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Topic: Hmmmmmmmmmmmmmm...... (Read 618 times) |
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aprilbee
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Hmmmmmmmmmmmmmm......
« on: Nov 7th, 2003, 9:31am » |
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May I vent a little please????
I have noticed that some members stay away from the board when they are out of cycle, instead of sticking around to support... I don't know why, but that just really bothers me. I think its only right to offer support when you can, especially when you're strong enough to give it!!
I realize that forgetting about CH is one of the best things to do when out of cycle, you just want to forget you have it, but hey guess what, you still do and so do tons of other people who are suffering while you are not and need your support, help, love compassion, yada yada yada....
I ask that if you are not in cycle, please stick around and help, be a suporter, there are people here who NEVER have CH's and they are here every day... it just makes no sense to me....
Ok, I'm off my soap box now...thank you...
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J.ten_Dam
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Re: Hmmmmmmmmmmmmmm......
« Reply #1 on: Nov 7th, 2003, 9:37am » |
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I agree with you and I am a bit of a culprit  as wel. I used to doo quite a bit of supportin myself even when I was not doing so wel. Which as cronic I seldom do. I had mentiond that I would be taking a break. I will do my best 
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wish you PFDAN
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thomas
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That's why I'm still here this time. 
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JDH
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Re: Hmmmmmmmmmmmmmm......
« Reply #3 on: Nov 7th, 2003, 9:45am » |
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been here since 10/02
been pf since 2/03
I ain't going anywhere.
Jim
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| « Last Edit: Nov 7th, 2003, 9:46am by JDH » |
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9-11-01, to remember is to honor.
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vig
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Re: Hmmmmmmmmmmmmmm......
« Reply #4 on: Nov 7th, 2003, 9:57am » |
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I think people have to do both.
It's good to be here and help support, but sometimes you need to just go and live and forget that you were ever here.... paradoxical.
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never, Never, NEVER quit. -Winston Churchill
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drnoe
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Re: Hmmmmmmmmmmmmmm......
« Reply #5 on: Nov 7th, 2003, 10:03am » |
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Yes, s'an issue.
I did feel funny posting when my cycle was aborted using verapamil (for the first time).
S'an adjustment to have a cycle after 7 years PF and finding this site at the same time. This cycle rocked my world and left a big hole where a month had been. Y'know, seemed like one loooooong night of pain and relief repeated til they blurred together.
I didn't post but I've kept reading.
Yes indeed, I don't wanna think bout em at all when I don't have em
and I'm not sure dwelling on CH and it's fractal facets is ,um,healthy.Information is good but that's abundant on the Meds board.
But I do want to support this site and everybody here and so if there's something to say that hasn't already been said by 15 other repliers then I do.
S'weird though.
peace
Dan
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BarbaraD
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Re: Hmmmmmmmmmmmmmm......
« Reply #6 on: Nov 7th, 2003, 10:32am » |
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Know what you mean ... a lot of CHeads only come here when they're in cycle and then leave when they're PF.
It may not seem fair, but maybe they just want to forget CH when they're not hurting.
The good news is -- there has never been a time since this MB went up that SOMEONE wasn't there for support when one of us needed it.
Hugs BD
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What don't kill ya, Makes ya stonger!
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Boots
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Re: Hmmmmmmmmmmmmmm......
« Reply #7 on: Nov 7th, 2003, 12:47pm » |
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Now that I found this MB I would'nt leave for free trex...
been pf since 8/15/03
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| « Last Edit: Nov 7th, 2003, 12:49pm by Boots » |
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Don't feed me sorrow,pain is the poison i digest
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Edna
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Re: Hmmmmmmmmmmmmmm......
« Reply #8 on: Nov 7th, 2003, 12:59pm » |
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Understand how you feel aprilbee.
Also think BarbD hits the nail on the head.
"The good news is -- there has never been a time since this MB went up that SOMEONE wasn't there for support when one of us needed it."
Hopefully that will always be the case. Glad those of us that ARE here remain.
Hoping that even those that can't stick around full time still think of us while they're gone!!
pf wishes,
EDNA
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Roxy
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Re: Hmmmmmmmmmmmmmm......
« Reply #9 on: Nov 7th, 2003, 1:28pm » |
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As usual.....I guess I'm not quite normal.....
I tend to just lurk when I'm hurting. When I'm feeling better, I post more.
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Hirvimaki
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Re: Hmmmmmmmmmmmmmm......
« Reply #10 on: Nov 7th, 2003, 1:57pm » |
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I'm the same way. I "lurk" when I am having an attack. But I am always around if someone - anyone - needs support.
Hirvimaki
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"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
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echo
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Re: Hmmmmmmmmmmmmmm......
« Reply #11 on: Nov 7th, 2003, 2:07pm » |
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I try to stick around before during and after the seasonal dance. This year it seems like the SOB forgot about the seasonal breaks.
Not in here as much lately due to "Big Brother".
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Virginia
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Re: Hmmmmmmmmmmmmmm......
« Reply #12 on: Nov 7th, 2003, 2:20pm » |
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When I'm really hurting, I don't post very much at all. Just can't. Don't want to look at the screen, can't form the thoughts, can't stand the clicking of the keys, etc. When I'm feeling better I feel I can participate more. But that's just me.
Don't post as much with my new job.
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The Clusterhead formerly known as 9erfan.
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Tara Ann
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Re: Hmmmmmmmmmmmmmm......
« Reply #13 on: Nov 7th, 2003, 2:20pm » |
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I think it depends on a person and how they handle their own life and emotions about their CH. SOme ppl NEED to forget about CH when they are PF (I'm assuming) and others like to be there to help others when they are be it PF or not and it doesn't bother them to have that reminder of pain past and pain future. I for one am not going anywhere when the sun starts shining again and I'm PF. But I don't resent the one's that need to forget till the next go 'round with the beast.
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Mr. Happy
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Re: Hmmmmmmmmmmmmmm......
« Reply #14 on: Nov 7th, 2003, 2:22pm » |
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Can you imagine 3 - 4,000 CHer's all spouting off in here daily? We'd have to recruit Evelyn Wood. It'd be almost as hard as keeping up with the OUCH board this past month or so...........
Blessed be the Lurkers,
RJ
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jonny
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Re: Hmmmmmmmmmmmmmm......
« Reply #15 on: Nov 7th, 2003, 2:53pm » |
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on Nov 7th, 2003, 12:59pm, Edna wrote: "The good news is -- there has never been a time since this MB went up that SOMEONE wasn't there for support when one of us needed it."
Hopefully that will always be the case. |
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Edna, Edna, Edna....you know that as long as im breathing ill be here everyday, hell!!, ive been here EVERYDAY since 10/05/99...so dont you worry sweetie  ....LOL
........................................jonny
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goaway
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Re: Hmmmmmmmmmmmmmm......
« Reply #16 on: Nov 7th, 2003, 3:24pm » |
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You raise a point I have wondered about.
For me, the majority of my posts have followed my last cycle which ended approximately 4 months ago.
Even though I have tried like the dickens (more Southspeak) to rid myself of the cameradarie to be found on this board, I just can't help myself.
OH MAMA, AM I ADDICTED!!!
to all of you and your friendship. I love having you guys around. Oh, one more thing,.... if I can help one of you out from time to time, then that's just GREAT too!!!
Best wishes from Mike from Mike from Mike from Mike from Mike from Mike from Mike from Mike from Mike
(See? I just keep coming back for more  )
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Edna
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Re: Hmmmmmmmmmmmmmm......
« Reply #17 on: Nov 7th, 2003, 4:07pm » |
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Oh yeah Mike, you got it bad mister!!!
And jonny!!!!!!!!!!! that is a comforting thought to me ole pal. Miss seeing you around so much, although I've had to be a little scarce myself. HELL, I can't even remember the last time I got to chat with CHARLIE!!!!!!!
Oh geez, something's got to give in this busy life of mine so that I can continue to hassle a few ppl here...LOL
pf wishes,
EDNA
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ZAIRA
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Re: Hmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm......
« Reply #18 on: Nov 7th, 2003, 4:15pm » |
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Hiya April,
I agree with you! If we are here it is for helping us, we don’t have to be selfish, but think also to other people. Sometimes the pain becomes a good “teacher” and takes out the best of us. A simple “Hello, how are you?” can change yr. day! Maybe these people didn’t understand it...
Quote:| I realize that forgetting about CH is one of the best things to do when out of cycle, you just want to forget you have it |
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My opinion.... it is the wrongest thing to forget CH, because when it comes again you could be not prepared. To live in the best way PF... this is important. But always be conscious that the “tomorrow” could be catastrophic. We are clusterhead! 
Ciao, Zaira 
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Love yourself, Love others, Love often, Forever!
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aprilbee
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Re: Hmmmmmmmmmmmmmm......
« Reply #19 on: Nov 7th, 2003, 5:01pm » |
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Teraann,
I never said I resented anyone, I was asking that those who are out of cycle stick around and support...I am not a mean person, this was just something on my mind. I'm sorry if I came off as resentful or mean, it was not meant that way... 
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jonny
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Re: Hmmmmmmmmmmmmmm......
« Reply #20 on: Nov 7th, 2003, 5:07pm » |
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Ill say it
YOU SUCK!!!!
If you suck on the support tittie and then fucking screw when your PF.....FUCK OFF!!!!!
...............................jonny
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Tara Ann
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Re: Hmmmmmmmmmmmmmm......
« Reply #21 on: Nov 7th, 2003, 5:29pm » |
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on Nov 7th, 2003, 5:01pm, aprilbee wrote:Teraann,
I never said I resented anyone, I was asking that those who are out of cycle stick around and support...I am not a mean person, this was just something on my mind. I'm sorry if I came off as resentful or mean, it was not meant that way...
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Oh april I didnt mean it that way at all!!!! I never thought you were mean or resentful...I was just speaking in general...ya know what i mean?
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Charlie
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Re: Hmmmmmmmmmmmmmm......
« Reply #22 on: Nov 7th, 2003, 5:52pm » |
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I'm officially lost. ???
Nevertheless, I like this place. It's a nice respite after a tough day of HBO, rewinding my English sitcom tapes, and working on my Ionian stamp collections. After a full day like this, coming here lets me unwind with other brain damaged types 
That reminds me; thanks Edna. I'll find you one of these days 
Thanks kids.
Charlie
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brain_cramps
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Re: Hmmmmmmmmmmmmmm......
« Reply #23 on: Nov 7th, 2003, 6:14pm » |
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Before a year ago, I would show up while in cycle... mostly lurking, occasionally posting.
For the last year, I've tried to show up whenever possible. Lack of an internet connection and "uncomfortable living arrangements" couldn't keep me away for more than a few days at a time during the summer.
Now that I'm studying at home, I'm basically online 24x7 (except for 4 hrs sleep some nights LOL) and, if anything, spend too much time here.
Like it or not... I'm here to stay.
grant
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catlind
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Re: Hmmmmmmmmmmmmmm......
« Reply #24 on: Nov 7th, 2003, 6:28pm » |
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Wish I could say I was lurking cause I was pain free. Sadly, Imitrex and I are very good buddies these days.
Such is the lot in life I have
Sooner or later they will go away...hopefully sooner.
Cat
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