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Topic: First posting (Read 398 times) |
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Stealing
New Board Newbie
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Posts: 6
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First posting
« on: Dec 19th, 2003, 9:59am » |
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Hi,
This is my first posting as a member, I have been on the site before to research into the headaches I have been having. I have been to see several specialists who have suggested things such as the fact that I am double jointed, and tension as causes for my headaches but yesterday I went to see a neuroligist in Bristol who finaly understood! I am being sent for an MRI scan to rule out other nasty things but he is pretty sure that I suffer from Cluster Headaches. I feel so relieved to at least have someone confirm my suspicions. I know that it is going to be a long battle but I feel much happier knowing that there are other people out there who understand.
This web site has helped me understand a lot about Cluster Headaches and I will be trying to persuade my doctor that I need to try some of the relief methods mentioned on the site.
I have one question that I haven't yet found any suggestions for and that is how to deal with work, I have just started a new job and am pretty sure I will have an attack in the next month or so. I have the Clusters for a roughly a Month solid every three months and ovbiously it is difficult. If anyone has any comments on this at all it would be very helpfull.
Thanks for being here. 
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thomas
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Tell your boss about it up-front. That's what I did here 5 years ago. He's very understanding, it also helps that I don't miss work for anything except my morning battles with the Beast.
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Hirvimaki
New Board Hall of Famer
Quod me nutrit me destruit.
   
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Re: First posting
« Reply #3 on: Dec 19th, 2003, 10:08am » |
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Welcome. Read, read, and READ! Loads of helpful information and lots of helpful people around here.
Hirvimaki
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"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
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Stealing
New Board Newbie
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Posts: 6
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Re: First posting
« Reply #4 on: Dec 19th, 2003, 10:17am » |
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Thanks for that form, It looks ideal.
I haven't yet mentioned the headaches to my boss but as suggested, maybe it is better to get it out of the way now. I have thought of setting up my own business so that I can work around the Headaches and the affect the medication takes on me so I think I will start putting this into action, enough dilly dalling, time to start making things happen.
thanks 
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ZAIRA
New Board Hall of Famer
Brave to Stand !!!
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Re: First posting
« Reply #5 on: Dec 19th, 2003, 2:49pm » |
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Just wanted to add my welcome too.
I’m sad because you are a CH sufferer, but pleased to welcome another unlucky to this board.
I wish you all the best, Zaira
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Love yourself, Love others, Love often, Forever!
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Charlie
CH.com Alumnus
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Happy to be here
 
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Re: First posting
« Reply #6 on: Dec 19th, 2003, 3:01pm » |
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Welcome to the fold.
You have found people who actually know what you mean when you say cluster headache and that it has no relationship to what others think of as "headache."
You'll find some good ideas that will help you deal with this horror. Let us know how you make out.
Don's link is a good one and the following is a letter from the UK site that is worth copying to give to employers and anyone who needs to understand:
http://www.ouch-uk.org/ch/note_colleagues.cfm
This one is a technique that was very helpful to me:
http://www.netsync.net/users/charlies/
I hope you stick around. We could use some new blood.
Charlie
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| « Last Edit: Dec 19th, 2003, 3:03pm by Charlie » |
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Prense
CH.com Alumnus
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Kerry is an idiot!
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Re: First posting
« Reply #7 on: Dec 19th, 2003, 7:44pm » |
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on Dec 19th, 2003, 9:59am, Stealing wrote:I have one question that I haven't yet found any suggestions for and that is how to deal with work, I have just started a new job and am pretty sure I will have an attack in the next month or so. I have the Clusters for a roughly a Month solid every three months and ovbiously it is difficult. If anyone has any comments on this at all it would be very helpfull.
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FAST acting abortive... Since I began using Imitrex injections, I have not missed any work due to CH other than scheduled appointments. I'm not saying trex will work for you, but find something that works rapidly.
BTW, welcome aboard!
Chris
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Where does the white go in a snowman when the snow melts?
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