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Topic: OUCH in the news (Read 632 times) |
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Carl_D
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Now THAT is TFA!!!
Peace,
Carl D
p.s. - TFA is TOTALLY FUCKING AWESOME!
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BlueMeanie
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Great News.
Submitted my 2 cents.
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jonny
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People are desperate. They want anything to make them stop.?
Nuff said......CHRIST!!!!
.................................................jonny
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| « Last Edit: Dec 19th, 2003, 9:00pm by jonny » |
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BobG
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Re: OUCH in the news
« Reply #4 on: Dec 19th, 2003, 9:08pm » |
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Way-ta-go Bob. I also have left a little message of thanks.
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Stay stressed. Never relax. Never sleep. Ever.
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Jayne
CH.com Alumnus
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Pull my finger!
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Re: OUCH in the news
« Reply #5 on: Dec 19th, 2003, 9:11pm » |
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That is the best media write up on CH I have ever read!!!!
AWESOME!!!!!!!!!!!!!!!!
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If you haven't laughed today, it's been a wasted day. 
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Elaine
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WOW !!!!!!
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
  
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Re: OUCH in the news
« Reply #7 on: Dec 19th, 2003, 10:13pm » |
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Good stuff Maynard!!!!!!!!!!
I forwarded the article to the NECH, who knows, maybe they will have feedback for it
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Not4Hire
CH.com Alumnus
New Board Hall of Famer
...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: OUCH in the news
« Reply #8 on: Dec 19th, 2003, 10:18pm » |
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just a little something for Ms Zielinski:
Quote:Dear Ms. Zielinski:
I applaud your article in .. www.stjoenews-press.com .... this is the kind of exposure we (clusterheads) are looking for and are actively trying to bring to the attention of neurologists, general practicioners (who are in the FrontLines) and pharmacy companies who may, hopefully, provide a medicine that will help us...
There are a few inaccuracies in your article, but you have done a very good job of presenting *our* case...
Mr. Hoyt, your *contact/cluster-headache-sufferer* has accurately described the *Beast*... the headache that invades our lives...leaves us exhausted...frightens our wives and children... and is dismissed by most people as a *headache*....
well... it IS a headache, but until YOU have one... there are NO words....
many people have tried to describe it, and some have come close... "an exquisite pain"... "worse than child-birth"... "a thing that has robbed me of my life"....
but we suffer such a "rare" affliction, that there is nothing to be gained financially by the drug companies to explore a palliative or, hopefully, a cure to this thief of our lives....
I am an *episodic* sufferer ( 4-8 weeks/year) and some suffer EveryDamnDay (chronics)... their courage is beyond my ken....
thank you for bringing this to the attention of your readers.... i sincerely hope that the *word* gets out to a wider audience....
Steve Lichens... newly-elected Vice President of OUCH (Organization for Understanding Cluster Headaches)
...and Don Young is the President....Bob Pahlow is taking a break.....heh! |
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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Marc
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Posts: 39
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Re: OUCH in the news
« Reply #9 on: Dec 19th, 2003, 10:18pm » |
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Actually, I'm impressed too.
I didn't realize that the Bylaws Committee had gained enough power to change Presidents! Sorry to hear it Don……… 
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don
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Severance pay ??
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
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Re: OUCH in the news
« Reply #12 on: Dec 20th, 2003, 12:55am » |
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I want to know where he/they came up with the...85% of sufferers are male.
BobP may not answer this one. lol
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Callico
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Proud Dad of a US Marine!
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Re: OUCH in the news
« Reply #13 on: Dec 20th, 2003, 1:09am » |
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By and large I thought it was a well written piece by someone who has never suffered with a cluster. I posted a note of appreciation. Sorry you lost the election Don. I did vote for you  , but I had hopes I could borrow the yacht.
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Bob P
New Board Hall of Famer
Shut up Bob!
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Re: OUCH in the news
« Reply #14 on: Dec 20th, 2003, 8:03pm » |
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It appears to me that she took some info from the ACHE site. I'd bet that's where she got the low figure of 85%.
I'll confess to you guys. It was just last month that I realized the auto e-mail that is sent to each new member by the srever was signed, Bob P, President.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Kirk
CH.com Alumnus
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VINIMUS, VIDIMUS, DOLAVIMUS
  
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Re: OUCH in the news
« Reply #15 on: Dec 21st, 2003, 3:51am » |
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Put my O2 worth in. For what its worth.
Severance pay Don? Didn't you get your plastic back from St. FUD?
TTFN
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ave
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She is beside herself; her favourite position
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Re: OUCH in the news
« Reply #16 on: Dec 21st, 2003, 8:56am » |
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Excellent!
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There is a break in reality. Do not adjust your mind.
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Prense
CH.com Alumnus
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Kerry is an idiot!
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Re: OUCH in the news
« Reply #17 on: Dec 21st, 2003, 9:56am » |
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Hell of alot better than the 2-3 paragraphs published a couple of weeks ago...
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thomas
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Left my 
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Cerberus
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Whomever said that two heads are better than one?
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Re: OUCH in the news
« Reply #19 on: Dec 21st, 2003, 6:26pm » |
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Fuckineh!
Ramon
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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