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Topic: Help Please (Read 830 times) |
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OldManOz
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Help Please
« on: Nov 17th, 2003, 11:49am » |
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I live in a rural area of New Mexico and do not have access to any headaches specialists. My Doctor has sent me to a neurologist and I have had an MRI – the diagnosis was atypical migraines, but I believe I suffer cluster headaches. I was hoping that by sharing my symptoms other might help me confirm my suspicion. I am 57 years old and never suffered anything other than tension headaches until a year ago. Last fall I began to get sever headaches, they begin with a blurring in my left eye and then I notice a burning or stabbing sensation in my left eye and then a similar sensation in my left nostril. Then the headache begins. It behaves in waves with each set of waves becoming more excruciating. My left eye waters profusely and my eye lid sags. These always begin late in the day or in the early evening. I suffered several episodes last fall and then they went away. This October they returned. In the last nine days I have had a headache every night except two. I can control the pain with Imitrex, but it doesn’t seem to keep them from coming back the next day. Any insights would be appreciated.
Adios
Phil
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vig
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Re: Help Please
« Reply #1 on: Nov 17th, 2003, 11:52am » |
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Hola amigo,
read all the stuff on the left.
Take the cluster quiz.
Doctors are admittedly weak with this 'syndrome'
welcome
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Lori
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Re: Help Please
« Reply #2 on: Nov 17th, 2003, 11:58am » |
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Glad you found us. If you have CH, this is the place to be.
Have you taken the Cluster Quiz yet? (link on left) Read the cluster traits link too. Sounds like CH from what you say, but I'm not a doctor and can't diagnose. I think you can pretty much tell though once you take the quiz but especially from reading the cluster traits page. Imitrex may stop the headache but it's not a preventative. You need to find a new doc, call around the neuros in your area and ask the receptionist if the doc is knowlegable about clusters and does he treat clusters. Make sure you say you are not talking about migraines! You mean cluster headaches and they are different. I mean when you say clusters to some people, they think migraines! it's like..no..they are different! Anyway, to read more about meds..click on the OUCH button (on left) and then click on Cluster Help then on Medications. That will tell you about abortives and preventatives. Read it, print it. Also look at the Oxygen button on your left here.Print that too.
Good luck and let us know how you make out.
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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Leesa
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Re: Help Please
« Reply #3 on: Nov 17th, 2003, 12:00pm » |
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Hello Phil  As Vig said read all you can at the left of the page and take the quiz dear that will help you a great deal. Then take some time to read EVERYTHING here just be a sponge and soak it all in! I hope this is NOT CH you suffer from but if it is "Welcome to Clusterville" sorry your here but were glad to have in the family! BTW: JOIN OUCH
Leesa 
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| « Last Edit: Nov 17th, 2003, 12:01pm by Leesa » |
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Kirk
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Re: Help Please
« Reply #5 on: Nov 17th, 2003, 12:54pm » |
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Like everyone else says. Start with everything on the left.
I sure as hell hope its not CH.
My GP was very helpful and has me on Verapamil, O2 and Imitrex.
I wish you had a Beowolf Cluster.
Just whay did you do with old Mexico?
TTFN
Kirk
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Little Deb
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Re: Help Please
« Reply #6 on: Nov 17th, 2003, 5:25pm » |
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Welcome to a wonderful place with the greatest people for support.
Stay with us!
LD
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Prense
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Re: Help Please
« Reply #7 on: Nov 17th, 2003, 6:30pm » |
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on Nov 17th, 2003, 11:49am, OldManOz wrote:I live in a rural area of New Mexico and do not have access to any headaches specialists. My Doctor has sent me to a neurologist and I have had an MRI – the diagnosis was atypical migraines, but I believe I suffer cluster headaches.
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Hey Phil! I live right down the road from you.
Check your messages...
Chris
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Prense
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Re: Help Please
« Reply #8 on: Nov 17th, 2003, 6:35pm » |
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on Nov 17th, 2003, 12:02pm, don wrote:| What did you guys do with Old Mexico ? |
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Opened a Super Wal-Mart!
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Charlie
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Re: Help Please
« Reply #9 on: Nov 17th, 2003, 7:04pm » |
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Welcome. I'm 57 too.....pulling, not pushing 50  It's criminal to get stuck with this horror at our age. Mine began in 1969 when I was 23 but ended for now in 1991 at 45. I know how fortunate I've been.
Your description sounds classic to me. I always ask if they wake one out of a sound sleep as I think it's a sure sign. No one rests or sleeps durning a cluster attack. I agree with the others that you should read all you can here. I learned so much I decided to stick around. I hope you do as well.
Let us know how you're doing.
Charlie
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BobG
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Re: Help Please
« Reply #10 on: Nov 17th, 2003, 9:20pm » |
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on Nov 17th, 2003, 12:02pm, don wrote:| What did you guys do with Old Mexico ? |
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It's still there, just changed the name to
California.
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TxBasslady
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Re: Help Please
« Reply #11 on: Nov 17th, 2003, 10:33pm » |
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Hi Phil,
Welcome to Clusterville !
Like you, I never had anything but the normal headache, till 2 years ago. But I can still remember the 1st CH! I only suffered with a few ha's over a year and 1/2. Then this past August, I went into a full blown cycle.
My dr put me on a Prednisone taper......which ended my cycle. Luckily, I have been PF since day 1 of the Prednisone.
Stay around and let us know how you are doing. Always someone here you can talk to.
Sending you lotz of pf vibes from Texas.
Jean .......69 days PF.......YEEHAW !!!!!!!!
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sandie99
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Re: Help Please
« Reply #12 on: Nov 18th, 2003, 5:22am » |
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Hey Phil!
Sorry to hear about your HAs.
I do wish that it's not CH, but to me, some of your symptoms sounds like this devil. I have studied Ch a lot after getting my diagnosis in January, but I'm not a neurologist.
Anyway, I'm glad that you find your way to this place, as this site is a blessing to come to.
I wish you the best with your battle with your HA.
Best wishes & PFdays,
sandie99
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