Author |
Topic: switching sides (Read 220 times) |
|
ponos52
New Board Newbie
I love YaBB 1G - SP1!
Posts: 6
|
 |
switching sides
« on: Nov 13th, 2003, 9:30am » |
 Quote  Modify
|
hi.my husbands clusters came back after a 5 yr. remission.it is now 8 1/2 weeks with the last 2 weeks him having only shadows. good sign huh? well, for the last 4 days, he's been getting them level 4-5 on the OTHER side. is this normal? does this mean a new cycle is starting all over again? has this happened to anyone in here? please answer me. thanks, RIA
|
|
 IP Logged |
|
|
|
thomas
Guest
|
I haven't had that happen to me, however there are some here that have had it happen. So, I wouldn't panic. Hoping for pfnad 
|
|
IP Logged |
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender: 
Posts: 3757
|
|
Re: switching sides
« Reply #2 on: Nov 13th, 2003, 9:58am » |
Quote Modify
|
Hi Ria and welcome.
Yes, I've seen that happen to my husband too. It's very demoralizing, isn't it? You think the cycle has left and then it just gathers strength again. I don't necessarily think it means that his cycle is coming back, exactly - I think it just hasn't left yet. 
If you need a shoulder from folks who understand what YOU go through, supporting your husband through his pain, please feel free to join us over at Supporters Corner and check out the Family Services Team pages (the link is at the bottom of my post here).
Hang in there, Ria.
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
ponos52
New Board Newbie
I love YaBB 1G - SP1!
Posts: 6
|
|
Re: switching sides
« Reply #3 on: Nov 13th, 2003, 10:07am » |
Quote Modify
|
THANK YOU SO MUCH FOR REPLYING. I ALSO WISH FOR EVERYONE IN HERE A PAIN FREE LIFE.
|
|
IP Logged |
|
|
|
Patrick_A
New Board Hall of Famer
If i could get my hands on that wascally Wabbit
Gender: 
Posts: 843
|
|
Re: switching sides
« Reply #4 on: Nov 13th, 2003, 11:21am » |
Quote Modify
|
I used to think i wanted mine to switch sides. I am not so sure now.
Patrick
|
|
IP Logged |
Do you think that when they asked George Washington for his ID, that he just whipped out a One Dollar Bill?
|
|
|
drnoe
Guest
|
Hi RIA
I only had my CH change sides once and it went back to "normal"
I asked a respected Neuro about it and he said it was uncommon. Very uncommon.
Just under reported, I suspect.
PFDAN
dan
|
|
IP Logged |
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: switching sides
« Reply #6 on: Nov 13th, 2003, 1:28pm » |
Quote Modify
|
Agree, Dan. Mike's neuro was surprised to hear this from us as well. Mike has even (rarely, though) had individual attacks switch sides...but only ever at the peak of a cycle. He argued with us that this is rare. Yeah, well - lucky us.
The good doctor was also amazed to inspect Mike's cluster bump on the back of his neck (a survey conducted here years ago found THIS to be a commonality amongst sufferers). Said he'd never heard of this ganglion lump that most here have reported. Yet one more example that we do, indeed, sometimes know more about our afflicition than our professionals!!
It's fun playing Stump-the-Neuro, isn't it? 
|
| « Last Edit: Nov 13th, 2003, 1:30pm by Margi » |
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
Unsolved
CH.com Alumnus
New Board Veteran
I'm still alive ?
Gender:
Posts: 185
|
|
Re: switching sides
« Reply #7 on: Nov 13th, 2003, 2:19pm » |
Quote Modify
|
Yes..It has happened to me. First 12 years I was epesodic and ALL my attacks were on the right side. Since I became chronic a little over 3 years ago, the attacks have switched sides...BUT...I now can have attacks on either side. Sounds fun, huh !? Sorry, I know there's not much to joke around about clusters. Just wanted to say that it does happen.
Goodluck
Wishing you the best
Unsolved
|
|
IP Logged |
I need a fully automatic Imitrex injector
|
|
|
NotH20
New Board Hall of Famer
Gender:
Posts: 778
|
|
Re: switching sides
« Reply #8 on: Nov 13th, 2003, 2:24pm » |
Quote Modify
|
Sorry Ria - but I've always had mine on the right side and they've never switched.....
Good luck to your hubby.....
Mia
|
|
IP Logged |
|
|
|
Prense
CH.com Alumnus
New Board Hall of Famer
Kerry is an idiot!
Gender:
Posts: 1607
|
|
Re: switching sides
« Reply #9 on: Nov 13th, 2003, 8:27pm » |
Quote Modify
|
I have had a few attacks on the "other" side...they were, by far, worse than the norm. For me, they are extremely rare, but I am chronic.
|
|
IP Logged |
Where does the white go in a snowman when the snow melts?
|
|
|
goaway
New Board Veteran
"Things take longer than they do."
Gender:
Posts: 230
|
|
Re: switching sides
« Reply #10 on: Nov 13th, 2003, 8:46pm » |
Quote Modify
|
It happened to me in my last cycle after 16 years on one side.
|
|
IP Logged |
"If you get robbed by worry,.....it was an 'inside' job."
"...runnin' with the shadow...runnin' with the shadow..."
"We don't rent pigs."
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: switching sides
« Reply #11 on: Nov 14th, 2003, 9:02am » |
Quote Modify
|
Hi there, Ria!
My ch attacks are usually on the same (left) side, but I have had attacks on the right side, too.
The medical books say, that ch attacks can switch sides during the same cycle, but not during one day, but in my case, it has switched side during the day.
Hoping PF days to your husband,
sandie99
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss