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Topic: Another new Med (for Me) (Read 218 times) |
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swartzrs
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Another new Med (for Me)
« on: Oct 20th, 2003, 2:28pm » |
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This is my first post so bear with me. I'm a 48 yr old male who is chronic. Been getting CHs for about 7 years but then all the sudden 3 yrs. ago I started getting them every day and decided to see a Doc. I've been visiting this site for some time and find it comforting that I'm not alone.
I have the standard equipment, O2, Verapamil, Imitrex (shot and inhaler)
I was taking Topomax for several months but one day while I was working with my son I had what might be called a Heat storke attack. Never had anything like it in my entire life. Well after some research I discovered that Topomax could be the cause, called the Neuro PA and told her, and I weened myself off of it. That was in Aug. After I stopped the Topomax the S**t hit the fan. (Not that Topomax was a cure-all but it made life bearable.) I started getting 2,3 or 4 CHs a day. Thought I'd go nuts. Last week I visted the Nureo clinic, been waiting for a month to see someone and the PA started me on Lamotrigine 25mg/d movig up to 50 after the first week. Well, the results have been GREATI haven't had a >5 CH since and for the last 4 days NONE!! I even had a few drinks, the real test, god old scotch and water.
Now will the beast find a way to get through this? Only time will tell. But boy I'm happy.
Raybo
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thomas
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Re: Another new Med (for Me)
« Reply #1 on: Oct 20th, 2003, 2:31pm » |
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Awesome. I'm so glad that you are getting some relief.
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Cerberus
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Re: Another new Med (for Me)
« Reply #2 on: Oct 20th, 2003, 3:01pm » |
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Great news.............here's to hoping it contiues to work for you.
Ramon
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cathy
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Re: Another new Med (for Me)
« Reply #3 on: Oct 20th, 2003, 3:05pm » |
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Raybo....Thanks for sharing always good to hear good news....welcome aboard and hope your gonna stick around to keep us posted!!
Cathy
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cootie
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Re: Another new Med (for Me)
« Reply #4 on: Oct 20th, 2003, 10:46pm » |
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Welcome Raybo......hope the new med continues to work for you cuz that is great news ta hear sumone has found sumthn that is helpin !!! Pambo 
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Another new Med (for Me)
« Reply #5 on: Oct 21st, 2003, 6:35am » |
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Hi Raybo! 
I am so happy for you! I used to have 4 attacks a day, so I do know how horrible it can be. 
Good that you've found something that works! 
With all the treatments out there - it's a lottery, really. I'm on predisolon now and it keeps my head PF, which is good.
Best wishes & PF days!!! 
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Patrick_A
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Re: Another new Med (for Me)
« Reply #6 on: Oct 21st, 2003, 10:10am » |
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Great news raybo, Keep us posted!
Patrick  and 
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stuey
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Re: Another new Med (for Me)
« Reply #7 on: Oct 21st, 2003, 3:40pm » |
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So glad you found something that's helping you. Welcome also. Will look this up and see if it can be combined with all the mess I have been taking.
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