency and duration seemed to have lessend....or have I just developed scar tissue...in any case it is easier because I am no longer alone in my battle. Thanks people!
PFDAN's
Mark
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renny
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Re: are they supposed to go away
« Reply #4 on: Feb 23rd, 2004, 3:00am » |
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and just the FACT that the rest of us are there....thinking only good thoughts....
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renny
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Re: are they supposed to go away
« Reply #5 on: Feb 23rd, 2004, 3:06am » |
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 look I am having problem as I try to type this...oncer again my right eye is glued shut..I know what's coming in next few minutes...DAMN why are they always so late at night
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KingOfPain
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Re: are they supposed to go away
« Reply #6 on: Feb 23rd, 2004, 3:52am » |
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on Feb 23rd, 2004, 3:06am, renny wrote:| look I am having problem as I try to type this...oncer again my right eye is glued shut..I know what's coming in next few minutes...DAMN why are they always so late at night |
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Glued shut eye?
Lost me.
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We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
- Denis Diderot
Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
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Mark C
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Re: are they supposed to go away
« Reply #7 on: Feb 23rd, 2004, 4:38am » |
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I too try to function as long as possible under the watchful eye of an impending attack. I used to drive a truck...till that one eye finally closed and I just couldn't function. Fucking shit hurts!
I wish you pain free times....
Mark
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sandie99
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Re: are they supposed to go away
« Reply #8 on: Feb 23rd, 2004, 4:39am » |
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Renny,
my teacher, who used to suffer from CH, said that hers stopped in her 40s.
But, my neuro said, that he has patients from 9-70, so who knows?
I certainly don't plan to live with CH for next 50 years!!!
best wishes & loads of PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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thomas
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Re: are they supposed to go away
« Reply #9 on: Feb 23rd, 2004, 9:14am » |
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on Feb 23rd, 2004, 3:52am, KingOfPain wrote:
I think she's referring to Horner's syndrome, kop. 
PF vibes going out to you Renny........  Hope the beast lets go of you real soon.
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| « Last Edit: Feb 23rd, 2004, 10:50am by thomas » |
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Carolyn
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Re: are they supposed to go away
« Reply #10 on: Feb 23rd, 2004, 1:58pm » |
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I am 55 and they are still definitely around. Can't say the intensity is any less, but they are a lot less frequent....went from 1 to 2 episodes a year to 1 every 2 years now. Only thing that doesn't change is that I can continue to add failed medicines to my list.
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Bob_Johnson
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Re: are they supposed to go away
« Reply #11 on: Feb 23rd, 2004, 2:59pm » |
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I just turned 68 and haven't had an attack in 2-yrs. Looking over the log I've kept, it's clear that cycles have been shorter and farther apart during the last 10-years.
Of course, all that you get from losing your clusters is space to be filled with all the other middle-age maladies.
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Bob Johnson
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don
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Re: are they supposed to go away
« Reply #12 on: Feb 23rd, 2004, 5:14pm » |
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Hopefully I will be an ongoing case study.
I have had CH now for 27 or 28 years. The last three years are the only years I have not gone into a cycle.
I have still gotten occasional shadows and an occasional Kip 5 but thats a hell of a lot better than 4-6 month cycles of 4-6 Kip 9s a day every day of the cycle.
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| « Last Edit: Feb 23rd, 2004, 5:15pm by don » |
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Sean_C
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Re: are they supposed to go away
« Reply #13 on: Feb 23rd, 2004, 7:59pm » |
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on Feb 23rd, 2004, 5:14pm, don wrote:
4-6 Kip 9s a day every day of the cycle |
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I can remember those days, TEN steady years worth with no meds, that pain you never forget. My wife once said Labor Pains were the worst ever.............I tod her I gave birth to 6- 18 pounders everyday for the last 10 years through my eye BREECH
Wishing all PFDAN
Sean
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Giovanni
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Re: are they supposed to go away
« Reply #14 on: Feb 24th, 2004, 10:20am » |
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I still have them at 57 with longer cycles than at the beginning. The doc told me she had a patient in their 70's with CH.
John
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Janice
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Re: are they supposed to go away
« Reply #15 on: Feb 24th, 2004, 2:16pm » |
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I aksed my Neuro the same question...."will I outgrow them?" He told me that as a person gets older the CH's become worse, and that one cannot outgrow them. He is said to be the best in our area for Neuro stuff. His comment made my day! Lord help us all!
Janice
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