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Topic: bad day (Read 236 times) |
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Hi guys! 
I am trying very hard to keep my positive attitude alive here...
I've been up since 5am this morning: the devil woke me up with KIP 8 and I'm supposed to live without it thanks to predisolon treatment!
So preventing medication No 2: not working!
Well, I didn't have that high expectations about predisolon; two weeks since I started and I've had horribly side effects. Still, being me, I kept on hoping that it would, you know, actually work!
Okay, take care everybody!
I hope you're doing better out there! 
Best wishes&PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Hirvimaki
New Board Hall of Famer
Quod me nutrit me destruit.
    
 
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Posts: 1105
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Re: bad day
« Reply #1 on: Oct 27th, 2003, 10:32am » |
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PF wishes your way. You are in my prayers.
Hirvimaki
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"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
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BarbaraD
CH.com Alumnus
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Hugs to ya
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Posts: 5164
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Re: bad day
« Reply #2 on: Oct 27th, 2003, 11:11am » |
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Sandie,
Sorry you're having a ruff time. Should have called - we could have played cards or something. I was dancing too.
Gotta laugh - hurts to cry....
I started DHE injections last night and hope they break the cycle. Don't know if you've ever tried them or not. They're awful, but have broken several for me. They're the LAST resort cause they hurt so darn bad and make you feel horrible, but if nothing else works.....
Anyhow, hope you PF days soon. You could come to Texas - Squirrell season is open. We could go shoot some squirrells... But don't expect me to cook them... I don't do rodents....
Hugs BD
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What don't kill ya, Makes ya stonger!
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tsayswhy
New Board Old Timer
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Posts: 279
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Re: bad day
« Reply #3 on: Oct 27th, 2003, 11:12am » |
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hello sandie sorry your not doing so well
hang in there pf days on its way 
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if you are going my way---i will walk with you
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Killroy 2.0
CH.com Alumnus
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Kilroy 2.0 is Here! Kilroy 2.0 is Everywhere!
Posts: 1426
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Re: bad day
« Reply #4 on: Oct 27th, 2003, 11:17am » |
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 Sorry you feel so bad.
Sending pf vibes to ya!
Gena
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Do the walls speak to you? Do you follow the Geek Messiah? DO YOU COMPLY?!
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NotH20
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Re: bad day
« Reply #5 on: Oct 27th, 2003, 11:22am » |
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Sorry to hear of your pain Sandie.....keep that positive attititude going though........it helps out in the long run....
BarbaraD - sending good vibes your way too girl....
Mia
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nancyc
New Board Old Timer
Friends don't let friends post drunk on mbs......
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Re: bad day
« Reply #7 on: Oct 27th, 2003, 11:30am » |
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Prayers going up for both of you gals...know I am thinking of you both..  nancyc
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: bad day
« Reply #8 on: Oct 27th, 2003, 11:44am » |
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So sorry ta hear you are miserable Sandie.......am wishin you PF time ahead soon that will last and last and last !!! Pam the PF vibe pusher
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Bob_Johnson
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Re: bad day
« Reply #9 on: Oct 27th, 2003, 11:49am » |
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With the pred. it sometimes necessary to do another round with higher doses before it kicks in. Individual variation in how it affects you. However, if you are having bad side effects now, then increasing the dose won't be attractive to you!
Ask you doc try this med to abort attacks. Print out this message and take it to him.
----
1: Headache 2001 Sep;41( :813-6
Olanzapine as an Abortive Agent for Cluster Headache.
Rozen TD.
Department of Neurology, Jefferson Headache Center/Thomas Jefferson University Hospital, Philadelphia, Pa.
OBJECTIVE: To evaluate olanzapine as a cluster headache abortive agent in an open-label trial. BACKGROUND: Cluster headache is the most painful headache syndrome known. There are very few recognized abortive therapies for cluster headache and fewer for patients who have contraindications to vasoconstrictive drugs. METHODS: Olanzapine was given as an abortive agent to five patients with cluster headache in an open-label trial. The initial olanzapine dose was 5 mg, and the dose was increased to 10 mg if there was no pain relief. The dosage was decreased to 2.5 mg if the 5-mg dose was effective but caused adverse effects. To be included in the study, each patient had to treat at least two attacks with either an effective dose or the highest tolerated dose. RESULTS: Five patients completed the investigation (four men, one woman; four with chronic cluster, one with episodic cluster). Olanzapine reduced cluster pain by at least 80% in four of five patients, and two patients became headache-free after taking the drug. Olanzapine typically alleviated pain within 20 minutes after oral dosing and treatment response was consistent across multiple treated attacks. The only adverse event was sleepiness. CONCLUSIONS: Olanzapine appears to be a good abortive agent for cluster headache. It alleviates pain quickly and has a consistent response across multiple treated attacks. It appears to work in both episodic and chronic cluster headache.
------------------------------------------------------------------------ --------
Olanzapine has a brand name of "Zyprexa" and is a antipsychotic. Don't be put off by this primary usage. Several of the drugs used to treat CH are cross over applications, that is, drugs approved by the FDA for one purpose which are found to be effective with unrelated conditions--BJ.
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Bob Johnson
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Karla
CH.com Alumnus
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One of Many and Never Alone - Join OUCH
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Posts: 3090
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Re: bad day
« Reply #10 on: Oct 27th, 2003, 12:39pm » |
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Yes the headache specialist and the ha clinic I am seeing recomended zeprexa to me also. It might benefit you to try this medicine.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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lisamchlmartin
New Board Newbie
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Re: bad day
« Reply #11 on: Oct 27th, 2003, 1:33pm » |
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Sandie, hope you feel better soon. It will get better
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Lisa
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ZAIRA
New Board Hall of Famer
Brave to Stand !!!
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Re: bad day
« Reply #12 on: Oct 27th, 2003, 5:12pm » |
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Sometimes I really think we are cursed. 
I’m so sorry, I hope yr. cycle lasts not long  , in the meantime, we send you all our energy.
They’ll give you the positive force to go on... 
My best wishes, Zaira
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Love yourself, Love others, Love often, Forever!
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AlienSpaceBabe
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Bad days suck......
hope you're having a better one today.... 
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Killroy 2.0
CH.com Alumnus
New Board Hall of Famer
Kilroy 2.0 is Here! Kilroy 2.0 is Everywhere!
Posts: 1426
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Re: bad day
« Reply #14 on: Oct 29th, 2003, 2:22pm » |
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Keep your chin up.
Hope you feel better real soon
Gena
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Do the walls speak to you? Do you follow the Geek Messiah? DO YOU COMPLY?!
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