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Topic: Who is chronic? (Read 351 times) |
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Roxy
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Who is chronic?
« on: Nov 8th, 2003, 10:53am » |
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I know this has been talked about in past threads.....okay, truthfully.....I looked and can't find it in the archives. But, how many people here are chronic, and how does your head treat you? Are you in a heavy cycle right now, or a light one? What meds are you taking?
I'm wanting to get off of my verap, and was wondering how many other chronics are taking it.
PFDAN,
Tracey
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Linda_Howell
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Re: Who is chronic?
« Reply #1 on: Nov 8th, 2003, 10:58am » |
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My hand is up Roxy.
Head is mis-treating me right now.
Heavy cycle with-in normal cycle.
Imitrex, 02 and Amerge.
Tried Veramail again but is doing nothing for me.
Linda
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Prense
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Re: Who is chronic?
« Reply #2 on: Nov 8th, 2003, 11:20am » |
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- chronic 10yrs, never been episodic
- verapamil 240mgx2/day, depakote 250mgx2/day
- trex injections and O2
- moderate "cycle"
I haven't found a preventative that works yet, and I just added the depakote at the end of October.
Chris
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Jayne
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Re: Who is chronic?
« Reply #3 on: Nov 8th, 2003, 11:40am » |
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Chronic for 4 years. I take 180mg time release verap 2 times sometimes 3 tmes a day...depending on how my head is acting. I know chronics get cycles within their chronicness. I am doing very well right now just on my verap..head has quietened down for the moment...so me well happy right now...would never come off my verap...that to me would be asking for trouble.
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vig
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Re: Who is chronic?
« Reply #4 on: Nov 8th, 2003, 11:44am » |
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I WAS chronic.
Now I am 95% pain free.
No more prescriptions, please.
Paul
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eyes_afire
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Re: Who is chronic?
« Reply #5 on: Nov 8th, 2003, 12:50pm » |
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I don't know, I may be chronic. 
Constant shadows since Sept 2001... a good portion of that time medicated with verapamil or shrooms. I recently tried tapering off verapamil (again) and couldn't do it (again). At least verapamil is very effective for me. Praise be to Verapamil.
--- Steve
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Karla
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Re: Who is chronic?
« Reply #6 on: Nov 8th, 2003, 1:03pm » |
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I am chronic and can't take verapamil. I tried it and it did nothing for me except give me an irregular heart beat. I am using fentanyl patch and have been pain free for quite a while now.
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Karla
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BarbaraD
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Re: Who is chronic?
« Reply #7 on: Nov 8th, 2003, 1:08pm » |
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Chronic. Been taking Topamax since Aug 1999 and up until recently it has been working (only breakthrus if you don't count the shadows). The past few months, it seems to have quit working. Back to one - six HAs a day now.
Cafegot when headaches hit. DHE when it gets really too much to handle to try to break "cycle" within cycle or whatever the hell is going on.
Ready to try shrooms, but have to go off meds first.
Verap didn't work on me and neither did much of anything else. Topamax has been my lifesaver, but now I don't know about it......
Not much fun........
Hugs BD
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ZAIRA
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Who is chronic?
« Reply #8 on: Nov 8th, 2003, 2:02pm » |
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Ciao Tracey  !
-I have been episodic for 10 years and now I'm chronic. My neurologist (Doc. Bussone, who was in Rome for cluster club  ) says that I am chronic because I do not have any clusters as usual in spring and autumn but during all the year long. I am well for a week and then start again with attacks. That is, I do not have clusters as a typical episodic sufferer.
BTW:
- Lithium (600 mg) + Verapamil (480 mg) evey day.... this combo works for me... 
- Imitrex shots, O2, Lidocaine, I bang my head against a wall...
- Yes... 
- Fuck Beast... 
Zaira
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| « Last Edit: Nov 8th, 2003, 2:03pm by ZAIRA » |
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Unsolved
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Re: Who is chronic?
« Reply #9 on: Nov 8th, 2003, 6:35pm » |
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Chronic for 3 years ... BUT PF for almost the past 2 weeks after starting Clomid
I won't stop taking my Verapamil and I always keep an injection close !
Unsolved
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Tim_w
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Re: Who is chronic?
« Reply #10 on: Nov 8th, 2003, 9:25pm » |
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Tracey
Chronic here 6 years now!
taking 960 mil Verapamil and maxalt
still getting hit 8 to 10 times aday afraid to go off verapamil , could get worse
Wishing you some PF time 
Timw Happy Pappy
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Mr. Happy
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I ain't chronic.......
« Reply #11 on: Nov 8th, 2003, 9:39pm » |
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Man.....I'm wearing a full body condom from now on around here.
You filthy chronics are 15% of 0.4% of the population.......and I know FAR TOO MANY of you on a first name basis.
Hose me down with sodium hypoclorite and Lysol........quick.......
Masked stranger,
RJ
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Linda_Howell
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Re: Who is chronic?
« Reply #12 on: Nov 8th, 2003, 9:42pm » |
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Too late.
(masked stranger on a 1st. name basis)
LMAO @ you
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Callico
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Re: Who is chronic?
« Reply #13 on: Nov 9th, 2003, 12:17am » |
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Chronic since March of last year. Episodic 23 yrs prior to that. On 240mg verap twice a day. Tried upping it by 60mg, but bottomed out blood pressure and almost passed out while driving. 300mg Lithium twice a day for the last month and feel almost humanoid again. Still have heavy shadows, but able to function. Just cant sleep at night. Occasional burnthroughs that I just tough out.
Jerry
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Mikey
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Re: Who is chronic?
« Reply #14 on: Nov 9th, 2003, 12:54am » |
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Tracey,
Me is chronic....LOL For 6 years now. I'm in a bad cycle with it now, and i take 720 mg of verap a day. I don;t think it's helping much, but too scared to quit taking it for the CH reason, which would lower my dose because i also take it for my heart condition. Also taking Depakote too 1500 mg a day.
And Randy, i hope your full bodied condom gets a tear in it.  .LMMFAO!!!!!! (just kidding...  )
Mikey,
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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Roxy
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Re: Who is chronic?
« Reply #15 on: Nov 9th, 2003, 11:37am » |
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on Nov 9th, 2003, 12:54am, Mikey wrote:| And Randy, i hope your full bodied condom gets a tear in it. .LMMFAO!!!!!! (just kidding... ) |
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I've been trying to rub off on him.....but, he's not having any of it....... 
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
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BUBBADOG
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i am a chronic suffer of the beast. does anybody live in the pennsylvania area that knows of a good doc. i have been traveling to chicago area and that is to far my family doc thinks i am nuts tells me i can not be having this many headaches . i am in a heavy cycle now this sucks i want my life back
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nancyc
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Re: Who is chronic?
« Reply #17 on: Nov 9th, 2003, 4:02pm » |
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I am chronic...have been pf since August 2002 except for three breakthru periods that did not last over two weeks each time..Before that I never seemed to get a break and was out of work on disability...I , now have my life back...I am on verapamil., topamax, the lowest dose of duragesic patch which I do NOT recommend for anyone that is Not chronic....I am grateful for each pf day I have...wish I could put them in a bottle and give them to each of you because I so remember those long days and nites of fighting the beast...my prayers are with all of you in cycle now... nancyc
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| « Last Edit: Nov 9th, 2003, 4:03pm by nancyc » |
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